One number stuck in my head: 5%
That would be his chance of survival if he survived the pregnancy.
I should start by saying that this was my second pregnancy. My first pregnancy ended badly. I was pregnant with a little boy we would name Thomas. Thomas was diagnosed with OSB (open spina bifida) and several other things that are commonly associated with OSB. I was...read more
Life was perfect! My husband, Greg had a wonderful job he loved, our year and half year old son, Wyatt was a dream and we were expecting another baby; a girl we named Ellery! We had it all and life was wonderful! But our world forever changed September 9th, 2008; the...read more
I remember Chase being born and not hearing him cry.
It was April Fool’s Day 2008. I decided to play a practical joke on two of my best friends and told them I was pregnant. Little did I know not even a week later I would find out I was actually pregnant. I remember crying because it was unplanned and I was scared,...read more
Read moreI ignored my “mother’s intuition” for weeks before discovering that there was, in fact, a serious problem.
At six weeks pregnant we found out we were having twins. We were thrilled!! At ten weeks pregnant my OB told me they were dichorionic, diamniotic twins. He decided that I did not need another ultrasound for ten more weeks. I was uncomfortable with this, but since this...read more
The doctors were blown away by her, they told us it is rare that babies as sick as she was survive. They called her a miracle.
It all started when I was 20 weeks pregnant, I was so excited to go and get an ultrasound done. My husband and I had an adorable son named Xavier and we were overjoyed that he would be getting a baby brother or sister. At the ultrasound, things seemed fine. My...read more
The happiness I felt instantly melted away when she said, “We found some abnormalities and your baby is very sick.”
I still remember January 17th 2010 like it was yesterday. I made an appointment because for some strange reason all 7 pregnancy tests were coming up positive. It took the doctor bluntly saying “You’re pregnant” for it to finally sink in. Planned or unplanned, I...read more
I can remember the rush of gratitude and joy that I felt the moment the sonographer confirmed that our Leilani was going to have a brother. I couldn’t think of another time that I felt so incredibly lucky – I was going to have the perfect, complete family that I had...read more
A hole had formed in her diaphragm causing her intestines and other organs to push into her chest and restrict lung growth.
On February 14th 2010, I gave birth to two beautiful little girls named Kennedy and Columbia. Shortly after their birth we were told that Kennedy was born with a Congenital Diaphragmatic Hernia (CDH). A hole had formed in her diaphragm causing her intestines and other...read more
“I don’t have good news for you today. Do you remember that rare condition that I told you about called twin-twin transfusion syndrome? Well you have it.”
In March of 2008 my wife and I found out that we were unexpectedly pregnant and a week later we found that we were pregnant with twins. The ultrasound showed that we had identical twins and that they were diamniotic monochorionic. Our OB recommended that we see a...read more
Read moreWe were stunned to find out that we had Twin to Twin Transfusion Syndrome. I had read about it, but never thought that it would happen to our family.
This is for Austin and Avery. My name is Robin Murray, and my husband's name is Dustin. We live in Colorado, and have a daughter named Ayla. We got married in January 2010, and had thoughts of having just one more child. We got pregnant in April 2010 and in May 2010...read more
Give hope to families with a frightening diagnosis