Our Founders’ Story

TWINS! There are few moments in one's life that they can recall every detail about a particular day. For us it began with the news we were expecting twins. This was probably the first time I was truly speechless for what seemed to be 48 hours, but was probably not...

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She also is a real miracle baby. It seems everything that could happen to her does happen, yet she fights and makes it through. We know she is here for a reason!

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Tessa and Tara Gellner’s Story

We found out we were pregnant at the end of May, 2004. We were thrilled to know that we were going to have a sibling for our 15 month old son, Holden. In early August, at a routine check-up, two heartbeats were discovered, and with a quick ultrasound, it was...

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I looked at the tech and said “His heart isn’t beating is it? Why is there no heartbeat?”
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Brock and Brandon’s Story

We lost our twin boys, Brock Antony and Brandon Malachi in December 2003 at 27.4 weeks gestation. I had gone to the emergency room on December 6 for severe rib pains related to a horrible cold. During the visit, they found both of the boys' heartbeats. On December 8,...

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This was the weekend my wife and I started to think our twins would make it. We were very encouraged. By the end of our recovery stay we had settled on Evan and Joshua as their names.

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Joshua and Evan Ridgeway’s Story

My wife Jen and I have become parents to 2 wonderful TTTS survivors, Evan and Joshua born at 32 weeks on 11/06/02. Our TTTS story started in July of 2002. Jen had become pregnant at age 39. Me at 47, and our kids at 17 and 14 had some re-adjusting to do. Wow! At the...

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TTTS is a horrible disease and an unknown disease. Any disease that strips a parent of their children is a disease that needs to be stopped. Babies shouldn’t have to die. That is why as hard as it was to write this, I wanted to write in memory of my little angels, Jacqueline Faith and Brittany Hope.

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Jacqueline and Brittany Kent’s Story

This is the story of how I lost my two little girls to TTTS at the age of 29. This was not a planned pregnancy and was natural (no fertility drugs). When I first found out I was pregnant with twins, I was filled with all kinds of different emotions; scared, excited, a...

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Our story begins as many do, with a hopeless diagnosis and questions without answers.
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Noel and Natalie Barr’s Story

Our story begins as many do, with a hopeless diagnosis and questions without answers. Our fate though was not to bow to defeat. It was not through great intellect or skill that we managed to avert disaster. It was through determination and a series of fateful...

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We left her office planning the baby shower, thinking everything was just fine.

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Grandmother Tells Benjamin and Bailey’s Story

My daughter found out she was having twins on Feb.14, 2004 when she was 19 weeks. The sonogram technician mentioned that there appeared to be one placenta, but didn't mention any potential problems or TTTS. My daughter was very sick for the first 3 months of her...

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This appointment changed our lives forever…first, we found out we were having identical girls, and second, we were told we had a very rare disease: Twin-To-Twin Transfusion Syndrome (TTTS).
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Lexi and Katelyn Smith’s Story

“Our Story” begins on my birthday, June 24th, 1999. Nick and I found out the wonderful news that we were expecting! A few weeks later, I had some exciting news for my husband, “Nick, Honey, I want to show you the picture of the sonogram I got today…why don’t you take...

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We had plans to fly out to see him for the surgery, but my cervix had other ideas. By this time, I was dialated 2-3 cm.

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Allison and Caroline Dewees’ Story

Our story begins when I was diagnosed with TTTS at 20 weeks into my pregnancy. For almost three weeks prior, I had been suffering from extreme back pain. As this was my first pregnancy, with twins no less, I believed the doctor when she told me it was normal. So, I...

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The ultrasound showed Courtney had stopped moving. We had an emergency section and the girls were taken right to the NICU. They spent 65 days there.
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Kirsten and Courtney Riser’s Story

I am writing about my girls who are survivors of TTTS. Kirsten and Courtney were born 12/11/99 at 29 weeks. Kirsten was 2 pounds 9oz (donor twin) 14 inches long and Courtney was 2 pounds 4oz and 14 inches long. Kirsten was intubated for a week and then on cpap for...

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