A hole had formed in her diaphragm causing her intestines and other organs to push into her chest and restrict lung growth.
On February 14th 2010, I gave birth to two beautiful little girls named Kennedy and Columbia. Shortly after their birth we were told that Kennedy was born with a Congenital Diaphragmatic Hernia (CDH). A hole had formed in her diaphragm causing her intestines and other...read more
“I don’t have good news for you today. Do you remember that rare condition that I told you about called twin-twin transfusion syndrome? Well you have it.”
In March of 2008 my wife and I found out that we were unexpectedly pregnant and a week later we found that we were pregnant with twins. The ultrasound showed that we had identical twins and that they were diamniotic monochorionic. Our OB recommended that we see a...read more
Read moreWe were stunned to find out that we had Twin to Twin Transfusion Syndrome. I had read about it, but never thought that it would happen to our family.
This is for Austin and Avery. My name is Robin Murray, and my husband's name is Dustin. We live in Colorado, and have a daughter named Ayla. We got married in January 2010, and had thoughts of having just one more child. We got pregnant in April 2010 and in May 2010...read more
Read moreOurs is a sad but happy story. We had waited 10 years to hear two simple words, “you’re pregnant.”
Ours is a sad but happy story. We had waited 10 years to hear two simple words, "you’re pregnant." When it finally happened we were so excited. At our first ultrasound appointment we were told we were having twins. We were shocked. I was asked to come back two...read more
TWINS! There are few moments in one's life that they can recall every detail about a particular day. For us it began with the news we were expecting twins. This was probably the first time I was truly speechless for what seemed to be 48 hours, but was probably not...read more
She also is a real miracle baby. It seems everything that could happen to her does happen, yet she fights and makes it through. We know she is here for a reason!
We found out we were pregnant at the end of May, 2004. We were thrilled to know that we were going to have a sibling for our 15 month old son, Holden. In early August, at a routine check-up, two heartbeats were discovered, and with a quick ultrasound, it was...read more
Read moreI looked at the tech and said “His heart isn’t beating is it? Why is there no heartbeat?”
We lost our twin boys, Brock Antony and Brandon Malachi in December 2003 at 27.4 weeks gestation. I had gone to the emergency room on December 6 for severe rib pains related to a horrible cold. During the visit, they found both of the boys' heartbeats. On December 8,...read more
This was the weekend my wife and I started to think our twins would make it. We were very encouraged. By the end of our recovery stay we had settled on Evan and Joshua as their names.
My wife Jen and I have become parents to 2 wonderful TTTS survivors, Evan and Joshua born at 32 weeks on 11/06/02. Our TTTS story started in July of 2002. Jen had become pregnant at age 39. Me at 47, and our kids at 17 and 14 had some re-adjusting to do. Wow! At the...read more
TTTS is a horrible disease and an unknown disease. Any disease that strips a parent of their children is a disease that needs to be stopped. Babies shouldn’t have to die. That is why as hard as it was to write this, I wanted to write in memory of my little angels, Jacqueline Faith and Brittany Hope.
This is the story of how I lost my two little girls to TTTS at the age of 29. This was not a planned pregnancy and was natural (no fertility drugs). When I first found out I was pregnant with twins, I was filled with all kinds of different emotions; scared, excited, a...read more
Read moreOur story begins as many do, with a hopeless diagnosis and questions without answers.
Our story begins as many do, with a hopeless diagnosis and questions without answers. Our fate though was not to bow to defeat. It was not through great intellect or skill that we managed to avert disaster. It was through determination and a series of fateful...read more
Give hope to families with a frightening diagnosis