“He has so much joy. He’s always smiling, even if it’s a hard day,” says Mandy, Kaleb’s mom. “It’s weird to think of what he has been through at such a young age, but he’s full of life despite all of it.”
When Beth Kanemoto was pregnant with identical twins Kai and Klay, it felt like every two weeks she received more bad news. First, they learned the pregnancy was high risk. Initially, doctors thought the twins might be conjoined, but they soon learned that instead, Klay and Kai were considered mono-mono twins, meaning that they shared just one amniotic sac with no barrier between them.
After a diagnosis of maternal fetal alloimmunization and losing baby Lucy to hemolytic disease of the fetus and newborn (HDFN), Bethany took action. She made it her mission to ensure that other mothers diagnosed with maternal alloimmunization had education about the risks of the disease and knew the steps for proper medical care and treatment so that their babies could survive HDFN.
Cincinnati Children’s, a national leader in prenatal myelomeningocele surgery, recently conducted their 100th prenatal surgical repair. Kelly Song’s daughter was diagnosed with spina bifida at 20 weeks. Read more:
The team at UC Davis decided to separate these conjoined twins at 9 months of age. They took special precautions such as house calls during COVID to give the girls the best chance at an amazing life.
11-weeks pregnant with her third child, Jessica Reger expected this pregnancy to go as smoothly as the others, with the exception of a complicated delivery with her second baby that required an emergency surgery and blood transfusions. But a routine ob/gyn visit revealed an abnormal blood screen – her blood was alloimmunized.
The whole morning turned into changing and canceling appointments, meeting new doctors, and understanding a real new world of twins. My doctor explained so many things about my pregnancy, including how it had become high risk, and that we needed screening every two weeks for things like TTTS.
Giving birth to a baby with an unusual prenatal diagnosis at 27 weeks in the midst of a global pandemic comes with its own unique challenges. That was one family’s reality earlier this year. But the care team at the Colorado Fetal Care Center — the only team in the region able to perform the procedure their baby needed to survive — was there to help them through it.
The first time I felt the pain that I described to the doctors as Braxton-Hicks contractions, I didn’t know it was a placental abruption. Read more about Lailani and her story.
“In severe cases of CDH, the survival rate is ranging from less than 20% to 50%, but with FETO, we’re seeing a huge improvement in odds of survival,” said Dr. Lim. “Right now, it looks like survival rates as high as 80-90% are possible, but we’re still learning.”