Stories - Fetal Health Foundation

STORIES OF HOPE FOR FETAL SYNDROMES

What happens after you hear a fetal syndrome diagnosis? Families tell their stories.

When my babies died…the nurses were #NotJustaNurse

Jan 23, 2019

Gina Harris is the CEO of Now I Lay Me Down To Sleep. In this piece she shares how important nurses have been in her life. “When I went into labor with my first baby on October 24, 2007, I did not know what to expect. I knew that our baby David would either be stillborn or he would die shortly after birth. He had Potter’s Syndrome, which means his kidneys never developed, thus preventing his lungs from developing…”

Coping with the Unexpected When You’re Expecting – 3 Things to Keep in Mind

Nov 28, 2018

Expectant parents have a great deal on their agenda during the months leading up to delivery. With so much to do, managing the details can be overwhelming − especially when things don’t go according to plan. The truth is, whether you are a first-time parent or seasoned with experience, the journey can often be unpredictable.

Why We’re So Excited About The Latest Advances in Fetal Medicine

Oct 1, 2018

When my wife and I received the news that our baby girls had Twin to Twin Transfusion Syndrome, we were devastated. That was 15 years ago and there weren’t a lot of options or resources available for those diagnosed with a fetal syndrome. Fortunately for us, we...

Four Things to Consider When Dealing with the Uncertainty of TTTS

Sep 6, 2018

A scar blankets the wound that materializes from physical trauma endured in the past. Displayed on the body like artwork on a canvas, the design tells the story of a major life event. In the 2018 edition of Connexions magazine three women discuss their badges of honor...

Twin Girls Teach Dad Valuable Life Lessons During  Half-Marathon

Jun 13, 2018

Lonnie Somers experiences the celebration that comes with Father’s Day each and every day. Fifteen years ago, the marathon-running CFO and his pregnant wife, Michelle, raced 2,000 miles to Tampa, Fla. from Denver, Colo. in search of lifesaving help for their unborn twins.

Connexions Magazine 2018 is Live

Apr 2, 2018

Fetal Health Foundation Connexions magazine for 2018 has just been published online. The annual issue includes survivor photos, news on the latest grants, stories from families who have experiences fetal syndromes, and why you should be picky when choosing an OB.

Family of Triplets Honor Angel Sister at The Great Candy Run Minneapolis

Sep 28, 2017

Based on blood levels, the parents were told they were probably expecting one or two babies. However, an ultrasound at six and a half weeks showed one sac with one baby and a second sac with identical triplets. Read their TTTS story.

A Grim Pregnancy Diagnosis Leads Father to Create International Nonprofit Fetal Health Foundation to Aid Expectant Families

Jun 12, 2017

Press Release 14 June 2016 On Father's Day, Local Dad Recounts How the Birth of His Twin Daughters 13 Years Ago Changed the Course of His Life Like most Dads, Lonnie Somers is looking forward to spending Father’s Day with his daughters, Ashley and Aspen. Their births...

I knew nothing about TTTS at that point. My doctors never discussed it with me. Even as a sonographer, I didn’t know how to tell if it was happening.

A Sonographer Shares Her Personal Story

Jun 10, 2016

Let me start by saying that I’m a Sonographer. I knew I was pregnant and knew it was twins very early – at around 5 and a half weeks. I knew nothing about TTTS at that point. My doctors never discussed it with me. Even as a sonographer I didn’t know how to tell if it was happening.

Honoring Me on Mother’s Day In Celebration of My Angels

May 16, 2016

We are saddened by the loss of Ella and Grace to twin-to-twin transfusion syndrome. Their mother, Jennifer, wrote this piece on Mother's Day, and she's allowing us to share it here. I am a mother. I have thought all morning about what today means to me and if I even...