My son is Matthew. He was diagnosed with LUTO at week 17 of our pregnancy. It was a difficult pregnancy because he had a twin sister with him in there. By the time we got to our MFM, his kidneys were very damaged, his bladder was full and was thick- walled, his chest...read more
Aran Hissam is a new member of the Fetal Health Foundation Board. Before joining our organization, she channeled her experience with a fetal syndrome, non-immune fetal hydrops, to her work with the Brianna Marie Foundation. The Fetal Health Foundation's Research...read more
After giving birth to twins who survived Twin-to-Twin Transfusion Syndrome, Talitha McGuinness joined with Lonnie and Michelle Somers to help further efforts to save babies with fetal syndromes. We asked her to share her story. Our twin-to-twin transfusion syndrome...read more
Fetal Health Foundation's Executive Director, Dalia EL-Prince shares her story of coping after the loss of her baby in 2003. "Does it get better?" Today I was asked, "Does it get better after the loss of your baby? Does it?" It's a question I often struggle to answer....read more
The news of twins was surreal. My husband and I were overjoyed but that joy was short lived.
Our doctor detected an abnormality on a ultrasound when I was only 10 weeks along. Not sure what it was, she had me come back the next week for a better look. I was quickly referred to a fetal specialist who gave us a diagnosis of TTTS and referred us to Dr. Ruben Quintero.
Our official diagnosis: TTTS with and an Acardiac Twinread more
At our 18-week ultrasound it was discovered that we had an acardiac twin.
I just want to share my story about my daughter, Julia, who is the miracle who resulted from my TRAP pregnancy. In the fall of 2009, I suffered two miscarriages. The following January, I became pregnant with twins naturally. At about nine weeks, we were told one of...read more
We have never given up hope,
even when it seemed impossible!
Email: firstname.lastname@example.org Story: My fiance and I found out at 7 weeks we would be having triplets! Talk about shocked: we were told I couldn't have any babies 2 years prior. We automatically became high risk, as all triplet pregnancies are. We had an...read more
Diagnosis: Severe TTTS. I was stage 3 and progressing quickly.
I wasn't expecting a baby, certainly not twins. I'd taken "precautions". But here I was, and moving from Colorado to Tampa, Florida at 20wks to boot. A few weeks later, I stopped feeling "Baby B" move, it was my husband's 1st day of his new job. The staff at hospital...read more
Read moreWe decided to continue with the pregnancy and hope for the best, but prepare for the worst.
Although we are a young couple, having a family has always been important to us. After getting married we immediately began trying to have a baby, with no such luck. We finally visited a reproductive endocrinologist after almost three years of trying, and she put me...read more
This is my first child/pregnancy, and I am absolutely devastated.
Email: email@example.com Story: We were diagnosed at 21 weeks gestation with HLHS (hypoplastic left heart syndrome), from a obgyn specialist. They referred us to Dallas Texas to the cardiologist specialist at the Childrens hospital. My first appointemnt was...read more
Give hope to families with a frightening diagnosis