The Best Possible Chance at a Fantastic Life
I saw my physician’s name come across my phone screen, and my heart sank. He explained that the ultrasound showed an abnormality, and he predicted a spina bifida diagnosis. I had no idea what that meant, and the rest of the words coming out of his mouth became a blur.
Noelle’s Light
I was so, so terrified. Not for me, but for her. Would she be okay? Would she be in pain? Please just save her! As I wheeled away from my family, the only feeling I remember is fear. In the OR, faces I didn’t know surrounded me. I was squeezing the hand of a person I’d never met as they prepped me for the emergency C-section.
Eli’s Story: Finding a Miracle at the End of a Diagnosis
“There’s a major problem with your pregnancy.” Are words no expecting parents anticipate hearing. At our routine twenty-week ultrasound, the ultrasound technician got the doctor, and we heard the words that would forever change our lives. “The bladder isn’t releasing urine” and “the amniotic fluid level is dangerously low.”
Babywearing and the Impact It Has on the Bond Between Baby and Caretaker
Kangaroo care (KC, sometimes referred to as “skin-to-skin”) is the most optimal way to promote close contact and can be done by placing your diapered (undressed) baby on your bare chest. This seemingly insignificant practice will actually promote a strong and healthy relationship between caregiver and baby while helping baby thrive exponentially.
Family Celebrates One-in-a-Million Odds
During Alysha’s 23rd week of pregnancy, their unborn daughter was diagnosed with a rare tumor growing on her heart. Fewer than one in a million babies develop this type of tumor – called a fetal pericardial teratoma – which often results in death.
Everett’s Update: Flourishing After Fetoscopic Surgery
Most mothers would probably tell their child to sit down and stop standing on the chair in the middle of their family photography session. But when you’re told your son will never walk and he mischievously climbs onto a chair with no help and stands there, posing for the camera … well, you let him do it.
What a Difference a Year Can Make
This time last year, I was taking a pregnancy test. Today, I’m the mother of a healthy four month-old little boy who loves to smile and kick his legs like crazy.
My Son’s First Surgery for Spina Bifida
Johnna Kerres tells her story of the surgery she and her son underwent before he was born. The fetoscopic surgery contributed to medical research.
Preeclampsia and How It Snuck Into My Pregnancy
After a dangerous experience, mom Paula Yost Schupp encourages all pregnant women to be familiar with the signs of preeclampsia, even if they, like her, seem to have no initial risk factors. She tells her story of how she was diagnosed, and what happened as a result.
The Worst News Becomes A Beautiful, Life-Changing Moment
Logan’s story is so much bigger than his diagnosis. To fully understand you have to know I had a stillborn baby named Andrew 12 years before I had Logan. Andrew had the same diagnosis as Logan. I can never forget the day I knew something was wrong with Logan. We went...