Stories - Fetal Health Foundation

STORIES OF HOPE FOR FETAL SYNDROMES

What happens after you hear a fetal syndrome diagnosis? Families tell their stories.

The happiness I felt instantly melted away when she said, “We found some abnormalities and your baby is very sick.”

Momma’s Brave Little Lamb

Aug 2, 2011

I still remember January 17th 2010 like it was yesterday. I made an appointment because for some strange reason all 7 pregnancy tests were coming up positive. It took the doctor bluntly saying “You’re pregnant” for it to finally sink in. Planned or unplanned, I...

My Little Lion, Kai

Aug 2, 2011

I can remember the rush of gratitude and joy that I felt the moment the sonographer confirmed that our Leilani was going to have a brother. I couldn’t think of another time that I felt so incredibly lucky – I was going to have the perfect, complete family that I had...

A hole had formed in her diaphragm causing her intestines and other organs to push into her chest and restrict lung growth.

Our Congenital Diaphragmatic Hernia Miracle

Apr 29, 2011

On February 14th 2010, I gave birth to two beautiful little girls named Kennedy and Columbia. Shortly after their birth we were told that Kennedy was born with a Congenital Diaphragmatic Hernia (CDH). A hole had formed in her diaphragm causing her intestines and other...

“I don’t have good news for you today. Do you remember that rare condition that I told you about called twin-twin transfusion syndrome? Well you have it.”

Kamryn & Kourtney’s Story

Feb 24, 2011

In March of 2008 my wife and I found out that we were unexpectedly pregnant and a week later we found that we were pregnant with twins. The ultrasound showed that we had identical twins and that they were diamniotic monochorionic. Our OB recommended that we see a...

We were stunned to find out that we had Twin to Twin Transfusion Syndrome. I had read about it, but never thought that it would happen to our family.

Avery and Austin’s story

Nov 4, 2010

This is for Austin and Avery. My name is Robin Murray, and my husband's name is Dustin. We live in Colorado, and have a daughter named Ayla. We got married in January 2010, and had thoughts of having just one more child. We got pregnant in April 2010 and in May 2010...

Ours is a sad but happy story. We had waited 10 years to hear two simple words, “you’re pregnant.”

Georgie’s Story

Sep 15, 2010

Ours is a sad but happy story. We had waited 10 years to hear two simple words, "you’re pregnant." When it finally happened we were so excited. At our first ultrasound appointment we were told we were having twins. We were shocked. I was asked to come back two...

Our Founders’ Story

Sep 4, 2009

TWINS! There are few moments in one's life that they can recall every detail about a particular day. For us it began with the news we were expecting twins. This was probably the first time I was truly speechless for what seemed to be 48 hours, but was probably not...

She also is a real miracle baby. It seems everything that could happen to her does happen, yet she fights and makes it through. We know she is here for a reason!

Tessa and Tara Gellner’s Story

Sep 4, 2009

We found out we were pregnant at the end of May, 2004. We were thrilled to know that we were going to have a sibling for our 15 month old son, Holden. In early August, at a routine check-up, two heartbeats were discovered, and with a quick ultrasound, it was...

I looked at the tech and said “His heart isn’t beating is it? Why is there no heartbeat?”

Brock and Brandon’s Story

Sep 4, 2009

We lost our twin boys, Brock Antony and Brandon Malachi in December 2003 at 27.4 weeks gestation. I had gone to the emergency room on December 6 for severe rib pains related to a horrible cold. During the visit, they found both of the boys' heartbeats. On December 8,...

This was the weekend my wife and I started to think our twins would make it. We were very encouraged. By the end of our recovery stay we had settled on Evan and Joshua as their names.

Joshua and Evan Ridgeway’s Story

Sep 4, 2009

My wife Jen and I have become parents to 2 wonderful TTTS survivors, Evan and Joshua born at 32 weeks on 11/06/02. Our TTTS story started in July of 2002. Jen had become pregnant at age 39. Me at 47, and our kids at 17 and 14 had some re-adjusting to do. Wow! At the...