Fetal Health Foundation

WHEN A FETAL SYNDROME DIAGNOSIS FEELS LIKE THE END, WE HAVE RESOURCES AND HOPE FOR NEW BEGINNINGS.

YOU'LL NEVER FORGET THE MOMENT YOU HEAR YOUR BABY MAY NOT SURVIVE. WE REMEMBER.

LIFE CHANGES THE INSTANT YOU LEARN YOUR UNBORN BABY HAS A FETAL SYNDROME. WE HAVE RESOURCES TO HELP.

OVERWHELMED BY A FETAL DIAGNOSIS? WE’RE HERE FOR YOU.

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Fetal Syndrome Month

As a parent-founded non-profit, we are grateful for the support of our Stewardship Circle member institutions.

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YOU’RE NOT ALONE.

This is a scary and lonely moment. We have a network of people to stand with you. Read their stories.

4,000 PARENTS HEAR A FETAL CONDITION DIAGNOSIS EVERY DAY.

The first step? Understand the diagnosis. Learn more here.

HOPE FOR A FETAL SYNDROME DIAGNOSIS

Connect with medical specialists around the globe. Find a treatment center.

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Your contribution gives hope to families with fetal syndromes.

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Noelle’s Light

I was so, so terrified. Not for me, but for her. Would she be okay? Would she be in pain? Please just save her! As I wheeled away from my family, the only feeling I remember is fear. In the OR, faces I didn’t know surrounded me. I was squeezing the hand of a person I’d never met as they prepped me for the emergency C-section.

Spina Bifida Research at UC Davis Provides Hope

Spina bifida, which literally means “cleft or split spine,” is the most common permanently disabling birth defect in the United States. According to the Centers for Disease Control and Prevention, about 1,645 babies are born in the U.S. with spina bifida each year.

Eli’s Story: Finding a Miracle at the End of a Diagnosis

“There’s a major problem with your pregnancy.” Are words no expecting parents anticipate hearing. At our routine twenty-week ultrasound, the ultrasound technician got the doctor, and we heard the words that would forever change our lives. “The bladder isn’t releasing urine” and “the amniotic fluid level is dangerously low.”