WHEN A FETAL SYNDROME DIAGNOSIS FEELS LIKE THE END, WE HAVE RESOURCES AND HOPE FOR NEW BEGINNINGS.
YOU'LL NEVER FORGET THE MOMENT YOU HEAR YOUR BABY MAY NOT SURVIVE. WE REMEMBER.
LIFE CHANGES THE INSTANT YOU LEARN YOUR UNBORN BABY HAS A FETAL SYNDROME. WE HAVE RESOURCES TO HELP.
As a parent-founded non-profit, we are grateful for the support of our Stewardship Circle member institutions.
Your contribution gives hope to families with fetal syndromes.
9 years after our 100-day stay at the NICU, I was suddenly paralyzed by PTSD. Every horrible feeling of fear, anxiety, despair, and anger came flooding back all at once, as a sucker punch to the gut. Emotional scars I thought long healed were bleeding again, as I hurt for my friend and for my own experiences.
“We have a unique approach that is a technique first established in Brazil by Dr. Lapa, and we brought it over to the United States. Dr. Quintero and I have put together a fetoscopic treatment that is FDA approved to repair open spina bifida, that is entirely percutaneous (there is no laparotomy and no hysterectomy),” said Dr. Ramen Chmait, Director, Los Angeles Fetal Surgery.
I saw my physician’s name come across my phone screen, and my heart sank. He explained that the ultrasound showed an abnormality, and he predicted a spina bifida diagnosis. I had no idea what that meant, and the rest of the words coming out of his mouth became a blur.