WHEN A FETAL SYNDROME DIAGNOSIS FEELS LIKE THE END, WE HAVE RESOURCES AND HOPE FOR NEW BEGINNINGS.

YOU'LL NEVER FORGET THE MOMENT YOU HEAR YOUR BABY MAY NOT SURVIVE. WE REMEMBER.

LIFE CHANGES THE INSTANT YOU LEARN YOUR UNBORN BABY HAS A FETAL SYNDROME. WE HAVE RESOURCES TO HELP.

OVERWHELMED BY A FETAL DIAGNOSIS? WE’RE HERE FOR YOU.

As a parent-founded non-profit, we are grateful for the support of our Stewardship Circle member institutions.

Curing Spina Bifida

Growing up in the 1960’s, Dr. Diana Farmer’s mother taught Sunday school for disabled children where she first met children who had spina bifida.
“It was a really crummy disease,” Farmer said. Dr. Farmer is now leading innovative research, which holds promise of saving lives and lifetimes.

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VIDEO: Fetal Surgery to Treat Paralysis Associated with Spina Bifida

In the video she discusses the improvements that resulted from the initial fetal surgeries, including a reduction in the need for shunts.  She now believes that with the latest breakthroughs involving fetal surgery and stem cells that the paralysis associated with spina bifida will be cured in her lifetime.

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Everett’s Update: Flourishing After Fetoscopic Surgery

Most mothers would probably tell their child to sit down and stop standing on the chair in the middle of their family photography session. But when you’re told your son will never walk and he mischievously climbs onto a chair with no help and stands there, posing for the camera … well, you let him do it.

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