WHEN A FETAL SYNDROME DIAGNOSIS FEELS LIKE THE END, WE HAVE RESOURCES AND HOPE FOR NEW BEGINNINGS.
YOU'LL NEVER FORGET THE MOMENT YOU HEAR YOUR BABY MAY NOT SURVIVE. WE REMEMBER.
LIFE CHANGES THE INSTANT YOU LEARN YOUR UNBORN BABY HAS A FETAL SYNDROME. WE HAVE RESOURCES TO HELP.
As a parent-founded non-profit, we are grateful for the support of our Stewardship Circle member institutions.
Your contribution gives hope to families with fetal syndromes.
“We have a unique approach that is a technique first established in Brazil by Dr. Lapa, and we brought it over to the United States. Dr. Quintero and I have put together a fetoscopic treatment that is FDA approved to repair open spina bifida, that is entirely percutaneous (there is no laparotomy and no hysterectomy),” said Dr. Ramen Chmait, Director, Los Angeles Fetal Surgery.
I saw my physician’s name come across my phone screen, and my heart sank. He explained that the ultrasound showed an abnormality, and he predicted a spina bifida diagnosis. I had no idea what that meant, and the rest of the words coming out of his mouth became a blur.
I was so, so terrified. Not for me, but for her. Would she be okay? Would she be in pain? Please just save her! As I wheeled away from my family, the only feeling I remember is fear. In the OR, faces I didn’t know surrounded me. I was squeezing the hand of a person I’d never met as they prepped me for the emergency C-section.