Curing Spina Bifida

Growing up in the 1960’s, Dr. Diana Farmer’s mother taught Sunday school for disabled children where she first met children who had spina bifida.
“It was a really crummy disease,” Farmer said. Dr. Farmer is now leading innovative research, which holds promise of saving lives and lifetimes.

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VIDEO: Fetal Surgery to Treat Paralysis Associated with Spina Bifida

In the video she discusses the improvements that resulted from the initial fetal surgeries, including a reduction in the need for shunts.  She now believes that with the latest breakthroughs involving fetal surgery and stem cells that the paralysis associated with spina bifida will be cured in her lifetime.

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Everett’s Update: Flourishing After Fetoscopic Surgery

Most mothers would probably tell their child to sit down and stop standing on the chair in the middle of their family photography session. But when you’re told your son will never walk and he mischievously climbs onto a chair with no help and stands there, posing for the camera … well, you let him do it.

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When You Need To Start Baby Proofing

Your question should not be whether or not your child will find hazards in the home, but how soon and where will they find them. 2,700 children die from preventable injuries each year, and the majority of preventable injuries occur in the home. 120,000 children are permanently disabled from these preventable injuries. Learn the habits you should adopt to keep your children safe.

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What a Difference a Year Can Make

This time last year, I was taking a pregnancy test. Today, I’m the mother of a healthy four month-old little boy who loves to smile and kick his legs like crazy.

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Preeclampsia and How It Snuck Into My Pregnancy

After a dangerous experience, mom Paula Yost Schupp encourages all pregnant women to be familiar with the signs of preeclampsia, even if they, like her, seem to have no initial risk factors. She tells her story of how she was diagnosed, and what happened as a result.

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Sawyer Strong: Proof They are Stronger Than Their Stories

By: Heather Mariano At 18 weeks pregnant, we had prayed to become parents for over a year and half before finding out that In Vitro Fertilization was our only hope at parenthood. With our first round of fertility treatment a success, our only prayer was for this child...

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The Happiest Little Baby: Chase’s CDH Survivor Story

Chase Juergens came out blue. His mother, Alicia, had a caesarean section, and the nurses said that wasn’t unusual. Sometimes c-section babies take a little longer to catch their breath. They took him to the nursery for oxygen. Her husband, Michael, went with.

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Exercise During Pregnancy: Do’s and Don’t’s

By Maureen Pray, NCCPT Certified Personal Trainer Exercising and staying active while pregnant is one of the best things you can do for you and your baby during your pregnancy. If you have a normal, healthy pregnancy and have been cleared by your health care...

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Connexions Magazine 2018 is Live

Fetal Health Foundation Connexions magazine for 2018 has just been published online. The annual issue includes survivor photos, news on the latest grants, stories from families who have experiences fetal syndromes, and why you should be picky when choosing an OB.

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Fetal Health Foundation Awards $50,000 Research Grant to Further Study Life-Threatening Fetal Lung Complication

The recipient of the 2017 Brianna Marie Memorial Research Grant, awarded annually by the Fetal Health Foundation (FHF), is a team led by Dr. Ali Gholipour of Boston Children’s Hospital and Harvard Medical School. The group’s focus will be on improved imaging for the prenatal prognosis of incomplete development of the lungs, a life-threatening complication that is associated with several fetal syndromes.

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New Technology for TRAP Syndrome Treatment

One unique opportunity I have as a co-founder of the Fetal Health Foundation is the opportunity to be in touch with doctors who are making great strides in fetal medicine. Parents come to us to help find the newest treatment options, and hope for their unborn babies....

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