PTSD and the NICU: When the Feelings Linger

PTSD and the NICU: When the Feelings Linger

9 years after our 100-day stay at the NICU, I was suddenly paralyzed by PTSD. Every horrible feeling of fear, anxiety, despair, and anger came flooding back all at once, as a sucker punch to the gut. Emotional scars I thought long healed were bleeding again, as I hurt for my friend and for my own experiences.

read more
Dr. Chmait Performs Minimally-Invasive Fetoscopic Surgery for Spina Bifida

Dr. Chmait Performs Minimally-Invasive Fetoscopic Surgery for Spina Bifida

“We have a unique approach that is a technique first established in Brazil by Dr. Lapa, and we brought it over to the United States. Dr. Quintero and I have put together a fetoscopic treatment that is FDA approved to repair open spina bifida, that is entirely percutaneous (there is no laparotomy and no hysterectomy),” said Dr. Ramen Chmait, Director, Los Angeles Fetal Surgery.

read more
The Best Possible Chance at a Fantastic Life

The Best Possible Chance at a Fantastic Life

I saw my physician’s name come across my phone screen, and my heart sank. He explained that the ultrasound showed an abnormality, and he predicted a spina bifida diagnosis. I had no idea what that meant, and the rest of the words coming out of his mouth became a blur.

read more
Noelle’s Light

Noelle’s Light

I was so, so terrified. Not for me, but for her. Would she be okay? Would she be in pain? Please just save her! As I wheeled away from my family, the only feeling I remember is fear. In the OR, faces I didn’t know surrounded me. I was squeezing the hand of a person I’d never met as they prepped me for the emergency C-section.

read more
Spina Bifida Research at UC Davis Provides Hope

Spina Bifida Research at UC Davis Provides Hope

Spina bifida, which literally means “cleft or split spine,” is the most common permanently disabling birth defect in the United States. According to the Centers for Disease Control and Prevention, about 1,645 babies are born in the U.S. with spina bifida each year.

read more
Eli’s Story: Finding a Miracle at the End of a Diagnosis

Eli’s Story: Finding a Miracle at the End of a Diagnosis

“There’s a major problem with your pregnancy.” Are words no expecting parents anticipate hearing. At our routine twenty-week ultrasound, the ultrasound technician got the doctor, and we heard the words that would forever change our lives. “The bladder isn’t releasing urine” and “the amniotic fluid level is dangerously low.”

read more
Babywearing and the Impact It Has on the Bond Between Baby and Caretaker

Babywearing and the Impact It Has on the Bond Between Baby and Caretaker

Kangaroo care (KC, sometimes referred to as “skin-to-skin”) is the most optimal way to promote close contact and can be done by placing your diapered (undressed) baby on your bare chest. This seemingly insignificant practice will actually promote a strong and healthy relationship between caregiver and baby while helping baby thrive exponentially.

read more
Encouraging an Early Love of Real Food

Encouraging an Early Love of Real Food

By 15 months, babies eat 6½ teaspoons of added sugars per day, mainly from fruit drinks, soda, cookies, sweetened yogurt and ready-eat-cereals, which are introduced into the diet as early as 9 months. What it means: To put that into perspective, an 8-ounce cup of cola has about 6 ½ teaspoons of sugar. So, babies are eating as much sugar in a day as what you’ll find in an entire cup of soda!

read more
Curing Spina Bifida

Curing Spina Bifida

Growing up in the 1960’s, Dr. Diana Farmer’s mother taught Sunday school for disabled children where she first met children who had spina bifida.
“It was a really crummy disease,” Farmer said. Dr. Farmer is now leading innovative research, which holds promise of saving lives and lifetimes.

read more
VIDEO: Fetal Surgery to Treat Paralysis Associated with Spina Bifida

VIDEO: Fetal Surgery to Treat Paralysis Associated with Spina Bifida

In the video she discusses the improvements that resulted from the initial fetal surgeries, including a reduction in the need for shunts.  She now believes that with the latest breakthroughs involving fetal surgery and stem cells that the paralysis associated with spina bifida will be cured in her lifetime.

read more
Everett’s Update: Flourishing After Fetoscopic Surgery

Everett’s Update: Flourishing After Fetoscopic Surgery

Most mothers would probably tell their child to sit down and stop standing on the chair in the middle of their family photography session. But when you’re told your son will never walk and he mischievously climbs onto a chair with no help and stands there, posing for the camera … well, you let him do it.

read more
When You Need To Start Baby Proofing

When You Need To Start Baby Proofing

Your question should not be whether or not your child will find hazards in the home, but how soon and where will they find them. 2,700 children die from preventable injuries each year, and the majority of preventable injuries occur in the home. 120,000 children are permanently disabled from these preventable injuries. Learn the habits you should adopt to keep your children safe.

read more
What a Difference a Year Can Make

What a Difference a Year Can Make

This time last year, I was taking a pregnancy test. Today, I’m the mother of a healthy four month-old little boy who loves to smile and kick his legs like crazy.

read more
Preeclampsia and How It Snuck Into My Pregnancy

Preeclampsia and How It Snuck Into My Pregnancy

After a dangerous experience, mom Paula Yost Schupp encourages all pregnant women to be familiar with the signs of preeclampsia, even if they, like her, seem to have no initial risk factors. She tells her story of how she was diagnosed, and what happened as a result.

read more
Sawyer Strong: Proof They are Stronger Than Their Stories

Sawyer Strong: Proof They are Stronger Than Their Stories

By: Heather Mariano At 18 weeks pregnant, we had prayed to become parents for over a year and half before finding out that In Vitro Fertilization was our only hope at parenthood. With our first round of fertility treatment a success, our only prayer was for this child...

read more
The Happiest Little Baby: Chase’s CDH Survivor Story

The Happiest Little Baby: Chase’s CDH Survivor Story

Chase Juergens came out blue. His mother, Alicia, had a caesarean section, and the nurses said that wasn’t unusual. Sometimes c-section babies take a little longer to catch their breath. They took him to the nursery for oxygen. Her husband, Michael, went with.

read more
Exercise During Pregnancy: Do’s and Don’t’s

Exercise During Pregnancy: Do’s and Don’t’s

By Maureen Pray, NCCPT Certified Personal Trainer Exercising and staying active while pregnant is one of the best things you can do for you and your baby during your pregnancy. If you have a normal, healthy pregnancy and have been cleared by your health care...

read more