COVID-19 & Pregnancy: UPDATED Resources for Expectant and New Parents
Pregnancy and life with a newborn during the COVID-19 pandemic is frightening. We’ve asked members of our medical advisory board to continue to contribute the most relevant and up-to-date resources that they find as the situation evolves. We’ll continue to update this post as new information is available.
New Fetal Surgery Treatment for Congenital Diaphragmatic Hernia
Fetal Health Foundation Medical Advisory Board member Dr. Ahmet Baschat and 2015 Recipient of the Brianna Marie Memorial Research grant Dr. Jena Miller are co-authors of a new Johns Hopkins Center for Fetal Therapy study that gives hope to families experiencing a diagnosis of fetal congenital diaphragmatic hernia.
Lucy’s sacrococcygeal teratoma (SCT) story
Lucy’s tumor was Type 3, both internal and external, and much larger than her doctors considered operable. It was also mostly solid, which meant it required a blood supply, causing the heart to work harder to supply blood to both the baby and the tumor.
Best Apps for First-Time Parents
While we tend to use our phones as entertainment devices more often than not, smartphones are also full of information and tools for new parents. Whether you want to track your baby’s development in utero, log some of the less glamorous aspects of parenthood after birth, or just snap photos of your precious new addition, you can do it all with the help of your phone.
2019 Fetal Health Foundation Impact Report
Your support made a real difference to young families facing a fetal syndrome diagnosis. Read about the impact that the Fetal Health Foundation made in 2019. Download the report PDF and share!
Daddy’s Diet Matters Too: How What Men Eat and Drink Affects Fetal Health
Until more recently, men’s diets and their effects on fetal health have never been taken into consideration. Dads, it may be time to hold off on that loaded cheeseburger and side of chili cheese fries. Here’s a look at why.
UC San Francisco Team Named Winner of Brianna Marie Memorial Research Grant for a Second Time
The recipient of this year’s Brianna Marie Memorial Research Grant goes for a second time to Dr. Teresa Sparks and team at the University of California, San Francisco to further support the completion of your research project titled “Non-Immune Hydrops Fetalis: Toward a Precision-Based Approach.”
Foods to Avoid When Pregnant
Whether it’s your first or fifth pregnancy, this is a special time.
It is crucial to carefully consider what you are eating and make sure you are on a healthy balanced diet throughout your pregnancy.
While you may have to cut out some foods for nine months, some are okay in small amounts.
PTSD and the NICU: When the Feelings Linger
9 years after our 100-day stay at the NICU, I was suddenly paralyzed by PTSD. Every horrible feeling of fear, anxiety, despair, and anger came flooding back all at once, as a sucker punch to the gut. Emotional scars I thought long healed were bleeding again, as I hurt for my friend and for my own experiences.
Noelle’s Light
I was so, so terrified. Not for me, but for her. Would she be okay? Would she be in pain? Please just save her! As I wheeled away from my family, the only feeling I remember is fear. In the OR, faces I didn’t know surrounded me. I was squeezing the hand of a person I’d never met as they prepped me for the emergency C-section.
Eli’s Story: Finding a Miracle at the End of a Diagnosis
“There’s a major problem with your pregnancy.” Are words no expecting parents anticipate hearing. At our routine twenty-week ultrasound, the ultrasound technician got the doctor, and we heard the words that would forever change our lives. “The bladder isn’t releasing urine” and “the amniotic fluid level is dangerously low.”
Babywearing and the Impact It Has on the Bond Between Baby and Caretaker
Kangaroo care (KC, sometimes referred to as “skin-to-skin”) is the most optimal way to promote close contact and can be done by placing your diapered (undressed) baby on your bare chest. This seemingly insignificant practice will actually promote a strong and healthy relationship between caregiver and baby while helping baby thrive exponentially.
Mother’s Mental Health: Caring for Yourself After a Difficult Pregnancy Diagnosis
By: Kylee Bennett Nearly 120,000 infants are born with congenital defects each year, and they don't always go on to live happy lives. If you’ve received a difficult fetal syndrome diagnosis, you’re certainly not alone. During this challenging time, it can be easy to...
Curing Spina Bifida
Growing up in the 1960’s, Dr. Diana Farmer’s mother taught Sunday school for disabled children where she first met children who had spina bifida.
“It was a really crummy disease,” Farmer said. Dr. Farmer is now leading innovative research, which holds promise of saving lives and lifetimes.
Everett’s Update: Flourishing After Fetoscopic Surgery
Most mothers would probably tell their child to sit down and stop standing on the chair in the middle of their family photography session. But when you’re told your son will never walk and he mischievously climbs onto a chair with no help and stands there, posing for the camera … well, you let him do it.
When You Need To Start Baby Proofing
Your question should not be whether or not your child will find hazards in the home, but how soon and where will they find them. 2,700 children die from preventable injuries each year, and the majority of preventable injuries occur in the home. 120,000 children are permanently disabled from these preventable injuries. Learn the habits you should adopt to keep your children safe.
Research Grant Awardee: Understanding the Underlying Causes of Hydrops
The Fetal Health Foundation Awarded the 2018 Research grant to Dr. Teresa Sparks and team at the University of California, San Francisco. They are working to understand the underlying causes of Hydrops.
A Magazine for the Fetal Health Community
Our 4th annual digital issue of Connexion features resources, articles, and photos of children who are thriving after fetal syndrome diagnoses.
Three Reasons it’s OK to be Picky When Selecting Your OB/GYN
After delivering baby number four, experiencing a twin birth, a water birth, and a C-section, I want expecting mothers to know what I didn’t during my first pregnancy: it’s OK to be picky when selecting your OB/GYN!
Running With Your Children: The Best Life teacher
Fetal Health Foundation Founders Lonnie and Michelle Somers recently ran the Disney Half Marathon with their twin daughters and wrote about what the family learned through the training and race experience.
Fetal Health Foundation Awards $50,000 Research Grant to Further Study Life-Threatening Fetal Lung Complication
The recipient of the 2017 Brianna Marie Memorial Research Grant, awarded annually by the Fetal Health Foundation (FHF), is a team led by Dr. Ali Gholipour of Boston Children’s Hospital and Harvard Medical School. The group’s focus will be on improved imaging for the prenatal prognosis of incomplete development of the lungs, a life-threatening complication that is associated with several fetal syndromes.
Twin Teens Share the Message of Hope After Beating the Odds for Survival
November 12th Great Candy Run Benefits the Fetal Health Foundation Denver, Colo. (November 2, 2017) – Being the face on an organization is a big responsibility for anyone, but it's one that 14-year-old twins Ashley and Aspen Somers have accepted gladly since they...
Family of Triplets Honor Angel Sister at The Great Candy Run Minneapolis
Based on blood levels, the parents were told they were probably expecting one or two babies. However, an ultrasound at six and a half weeks showed one sac with one baby and a second sac with identical triplets. Read their TTTS story.
Meet The Sweet People – 2017 Great Candy Run Ambassador Team
We’re proud to announce that we have the SWEETEST people helping us spread the word about The Great Candy Run. The 5k family fun events takes place this year in Minneapolis on October 14th, in Denver on November 12th, and everywhere else world wide November 30- January 1, 2018.
One Family’s TTTS Nightmare Journey Stretching from Hong Kong to Kentucky
It’s not surprising that Mary Elliott is looking forward to spending a special Mother’s Day with her nine-month-old twin sons, Owen and Stevie. A little over a year ago, the first-time mom was struggling with the fact that her unborn babies might not survive. Mary and...