How to Obtain Social Security Disability Benefits for a Child with a Fetal Syndrome
We're often asked by parents about resources that are available to families. In a guest post, Bryan MacMurray shares information on how to obtain Social Security Disability Benefits for a child with a disability related to a fetal syndrome. Applying on Behalf...
Persistence Pays … From TTTS Survivor to Discovery Girl Role Model
12 year-old Aspen Somers contributes her first blog post to the Fetal Health Foundation.
Honoring Me on Mother’s Day In Celebration of My Angels
We are saddened by the loss of Ella and Grace to twin-to-twin transfusion syndrome. Their mother, Jennifer, wrote this piece on Mother's Day, and she's allowing us to share it here. I am a mother. I have thought all morning about what today means to me and if I even...
10 Ways To Help a Friend During A Difficult Pregnancy
When a friend’s baby is diagnosed with a fetal syndrome or she is having a difficult pregnancy for other reasons, her family’s life turns upside down. It is often hard to know what to say - or how to help. Several of FHF's board members have experienced fetal...
My Letter to The Silent Grievers
Dalia EL-Prince served as the Executive Director of the Fetal Health Foundation. Recently I joined the Fetal Health Foundation to offer hope to unborn babies and help families who are faced with the loss of their child during pregnancy or after delivery. Though I...
Zika Virus: Parents’ Top 10 Questions
Answers to these questions and more from the Fetal Health Foundation and Children’s Hospital Colorado. What is the Zika virus? How do you get the Zika virus? If a pregnant woman has traveled to an affected area and is concerned about the Zika virus, what should she do? Should she get tested, and if so, where is the best place to start?
Zika Virus 101 Infographic
The Zika Virus and Microcephaly are in the news recently. Many of us wonder why we haven't heard of it before, and what we can do to protect ourselves and our family. One of our readers, Emily Maynard, put together an easy-to-understand infographic about the virus....
Spreading Sweetness: The Great Candy Run Expands to Three Cities
With The Great Candy Run 5k races series taking place in Minneapolis, Seattle, and Denver, 2016 is shaping up to be the sweetest year ever for our Foundation’s flagship benefit.
Take a Peek at Our New Connexions Magazine!
We're thrilled to announce our new magazine! Connexions is published annually by the Fetal Health Foundation in order to bring together the many realms surrounding a fetal syndrome diagnosis. The magazine connects doctors and fetal centers, updating them on the latest...
10 Things To Do After a Fetal Diagnosis
“What should we do now?” parents wonder. Fetal Health Founder Lonnie Somers shares what he’s learned about the time after a fetal diagnosis.
From Colorado to the World: HOPE For Fetal Conditions
Imagine a doctor saying, "Your baby may not survive." Time is short. You search for information, and when you find it, you can't be sure it is reliable. That was our situation 13 years ago. I remember all too well searching for hope, information, and support for...
Aran’s Story
Aran Hissam is a new member of the Fetal Health Foundation Board. Before joining our organization, she channeled her experience with a fetal syndrome, non-immune fetal hydrops, to her work with the Brianna Marie Foundation. The Fetal Health Foundation's Research...
Michelle’s Miles Diary | A Welcome Partner for 2016’s First Run
Last November I challenged friends, family and really all Fetal Health Foundation supporters to make a year-end donation that would ultimately serve as a challenge to me to run one mile for every ten dollars donated. I had hoped to enter into 2016 with a monumental...
UPDATE: Zika Virus and Pregnancy | Information for Patients
The Fetal Health Foundation continues to receive inquiries about the Zika virus and a possible connection to a fetal condition, microcephaly. Dr. Anna G. Euser is coordinating the Zika virus efforts for Maternal-Fetal Medicine Doctors at the Colorado Institute for...
Talitha’s Story
After giving birth to twins who survived Twin-to-Twin Transfusion Syndrome, Talitha McGuinness joined with Lonnie and Michelle Somers to help further efforts to save babies with fetal syndromes. We asked her to share her story. Our twin-to-twin transfusion syndrome...
After Losing a Baby, Does Life Get Better?
Fetal Health Foundation's Executive Director, Dalia EL-Prince shares her story of coping after the loss of her baby in 2003. "Does it get better?" Today I was asked, "Does it get better after the loss of your baby? Does it?" It's a question I often struggle to answer....
A Resource for Families: Miracle Flights
The Fetal Health Foundation is pleased to spread the word about Miracle Flights. This terrific nonprofit organization also dedicated to families offers resources to families for whom travel for medical reasons can make a miracle possible. We're happy to have them as...
Twin to Twin Transfusion Syndrome Video
The team at Fetal Center at Children's Memorial Hermann Hospital has put together an informative video detailing the condition known as Twin To Twin Transfusion Syndrome, and asked that we share it with you. Twin Twin Transfusion Syndrome Video By building awareness...
Ten Sweet Reasons to Be Part of the Great Candy Run
The Great Candy Run comes to Minneapolis October 14th, and Denver November 12, 2017. If the idea of a candy-themed race isn't temptation enough for you, here are ten reasons to join us for the Fetal Health Foundation's flagship benefit event. 10. Kid will love...
Fetal Health Foundation on Colorado and Company, KUSA Channel 9
Lonnie Somers and Mary Beth Martin talk about how the Great Candy Run benefits the Fetal Health Foundation. To join us in fighting for the lives of babies diagnosed with fetal syndromes, donate now.
A Note from Our Founder
Fetal syndromes affect over 800,000 babies each year in the U.S. Sadly we lose over 200 babies a day. Everything from TTTS (Twin-to-Twin Transfusion Syndrome) to issues causing premature birth and then death are affecting our unborn children. We have a lot of work...
A Needle-Delivered Polymer for Spina Bifida| 2015 Stowell Grant Winner
The Fetal Health Foundation awarded the 2015 Nathanael and Gabriel Stowell Grant to Dr. Ahmed “Rony” Marwan at the University of Colorado to further his work in improving outcomes for babies diagnosed in utero with Spina Bifida. Spina Bifida occurs when an area of the...