I knew nothing about TTTS at that point. My doctors never discussed it with me. Even as a sonographer, I didn’t know how to tell if it was happening.

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A Sonographer Shares Her Personal Story

Let me start by saying that I’m a Sonographer. I knew I was pregnant and knew it was twins very early – at around 5 and a half weeks. I knew nothing about TTTS at that point. My doctors never discussed it with me. Even as a sonographer I didn’t know how to tell if it was happening.

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Aran’s Story

Aran Hissam is a new member of the Fetal Health Foundation Board.  Before joining our organization, she channeled her experience with a fetal syndrome, non-immune fetal hydrops, to her work with the Brianna Marie Foundation.  We asked her to share her story. In August...

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Talitha’s Story

After giving birth to twins who survived Twin-to-Twin Transfusion Syndrome, Talitha McGuinness joined with Lonnie and Michelle Somers to help further efforts to save babies with fetal syndromes.  We asked her to share her story. Our twin-to-twin transfusion syndrome...

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Our TTTS/ TRAP story…and 7 yrs later.

The news of twins was surreal. My husband and I were overjoyed but that joy was short lived.

Our doctor detected an abnormality on a ultrasound when I was only 10 weeks along. Not sure what it was, she had me come back the next week for a better look. I was quickly referred to a fetal specialist who gave us a diagnosis of TTTS and referred us to Dr. Ruben Quintero.

Our official diagnosis: TTTS with and an Acardiac Twin

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At our 18-week ultrasound it was discovered that we had an acardiac twin.

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Magical Julia

I just want to share my story about my daughter, Julia, who is the miracle who resulted from my TRAP pregnancy. In the fall of 2009, I suffered two miscarriages. The following January, I became pregnant with twins naturally. At about nine weeks, we were told one of...

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