I knew nothing about TTTS at that point. My doctors never discussed it with me. Even as a sonographer, I didn’t know how to tell if it was happening.

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A Sonographer Shares Her Personal Story

Let me start by saying that I’m a Sonographer. I knew I was pregnant and knew it was twins very early – at around 5 and a half weeks. I knew nothing about TTTS at that point. My doctors never discussed it with me. Even as a sonographer I didn’t know how to tell if it was happening.

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Honoring Me on Mother’s Day In Celebration of My Angels

We are saddened by the loss of Ella and Grace to twin-to-twin transfusion syndrome.  Their mother, Jennifer, wrote this piece on Mother’s Day, and she’s allowing us to share it here. I am a mother. I have thought all morning about what today means to me...

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The Redmond Family Story

My husband and I found out we were pregnant over Memorial Day weekend. It was still really early, but I was having some side pain and my sister had an ectopic pregnancy once so I wanted to get checked out. We went in for our first OB appointment with feelings of...

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Matthew, a LUTO Fighter and Survivor

My son is Matthew. He was diagnosed with LUTO at week 17 of our pregnancy. It was a difficult pregnancy because he had a twin sister with him in there. By the time we got to our MFM, his kidneys were very damaged, his bladder was full and was thick- walled, his chest...

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Aran’s Story

Aran Hissam is a new member of the Fetal Health Foundation Board.  Before joining our organization, she channeled her experience with a fetal syndrome, non-immune fetal hydrops, to her work with the Brianna Marie Foundation.  We asked her to share her story. In August...

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Talitha’s Story

After giving birth to twins who survived Twin-to-Twin Transfusion Syndrome, Talitha McGuinness joined with Lonnie and Michelle Somers to help further efforts to save babies with fetal syndromes.  We asked her to share her story. Our twin-to-twin transfusion syndrome...

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After Losing a Baby, Does Life Get Better?

Fetal Health Foundation’s Executive Director, Dalia EL-Prince shares her story of coping after the loss of her baby in 2003. “Does it get better?” Today I was asked, “Does it get better after the loss of your baby? Does it?” It’s a...

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Our TTTS/ TRAP story…and 7 yrs later.

The news of twins was surreal. My husband and I were overjoyed but that joy was short lived.

Our doctor detected an abnormality on a ultrasound when I was only 10 weeks along. Not sure what it was, she had me come back the next week for a better look. I was quickly referred to a fetal specialist who gave us a diagnosis of TTTS and referred us to Dr. Ruben Quintero.

Our official diagnosis: TTTS with and an Acardiac Twin

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At our 18-week ultrasound it was discovered that we had an acardiac twin.

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Magical Julia

I just want to share my story about my daughter, Julia, who is the miracle who resulted from my TRAP pregnancy. In the fall of 2009, I suffered two miscarriages. The following January, I became pregnant with twins naturally. At about nine weeks, we were told one of...

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We have never given up hope,
even when it seemed impossible!

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A complicated triplet pregnancy

Email: andreapoindexter@gmail.com Story: My fiance and I found out at 7 weeks we would be having triplets! Talk about shocked: we were told I couldn’t have any babies 2...

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