I knew nothing about TTTS at that point. My doctors never discussed it with me. Even as a sonographer, I didn’t know how to tell if it was happening.

Read more

A Sonographer Shares Her Personal Story

Let me start by saying that I’m a Sonographer. I knew I was pregnant and knew it was twins very early – at around 5 and a half weeks. I knew nothing about TTTS at that point. My doctors never discussed it with me. Even as a sonographer I didn’t know how to tell if it was happening.

read more

Honoring Me on Mother’s Day In Celebration of My Angels

We are saddened by the loss of Ella and Grace to twin-to-twin transfusion syndrome.  Their mother, Jennifer, wrote this piece on Mother's Day, and she's allowing us to share it here. I am a mother. I have thought all morning about what today means to me and if I even...

read more

The Redmond Family Story

My husband and I found out we were pregnant over Memorial Day weekend. It was still really early, but I was having some side pain and my sister had an ectopic pregnancy once so I wanted to get checked out. We went in for our first OB appointment with feelings of...

read more

Matthew, a LUTO Fighter and Survivor

My son is Matthew. He was diagnosed with LUTO at week 17 of our pregnancy. It was a difficult pregnancy because he had a twin sister with him in there. By the time we got to our MFM, his kidneys were very damaged, his bladder was full and was thick- walled, his chest...

read more

Aran’s Story

Aran Hissam is a new member of the Fetal Health Foundation Board.  Before joining our organization, she channeled her experience with a fetal syndrome, non-immune fetal hydrops, to her work with the Brianna Marie Foundation.  The Fetal Health Foundation's Research...

read more

Talitha’s Story

After giving birth to twins who survived Twin-to-Twin Transfusion Syndrome, Talitha McGuinness joined with Lonnie and Michelle Somers to help further efforts to save babies with fetal syndromes.  We asked her to share her story. Our twin-to-twin transfusion syndrome...

read more

After Losing a Baby, Does Life Get Better?

Fetal Health Foundation's Executive Director, Dalia EL-Prince shares her story of coping after the loss of her baby in 2003. "Does it get better?" Today I was asked, "Does it get better after the loss of your baby? Does it?" It's a question I often struggle to answer....

read more

Our TTTS/ TRAP story…and 7 yrs later.

The news of twins was surreal. My husband and I were overjoyed but that joy was short lived.

Our doctor detected an abnormality on a ultrasound when I was only 10 weeks along. Not sure what it was, she had me come back the next week for a better look. I was quickly referred to a fetal specialist who gave us a diagnosis of TTTS and referred us to Dr. Ruben Quintero.

Our official diagnosis: TTTS with and an Acardiac Twin

read more