BOTTLE, BREAST AND

OTHER INFANT FEEDING

Academy of Breastfeeding Medicine empowers health professionals with high-quality research and innovative solutions to support and nurture families through breastfeeding.

Fed is Best provides families and health professionals with the latest scientific research, education, and resources to practice safe infant feeding with human milk, formula, or a combination.

La Leche League International provides breastfeeding support, education, and mother-to-mother encouragement to help families reach their feeding goals.

KellyMom shares evidence-based breastfeeding, infant feeding, and parenting topics created by an International Board-Certified Lactation Consultant.

HealthyChildren.org is a website powered by the American Academy of Pediatrics that features a catalog of articles on nutrition tips and facts for children of all ages.

Help with Feeding is an infant feeding and wellness service that offers printable science-based free resources to nourish your child and yourself through all stages of eating.

Human Milk Banking Association of North America sets standards for nonprofit milk banks and helps families locate accredited donor milk banks across the US and Canada.

CLINICAL TRIALS

Phase 3 AZALEA Trial is testing nipocalimab for pregnancies at risk of severe HDFN, where maternal antibodies attack the baby’s red blood cells after a previous affected pregnancy.

FREESIA – 3 is evaluating nipocalimab for pregnancies at risk of FNAIT, where maternal antibodies attack the baby’s platelets and can lead to serious bleeding before or around birth.

CuRe Trial is a landmark clinical trial at UC Davis Health, known formally as the “CuRe Trial: Cellular Therapy for In Utero Repair of Myelomeningocele.” It is the world’s first spina bifida treatment combining fetal surgery with stem cells. 

Clinical Trials.gov is a website and database of clinical research studies that shares study details with the public, researchers, and health care professionals.

CenterWatch is a leading source of trusted information for the global clinical research community, connecting patients, advocates, and professionals through a centralized database of thousands of ongoing clinical trials worldwide

CONCEPTION AND FAMILY PLANNING

Fertility Out Loud supports diverse family-building needs through education resources and certified fertility coaches.

Reproductive Facts.org offers comprehensive resources to help you make informed decisions about your reproductive health, fertility, contraception, and pregnancy.

DADS

DadCare introduces a new standard of care called BFIP: Bringing the Father into Pregnancy to strengthen families and address the impact of parenthood on dads.

PSI Help for Dads gives dads the help they need in dealing with perinatal mental health disorders including peer support and a confidential help line.

EQUITABLE ACCESS TO CARE

Black Mamas Matter Alliance advocates for birthing people through a Black women-led alliance, using human rights–based policy, community-driven research, holistic care, and cultural change to improve maternal health outcomes.

Every Mother Counts promoted safe, respectful, and equitable pregnancy, childbirth, and postpartum care—founded by Christy Turlington Burns after a childbirth complication and fueled by preventable maternal deaths.

Health Resources & Services Administration helps patients locate free or low-cost health services and Healthy Start sites across the country.

Healthcare.gov provides information on insurance options, quality care and information on new healthcare reform.

Healthy Mothers, Healthy Babies Coalition helps close the gaps in care before, during, and after pregnancy through research, partnerships, and policy work.

National Association of Insurance Commissioners  provides information and contacts on state health insurance programs.

National Birth Equity Collaborative strives to combat the increasing rates of infant mortality and maternal mortality within Black, Brown & Indigenous communities.

Patient Advocate Foundation offers patients free mediation assistance with insurance companies to assure access to care, maintenance of employment, and preservation of financial stability.

EMPLOYMENT | LEGAL RIGHTS | ACCOMMODATIONS

Americans with Disabilities Act (ADA) provides guidance on workplace accommodations for qualifying pregnancy-related conditions, as well as legal protections for children born with disabilities and their families.

Employee Assistance Program (EAP) Many employers offer EAPs, which provide free and confidential counseling, referrals, and support for employees and families navigating stress, mental health concerns, pregnancy complications, loss, or other major life events. Check with your employer.

Equal Employment Opportunities Commission protects employees from pregnancy discrimination and provides information about workplace rights and protections related to pregnancy, childbirth, pregnancy-related medical conditions, and reasonable accommodations. 

Job Accommodation Network supports families with guidance on workplace accommodations for pregnancy-related limitations.

Pregnancy Discrimination Act (PDA) prevents discrimination based on pregnancy, childbirth, or related medical conditions and ensures that pregnant employees are treated as equals in the workplace.

Pregnant Workers Fairness Act (PWFA) requires many employers to provide reasonable accommodation for pregnancy, childbirth, and related medical conditions

Family and Medical Leave Ace (FMLA) provides eligible employees with job-protected, unpaid leave for certain family and medical reasons, including pregnancy, childbirth, recovery, and caring for a newborn or family member with a serious health condition.

FETAL SYNDROMES AND HIGH-RISK PREGNANCY

Allo Hope Foundation empowers parents and equips providers to create better outcomes for babies with Hemolytic Disease of the Fetus and Newborn (HDFN.)

GARD Genetic and Rare Disease Information Center supports the rare disease community with access to reliable and easy-to-understand information through their website and dedicated Information Specialists in their Contact Center

Maternal Alloimmunization Foundation supports families affected by maternal alloimmunization and HDFN by raising awareness, educating patients and providers, and working to improve care for both moms and babies.

The Preeclampsia Foundation works to improve the outcome of hypertensive disorders of pregnancy by educating, supporting, and engaging the community, improving healthcare practices, and accelerating research.

CDH Research International is a global initiative to stop Congenital Diaphragmatic Hernia through research, global awareness, patient education, and advocacy. 

Society for Maternal-Fetal Medicine (SMFM ) offers physician-developed patient education on high-risk pregnancy, fetal conditions, prenatal testing, and fetal therapies.

Spina Bifida Association supports individuals and families affected by spina bifida through education, advocacy, community resources, and connections to care and support services throughout every stage of life.

TAPS Support Group is dedicated to changing the way monochorionic twin pregnancies are diagnosed, handled, and treated, as well as raising the profile of Twin Anemia Polycythemia Sequence.

The Children’s Heart Foundation advances the diagnosis, treatment, and prevention of congenital heart defects by funding the most promising research.

GENETIC TESTING

NIH Genetic Testing guides families through understanding genetic testing, including how testing works, what results may mean, and how genetic information can help families and healthcare providers understand inherited conditions and make informed decisions.

Genetic Support Foundation helps families navigating pregnancy understand genetic testing and screening options while promoting equitable access to accurate, objective genetic information. GSF supports informed decision-making through education, advocacy, and trusted genetic counseling resources.

HEALTHY PREGNANCY

ACOG American College of Obstetricians & Gynecologists delivers reliable, physician-reviewed information on pregnancy, childbirth, prenatal care, and women’s reproductive health.

LGBTQ COMMUNITY

Pregnant Together specializes in LGBTQ+ support through conception, pregnancy, birth, and the postpartum period.

Family Equality supports LBGTQ+ families who want to start families with trusted information on policies and laws that impact their rights and build connections with other LGBTQ+ families.

LODGING

Ronald McDonald House provides lodging, meals, and resources to families who travel for specialized medical care to help them stay close to their care team during treatment at maternal-fetal medicine centers, fetal treatment centers, and children’s hospitals.

Joe’s House connects families traveling for medical care with affordable lodging options near treatment centers, helping reduce the financial and logistical challenges of accessing specialized care away from home.

MULTIPLE PREGNANCY

Multiples of America connects families of multiples with local clubs that offer peer support, education, resources, and community connections from other families sharing similar experiences.

PSI Pregnancy and Postpartum Parents of Multiples offers specialized mental health resources and connections to trained support for parents navigating pregnancy, postpartum challenges, and the emotional demands of raising multiples.

Twins Magazine shares articles, expert advice, and real-life stories created specifically for families of twins, covering pregnancy, birth, parenting, and the unique experiences of life with multiples.

Twins Trust  Offers guidance for families of twins, triplets, and higher-order multiples, advocates for improved multiple-birth care, and supports research and initiatives focused on the health and wellbeing of multiples.

NICU AND PREMATURITY

Hand to Hold provides early intervention mental health support to families before, during, and after a NICU stay in addition to support groups, a peer mentor program, podcasts, and education resources.

Miracle Babies Foundation provides essential services to support NICU families, including transportation assistance, support groups, care packages, diapers, formula, and baby essentials.

PARENTAL MENTAL HEALTH

Carry Me Health supports families navigating fetal diagnoses and complex pregnancies through peer connection, mental health resources, and access to specialized perinatal therapists from diagnosis through postpartum.

Maternal Mental Health Leadership Alliance advocates for awareness, policy change, and improved access to care to address the maternal mental health crisis in the United States and ensure pregnant and postpartum individuals receive needed support.

National Maternal Mental Health Hotline Available 24/7 by call or text, this free and confidential service gives pregnant and postpartum individuals and their loved ones access to trained counselors who understand the challenges of the perinatal period.

PREGNANCY LOSS AND GRIEF SUPPORT

AbunDANCE Somatic Center supports healing after pregnancy and infant loss through grief counseling, somatic practices, and dance movement therapy that help individuals process loss, reconnect with their bodies, and navigate grief in a compassionate, supportive environment.

Briana Marie Foundation honors families affected by fetal diagnoses and loss by raising awareness of fetal conditions, sharing stories of hope, and supporting advances in fetal medicine that may improve outcomes for future families.

Share Pregnancy & Infant Loss Support helps families navigate the grief of pregnancy and infant loss through peer support, resources, remembrance programs, and connections with others who have experienced similar losses.

Healthy Birth Day, Inc. raises awareness about the U.S. stillbirth crisis and works to reduce preventable stillbirths through education, research, and programs such as Count the Kicks, which teaches expectant parents how to monitor fetal movement and advocate for timely care.

Star Legacy Foundation works to prevent stillbirth and improve care for families affected by loss through research, education, advocacy, and bereavement resources.

RTZ HOPE works to break the silence surrounding pregnancy and infant loss by raising awareness, fostering open conversations, and offering support and healing resources to families experiencing loss.

Ending a Wanted Pregnancy supports parents who make the heartbreaking decision to end a wanted pregnancy due to a severe fetal diagnosis through a private community where families can connect with others who have experienced similar losses.

Now I Lay Me Down to Sleep gifts bereaved parents with remembrance portraits to families experiencing the loss of a baby.

Bereaved Parents of the USA offers support, understanding, compassion, and hope to newly bereaved parents, grandparents, and siblings with chapters throughout the country.

Mommies Enduring Neonatal Death (MEND) provides hope and healing for families after pregnancy and infant loss through grief resources, peer support groups, remembrance events, and opportunities to connect with others who have experienced similar losses.

M.I.S.S. Mothers in Sympathy and Support offers families a way to communicate their story through inspirational poetry, articles, and share it with others who are also grieving.

The Compassionate Friends brings together families grieving the loss of a child through local chapters, online communities, and peer-led gatherings where parents, siblings, and grandparents can share their experiences and find understanding from others with similar journeys.

SAFE SLEEP

American SIDS Institute works to reduce the impact of Sudden Infant Death Syndrome (SIDS) through research, education, advocacy, and family resources focused on prevention, awareness, and understanding infant sleep-related risks.

Cribs for Kids promotes infant safe sleep practices by providing education, resources, and safe sleep products to families and communities, helping reduce sleep-related infant deaths and create safer sleep environments for babies.

Charlie’s Kids gives parents, caregivers, and safe-sleep partners life-saving tools to ensure every infant wakes up from every sleep.

First Candle provides safe sleep education, bereavement support, and public health advocacy for parents, caregivers, and healthcare professionals to end Sudden Infant Death Syndrome.

Need Additional Support?
If you don’t see the resources you need here, contact the Fetal Health Foundation. We may be able to connect you with additional support, including travel assistance for eligible families.