Matthew, a LUTO Fighter and Survivor
My son is Matthew. He was diagnosed with LUTO at week 17 of our pregnancy. It was a difficult pregnancy because he had a twin sister with him in there. By the time we got to our MFM, his kidneys were very damaged, his bladder was full and was thick- walled, his chest...
Aran’s Story
Aran Hissam is a member of the Fetal Health Foundation Board. Before joining our organization, she channeled her experience with a fetal syndrome, non-immune fetal hydrops, to her work with the Brianna Marie Foundation. The Fetal Health Foundation’s Research...
Talitha’s Story
After giving birth to twins who survived Twin-to-Twin Transfusion Syndrome, Talitha McGuinness joined with Lonnie and Michelle Somers to help further efforts to save babies with fetal syndromes. We asked her to share her story. Our twin-to-twin transfusion syndrome...
After Losing a Baby, Does Life Get Better?
Fetal Health Foundation’s former Executive Director, Dalia EL-Prince shares her story of coping after the loss of her baby in 2003. “Does it get better?” Today I was asked, “Does it get better after the loss of your baby? Does it?”...
Our TTTS/ TRAP story…and 7 yrs later.
The news of twins was surreal. My husband and I were overjoyed but that joy was short lived.
Our doctor detected an abnormality on a ultrasound when I was only 10 weeks along. Not sure what it was, she had me come back the next week for a better look. I was quickly referred to a fetal specialist who gave us a diagnosis of TTTS and referred us to Dr. Ruben Quintero.
Our official diagnosis: TTTS with and an Acardiac Twin