One year after his kidney transplant, Josiah is thriving—growing stronger, happier, and living his life. Born with fetal renal failure, his journey has been long, but today he’s a joyful, energetic child.

Fetal renal failure (FRF) is a clinical syndrome that has several distinct causes but results in the inability to produce sufficient urine to maintain normal amniotic fluid volume, which is essential for normal fetal lung development. In FRF, the lack of amniotic fluid limits lung development and causes pulmonary hypoplasia, a life-threatening condition where the baby is unable to breathe on their own after birth.

Additional Resources:

Beyond Fetal Renal Failure: Josiah’s Story, One Year Later

Three Things to Know about Treating Fetal Renal Failure

Deciding to Treat Fetal Renal Failure: Information & Support for Families