Meet The Sweet People – 2017 Great Candy Run Ambassador Team
We’re proud to announce that we have the SWEETEST people helping us spread the word about The Great Candy Run. The 5k family fun events takes place this year in Minneapolis on October 14th, in Denver on November 12th, and everywhere else world wide November 30- January 1, 2018.
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One Family’s TTTS Nightmare Journey Stretching from Hong Kong to Kentucky
It’s not surprising that Mary Elliott is looking forward to spending a special Mother’s Day with her nine-month-old twin sons, Owen and Stevie. A little over a year ago, the first-time mom was struggling with the fact that her unborn babies might not survive. Mary and...
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Connexions Spring 2017, a Magazine for the Fetal Health Community
We're thrilled to announce that the second annual issue of Connexions Magazine is now available. Here's some of what you'll find inside the Spring 2017 issue: Questions to ask during a high risk pregnancy How to capture great birth photos One family's story of fetal...
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When Nerves Take Over: What to Expect at Your First Fetal Center Visit
When you have recently received some not so hopeful news about your pregnancy and your unborn child, nerves may have you on edge. Couple that with knowing you’re heading to consult with an unfamiliar maternal/fetal medicine specialist (who may be all the way across...
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What are Doppler Ultrasound Tests?
Many patients ask this question so we asked Dr. Joel Schwartz to give us a better understanding of what a doppler ultrasound is, and what he can observe during this kind of special examination. Beyond the stunning 3-dmensional and 4-dimensional images that grab...
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International Fetal Medicine Centers Join the Fetal Health Foundation
The Fetal Health Foundation is proud to share that seven more international centers have asked to be included in our database. Apollo Centre for Fetal Medicine, New Delhi India Corniche Hospital Fetal Medicine Unit, United Arab Emirates Heart of England, United...
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Talking About Loss: What Families Wish You Knew
Do you have a friend or family member who lost their baby or babies? Do you struggle to know what to say and how to act around them? Many families go through this loss, and we asked them to share what they wish their family and friends knew. 1 - Parents who have lost...
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How Can I Help? Creative Ways to Support the Foundation
“How can I help?” It’s a question we, at the Fetal Health Foundation (FHF), hear frequently. For some, the motivation to help comes because they have experienced a fetal syndrome; others reach out to show support for a friend or family member in the midst of a...
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$50,000 Research Grant Deadline Approaching!
Brianna Marie Memorial Research Grant fund reopened with an increase to $50,000 and a new deadline of September 15th. The mission of the Brianna Marie Memorial Research Grant (managed by the Fetal Health Foundation) is to improve health outcomes for pregnancies and...
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How to Obtain Social Security Disability Benefits for a Child with a Fetal Syndrome
We're often asked by parents about resources that are available to families. In a guest post, Bryan MacMurray shares information on how to obtain Social Security Disability Benefits for a child with a disability related to a fetal syndrome. Applying on Behalf...
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Persistence Pays … From TTTS Survivor to Discovery Girl Role Model
12 year-old Aspen Somers contributes her first blog post to the Fetal Health Foundation.
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Honoring Me on Mother’s Day In Celebration of My Angels
We are saddened by the loss of Ella and Grace to twin-to-twin transfusion syndrome. Their mother, Jennifer, wrote this piece on Mother's Day, and she's allowing us to share it here. I am a mother. I have thought all morning about what today means to me and if I even...
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10 Ways To Help a Friend During A Difficult Pregnancy
When a friend’s baby is diagnosed with a fetal syndrome or she is having a difficult pregnancy for other reasons, her family’s life turns upside down. It is often hard to know what to say - or how to help. Several of FHF's board members have experienced fetal...
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My Letter to The Silent Grievers
Dalia EL-Prince served as the Executive Director of the Fetal Health Foundation. Recently I joined the Fetal Health Foundation to offer hope to unborn babies and help families who are faced with the loss of their child during pregnancy or after delivery. Though I...
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Zika Virus: Parents’ Top 10 Questions
Answers to these questions and more from the Fetal Health Foundation and Children’s Hospital Colorado. What is the Zika virus? How do you get the Zika virus? If a pregnant woman has traveled to an affected area and is concerned about the Zika virus, what should she do? Should she get tested, and if so, where is the best place to start?
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Zika Virus 101 Infographic
The Zika Virus and Microcephaly are in the news recently. Many of us wonder why we haven't heard of it before, and what we can do to protect ourselves and our family. One of our readers, Emily Maynard, put together an easy-to-understand infographic about the virus....
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Spreading Sweetness: The Great Candy Run Expands to Three Cities
With The Great Candy Run 5k races series taking place in Minneapolis, Seattle, and Denver, 2016 is shaping up to be the sweetest year ever for our Foundation’s flagship benefit.
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Take a Peek at Our New Connexions Magazine!
We're thrilled to announce our new magazine! Connexions is published annually by the Fetal Health Foundation in order to bring together the many realms surrounding a fetal syndrome diagnosis. The magazine connects doctors and fetal centers, updating them on the latest...
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10 Things To Do After a Fetal Diagnosis
“What should we do now?” parents wonder. Fetal Health Founder Lonnie Somers shares what he’s learned about the time after a fetal diagnosis.
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From Colorado to the World: HOPE For Fetal Conditions
Imagine a doctor saying, "Your baby may not survive." Time is short. You search for information, and when you find it, you can't be sure it is reliable. That was our situation 13 years ago. I remember all too well searching for hope, information, and support for...
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Aran’s Story
Aran Hissam is a new member of the Fetal Health Foundation Board. Before joining our organization, she channeled her experience with a fetal syndrome, non-immune fetal hydrops, to her work with the Brianna Marie Foundation. The Fetal Health Foundation's Research...
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Michelle’s Miles Diary | A Welcome Partner for 2016’s First Run
Last November I challenged friends, family and really all Fetal Health Foundation supporters to make a year-end donation that would ultimately serve as a challenge to me to run one mile for every ten dollars donated. I had hoped to enter into 2016 with a monumental...
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UPDATE: Zika Virus and Pregnancy | Information for Patients
The Fetal Health Foundation continues to receive inquiries about the Zika virus and a possible connection to a fetal condition, microcephaly. Dr. Anna G. Euser is coordinating the Zika virus efforts for Maternal-Fetal Medicine Doctors at the Colorado Institute for...
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Talitha’s Story
After giving birth to twins who survived Twin-to-Twin Transfusion Syndrome, Talitha McGuinness joined with Lonnie and Michelle Somers to help further efforts to save babies with fetal syndromes. We asked her to share her story. Our twin-to-twin transfusion syndrome...
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After Losing a Baby, Does Life Get Better?
Fetal Health Foundation's Executive Director, Dalia EL-Prince shares her story of coping after the loss of her baby in 2003. "Does it get better?" Today I was asked, "Does it get better after the loss of your baby? Does it?" It's a question I often struggle to answer....
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