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A Family’s Journey with Rare Disease: Molybdenum Cofactor Deficiency Type A

A Family’s Journey with Rare Disease: Molybdenum Cofactor Deficiency Type A

by Erika K Wolf | Dec 20, 2024 | Blogs, Condition, front-page, Molybdenum Cofactor Type A, News, Story, Uncategorized

…was able to receive medication immediately through his umbilical cord. This is the earliest treatment of a baby with MoCD Type A. Watch the amazing story of Ghaith and his…

Baby MJ Battles an Extremely Rare, Strange Heart Defect and Wins

Baby MJ Battles an Extremely Rare, Strange Heart Defect and Wins

by Erika K Wolf | Dec 21, 2024 | Blogs, Condition, Congenital Heart Disease/Defects, front-page, News, Story

…enormous team at Stanford Children’s that did crazy things to give her a chance at a full life.” Read the full story about MJ’s miraculous battle and how she overcame…

The Life-Changing Impact of Mental Health Care in the NICU

The Life-Changing Impact of Mental Health Care in the NICU

by Erika K Wolf | Mar 14, 2025 | Blogs, Condition, Esophageal Atresia with Tracheosphageal Fistula, front-page, News, Story

…journey. For families like Collette and Alex, this holistic care made all the difference and continues to support their healing long after their NICU stay. Read the full story here….

Embracing Imperfection: A Parent’s Journey Raising Children with Disabilities

Embracing Imperfection: A Parent’s Journey Raising Children with Disabilities

by Erika K Wolf | Mar 17, 2025 | Blogs, Condition, front-page, News, Uncategorized

…moments, there were joys to be found, and that messy, imperfect parenting could still be full of love, growth, and unexpected rewards. Read Moira’s story in her own words here….

Newborn Survives Fatal Kidney Diagnosis (Bilateral Renal Agenesis) with Help from Stanford Children’s Medicine

Newborn Survives Fatal Kidney Diagnosis (Bilateral Renal Agenesis) with Help from Stanford Children’s Medicine

by Fetal Health Foundation | Nov 27, 2023 | Blogs, Kidney, Bladder, and Genital Abnormalities, News, Story

…weeks on July 15, 2013. After her birth, Abigail and her mom were quickly transported to Stanford Children’s for care, and her dad followed close behind. Read Abigail’s Story  …

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