Families facing a fetal health diagnosis often find themselves navigating unfamiliar medical terms, urgent decisions, and intense emotional stress, all at once. The Fetal Health Foundation strives to make that journey more informed, connected, and supported. Guided by the voices of parents and strengthened through partnerships with perinatal professionals and advocates, we offer resources designed to meet families where they are.
A Resource You Can Return to at Any Point in the Journey
Whether someone is newly diagnosed, years past their experience, or supporting a loved one, we serve as a steady, credible resource. Here at the Fetal Health Foundation, we not only inform, but empower families to feel less isolated and be better equipped to navigate complex fetal health journeys.
For 20 years, we have been turning hope into possibilities. Here’s how:
1. Trusted, Plain Language Information
Accurate information matters, especially when decisions feel overwhelming. We create and promote resources that translate complex fetal health conditions into clear, accessible language. Content is developed with clinical expertise and informed by lived experience, helping families better understand diagnoses, testing options, and potential care pathways.
2. Family-Centered Support and Connection
No one should feel alone after receiving a fetal diagnosis. We prioritize connection by linking families to community, shared experience, and emotional support. By centering parent voices, we help normalize the uncertainty, emotional toll, and stress that often accompany complex pregnancies.
3. Connecting Families to Fetal Care Centers
When a fetal diagnosis requires specialized care, knowing where to turn can feel overwhelming. Through FHF’s Find A Treatment Center tool, we help families identify fetal care centers and maternal-fetal medicine programs with experience in specific conditions. Families can search by ZIP code and explore individual center websites, making it easier to compare options, understand what each center offers, and find the care that feels like the best fit for their family.
4. Resources for Providers and Care Teams
We recognize that families are best supported when all providers have access to high quality, up-to-date information. We work to bridge gaps between patients, clinicians, and systems of care by offering resources that promote shared understanding and family-centered communication.
5. Advocacy and Awareness for Fetal Health Conditions
Many fetal health conditions remain underrecognized and underresourced. We work to elevate awareness, reduce stigma, and advocate for families whose experiences feel invisible. By telling accurate, compassionate stories, we help shape broader conversations about fetal health.
6. Commitment to Progress Through Research and Collaboration
Improving outcomes for future families requires investment in knowledge and innovation. We support progress by encouraging research, fostering collaboration, and spotlighting advancements in fetal diagnosis and care.
