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Christian: Now an EMT decades after groundbreaking spina bifida surgery

Christian: Now an EMT decades after groundbreaking spina bifida surgery

by Erika K Wolf | Oct 28, 2024 | Blogs, Condition, front-page, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story

Christian was the 14th patient to undergo fetal surgery for myelomeningocele, a severe form of spina bifida, at Children’s Hospital of Philadelphia. He is now a tall, handsome 24-year-old who recently passed his national certification to become an emergency medical technician (EMT).

Tobias, second patient to receive stem cell treatment in utero, thanks to ongoing clinical trial for spina bifida

Tobias, second patient to receive stem cell treatment in utero, thanks to ongoing clinical trial for spina bifida

by Erika K Wolf | Oct 28, 2024 | Blogs, Condition, front-page, Myelomeningocele/Spina Bifida, News, Story

Oregon couple traveled to California for in-utero surgery at nearly 26 weeks gestation to repair the baby’s spina bifida defect. During the operation, doctors placed a stem cell patch on the baby’s small spine. The results are making waves around the world.

Lexi’s story: surpassing all expectations after in-utero surgery for spina bifida

Lexi’s story: surpassing all expectations after in-utero surgery for spina bifida

by Erika K Wolf | Oct 27, 2024 | Blogs, Condition, front-page, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story, Uncategorized

5-minute read

The Badenhop family wasn’t expecting news of spina bifida and were scared and uncertain about their baby’s future. But Nationwide Children’s Hospital’s expert team offered hope — and a successful outcome for baby Lexi.

The impact of fetal surgery for spina bifida and hydrocephalus: a patient’s perspective

The impact of fetal surgery for spina bifida and hydrocephalus: a patient’s perspective

by Erika K Wolf | Oct 26, 2024 | Blogs, Condition, Congenital Diaphragmatic Hernia, front-page, Hydrocephalus/ Ventriculomegaly, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story, Uncategorized

5-minute read

A young mom is faced with life or death decisions soon after learning her son’s diagnosis of spina bifida and hydrocephalus. She tells us her heartwarming story.

UC Davis CuRe trial awarded $15 million to support clinical trial testing stem cell treatment for spina bifida

UC Davis CuRe trial awarded $15 million to support clinical trial testing stem cell treatment for spina bifida

by Erika K Wolf | Oct 21, 2024 | Blogs, Condition, front-page, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story

4-minute read

Researchers at UC Davis Health are continuing to Phase 2 of a clinical trial for in utero surgery that uses stem cells to repair spina bifida defect, offering potential better outcomes.

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What It Was Like For Our Family

Stories of Fetal Diagnosis and Treatment

Fetomaternal Alloimmunization: Alexandra’s Story

Fetoscopic MMC (Spina Bifida) Repair: One Family’s Journey

Spina Bifida Stories

TTTS Stories

Maternal Fetal Medicine and Fetal Syndromes: The Basics for Expectant Parents

Rose’s Prenatal Spina Bifida Story

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Expert Voices

Insight from Professionals

Gastroschisis and the search for better, earlier interventions with Dr. Geoanna Bautista

Q & A with a Trailblazer: Dr. Scott Adzick at CHOP

Dr. Chmait Performs Minimally-Invasive Fetoscopic Surgery for Spina Bifida

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What We Do: Our Annual Impact Report

Renny and Benny’s Story

Our Founders Story: The Somers Family

Learn about our Flagship Fundraiser, The Great Candy Run

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