How Nationwide Children’s is Optimizing Prenatal and Neonatal Care for Infants with Treatable Rare Diseases

How Nationwide Children’s is Optimizing Prenatal and Neonatal Care for Infants with Treatable Rare Diseases

4-minute read

Now that there is ever-growing potential to intervene medically before a child is born, it expands the utility of prenatal testing. Doctors can find ways to intervene earlier to improve outcomes.

Fetoscopic MMC (Spina Bifida) Repair: One Family’s Journey

Fetoscopic MMC (Spina Bifida) Repair: One Family’s Journey

When Katarina’s unborn baby was diagnosed with myelomeningocele (MMC), “It was kind of a shock, but my doctor said the best bet was fetal surgery. He referred me to Colorado right away, and he said we needed to do it as soon as possible,” she says. “That just kind of threw me for a whirlwind, and I have other kids to take care of too. It was a lot to process.”

Considering Fetal Surgery or a Fetal Care Center? What to Keep in Mind

Considering Fetal Surgery or a Fetal Care Center? What to Keep in Mind

Fetal Health Foundation Medical Advisory Board member Dr. Timothy Crombleholme, MD, who leads the Fetal Care Center at Connecticut Children’s, shares six important details to consider when your baby needs fetal intervention not just to survive, but to thrive.

Pioneering Fetal Medicine Center Gathers Thousands for 26th Annual Family Reunion

Pioneering Fetal Medicine Center Gathers Thousands for 26th Annual Family Reunion

The annual reunion brings together a unique community of families who have shared similar struggles. Nearly all the children in attendance had been prenatally diagnosed with a birth defect, such as spina bifida, congenital diaphragmatic hernia, or twin-twin transfusion syndrome, that had potentially devastating outcomes.