Parents who received a genetic diagnosis during pregnancy in the past 2 years are invited to share their experiences in a virtual research interview. The University of South Carolina study explores how a diagnosis may affect parents and families, including experiences of hope, comfort, joy, and other positive emotions.
The Fetal Health Foundation is honored to collaborate with Star Legacy Foundation. Together, we support families impacted by pregnancy loss and complex pregnancy outcomes by advancing education, research, and access to trusted resources. We share a commitment to...
Throughout Fetal Syndrome Awareness Month (FSAM), we've shared stories, information, and resources to help families and communities better understand fetal syndromes and the challenges that can come with a fetal diagnosis. But awareness shouldn't end when the month...
Find trusted pregnancy support resources from 80+ organizations across 16 categories, connecting families with support for a wide range of needs and experiences.
A fetal care center brings together specialists who work collaboratively to evaluate, diagnose, monitor, and treat complex conditions affecting babies during pregnancy and after birth. Learn how to find a center near you or someone you love.
The nurse coordinator is the heart of the fetal care experience. They are the family’s guide, advocate, and trusted ally who helps them manage uncertainty with compassion and confidence. Their role is not just important; it is often life-changing for the parents and the baby alike.
A nurse coordinator is much more than an administrative guide. They are the bridge between the family and the wide range of specialists, therapies, and resources that a fetal center provides. They help ensure that care is coordinated, communication is clear, and the family never feels alone in navigating the journey ahead.