by Fetal Health Foundation | Jun 12, 2019 | Blogs, front-page, Myelomeningocele/Spina Bifida, News, Resource News, Sponsor
Growing up in the 1960’s, Dr. Diana Farmer’s mother taught Sunday school for disabled children where she first met children who had spina bifida.
“It was a really crummy disease,” Farmer said. Dr. Farmer is now leading innovative research, which holds promise of saving lives and lifetimes.
by Fetal Health Foundation | Jun 10, 2019 | front-page, Myelomeningocele/Spina Bifida, News, Resource News, Sponsor
In the video she discusses the improvements that resulted from the initial fetal surgeries, including a reduction in the need for shunts. She now believes that with the latest breakthroughs involving fetal surgery and stem cells that the paralysis associated with spina bifida will be cured in her lifetime.
by Fetal Health Foundation | Oct 1, 2018 | front-page, News, Resource News, Story
When my wife and I received the news that our baby girls had Twin to Twin Transfusion Syndrome, we were devastated. That was 15 years ago and there weren’t a lot of options or resources available for those diagnosed with a fetal syndrome. Fortunately for us, we...
by Fetal Health Foundation | Apr 2, 2018 | front-page, News, Resource News, Story
Fetal Health Foundation Connexions magazine for 2018 has just been published online. The annual issue includes survivor photos, news on the latest grants, stories from families who have experiences fetal syndromes, and why you should be picky when choosing an OB.
by Dalia EL-Prince | Sep 9, 2016 | News, Resource News
Brianna Marie Memorial Research Grant fund reopened with an increase to $50,000 and a new deadline of September 15th. The mission of the Brianna Marie Memorial Research Grant (managed by the Fetal Health Foundation) is to improve health outcomes for pregnancies and...
by Fetal Health Foundation | Mar 7, 2016 | Blogs, front-page, News, Resource News
We’re thrilled to announce our new magazine! Connexions is published annually by the Fetal Health Foundation in order to bring together the many realms surrounding a fetal syndrome diagnosis. The magazine connects doctors and fetal centers, updating them on the...
