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Curing Spina Bifida

Curing Spina Bifida

by Fetal Health Foundation | Jun 12, 2019 | Blogs, front-page, Myelomeningocele/Spina Bifida, News, Resource News, Sponsor

Growing up in the 1960’s, Dr. Diana Farmer’s mother taught Sunday school for disabled children where she first met children who had spina bifida.
“It was a really crummy disease,” Farmer said. Dr. Farmer is now leading innovative research, which holds promise of saving lives and lifetimes.

VIDEO: Fetal Surgery to Treat Paralysis Associated with Spina Bifida

VIDEO: Fetal Surgery to Treat Paralysis Associated with Spina Bifida

by Fetal Health Foundation | Jun 10, 2019 | front-page, Myelomeningocele/Spina Bifida, News, Resource News, Sponsor

In the video she discusses the improvements that resulted from the initial fetal surgeries, including a reduction in the need for shunts.  She now believes that with the latest breakthroughs involving fetal surgery and stem cells that the paralysis associated with spina bifida will be cured in her lifetime.

Why We’re So Excited About The Latest Advances in Fetal Medicine

Why We’re So Excited About The Latest Advances in Fetal Medicine

by Fetal Health Foundation | Oct 1, 2018 | front-page, News, Resource News, Story

When my wife and I received the news that our baby girls had Twin to Twin Transfusion Syndrome, we were devastated. That was 15 years ago and there weren’t a lot of options or resources available for those diagnosed with a fetal syndrome. Fortunately for us, we...
Connexions Magazine 2018 is Live

Connexions Magazine 2018 is Live

by Fetal Health Foundation | Apr 2, 2018 | front-page, News, Resource News, Story

Fetal Health Foundation Connexions magazine for 2018 has just been published online. The annual issue includes survivor photos, news on the latest grants, stories from families who have experiences fetal syndromes, and why you should be picky when choosing an OB.

$50,000 Research Grant Deadline Approaching!

$50,000 Research Grant Deadline Approaching!

by Fetal Health Foundation | Sep 9, 2016 | News, Resource News

Brianna Marie Memorial Research Grant fund reopened with an increase to $50,000 and a new deadline of September 15th. The mission of the Brianna Marie Memorial Research Grant (managed by the Fetal Health Foundation) is to improve health outcomes for pregnancies and...
Take a Peek at Our New Connexions Magazine!

Take a Peek at Our New Connexions Magazine!

by Fetal Health Foundation | Mar 7, 2016 | Blogs, front-page, News, Resource News

We’re thrilled to announce our new magazine! Connexions is published annually by the Fetal Health Foundation in order to bring together the many realms surrounding a fetal syndrome diagnosis. The magazine connects doctors and fetal centers, updating them on the...
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What It Was Like For Our Family

Stories of Fetal Diagnosis and Treatment

Fetomaternal Alloimmunization: Alexandra’s Story

Fetoscopic MMC (Spina Bifida) Repair: One Family’s Journey

Spina Bifida Stories

TTTS Stories

Maternal Fetal Medicine and Fetal Syndromes: The Basics for Expectant Parents

Rose’s Prenatal Spina Bifida Story

Make a Donation

Expert Voices

Insight from Professionals

Gastroschisis and the search for better, earlier interventions with Dr. Geoanna Bautista

Q & A with a Trailblazer: Dr. Scott Adzick at CHOP

Dr. Chmait Performs Minimally-Invasive Fetoscopic Surgery for Spina Bifida

Our Medical Board of Directors

 

Who We Are

A Parent-Founded Nonprofit

What We Do: Our Annual Impact Report

Renny and Benny’s Story

Our Founders Story: The Somers Family

Learn about our Flagship Fundraiser, The Great Candy Run

Contact Our Staff

 

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