New Fetal Surgery Treatment for Congenital Diaphragmatic Hernia

New Fetal Surgery Treatment for Congenital Diaphragmatic Hernia

Fetal Health Foundation Medical Advisory Board member Dr. Ahmet Baschat and 2015 Recipient of the Brianna Marie Memorial Research grant Dr. Jena Miller are co-authors of a new Johns Hopkins Center for Fetal Therapy study that gives hope to families experiencing a diagnosis of fetal congenital diaphragmatic hernia. 

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Lucy’s sacrococcygeal teratoma (SCT) story

Lucy’s sacrococcygeal teratoma (SCT) story

Lucy’s tumor was Type 3, both internal and external, and much larger than her doctors considered operable. It was also mostly solid, which meant it required a blood supply, causing the heart to work harder to supply blood to both the baby and the tumor.

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Best Apps for First-Time Parents

Best Apps for First-Time Parents

While we tend to use our phones as entertainment devices more often than not, smartphones are also full of information and tools for new parents. Whether you want to track your baby’s development in utero, log some of the less glamorous aspects of parenthood after birth, or just snap photos of your precious new addition, you can do it all with the help of your phone.

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2019 Fetal Health Foundation Impact Report

2019 Fetal Health Foundation Impact Report

Your support made a real difference to young families facing a fetal syndrome diagnosis. Read about the impact that the Fetal Health Foundation made in 2019. Download the report PDF and share!

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Foods to Avoid When Pregnant

Foods to Avoid When Pregnant

Whether it’s your first or fifth pregnancy, this is a special time.

It is crucial to carefully consider what you are eating and make sure you are on a healthy balanced diet throughout your pregnancy.
While you may have to cut out some foods for nine months, some are okay in small amounts.

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PTSD and the NICU: When the Feelings Linger

PTSD and the NICU: When the Feelings Linger

9 years after our 100-day stay at the NICU, I was suddenly paralyzed by PTSD. Every horrible feeling of fear, anxiety, despair, and anger came flooding back all at once, as a sucker punch to the gut. Emotional scars I thought long healed were bleeding again, as I hurt for my friend and for my own experiences.

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Noelle’s Light

Noelle’s Light

I was so, so terrified. Not for me, but for her. Would she be okay? Would she be in pain? Please just save her! As I wheeled away from my family, the only feeling I remember is fear. In the OR, faces I didn’t know surrounded me. I was squeezing the hand of a person I’d never met as they prepped me for the emergency C-section.

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Eli’s Story: Finding a Miracle at the End of a Diagnosis

Eli’s Story: Finding a Miracle at the End of a Diagnosis

“There’s a major problem with your pregnancy.” Are words no expecting parents anticipate hearing. At our routine twenty-week ultrasound, the ultrasound technician got the doctor, and we heard the words that would forever change our lives. “The bladder isn’t releasing urine” and “the amniotic fluid level is dangerously low.”

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Babywearing and the Impact It Has on the Bond Between Baby and Caretaker

Babywearing and the Impact It Has on the Bond Between Baby and Caretaker

Kangaroo care (KC, sometimes referred to as “skin-to-skin”) is the most optimal way to promote close contact and can be done by placing your diapered (undressed) baby on your bare chest. This seemingly insignificant practice will actually promote a strong and healthy relationship between caregiver and baby while helping baby thrive exponentially.

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Curing Spina Bifida

Curing Spina Bifida

Growing up in the 1960’s, Dr. Diana Farmer’s mother taught Sunday school for disabled children where she first met children who had spina bifida.
“It was a really crummy disease,” Farmer said. Dr. Farmer is now leading innovative research, which holds promise of saving lives and lifetimes.

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Everett’s Update: Flourishing After Fetoscopic Surgery

Everett’s Update: Flourishing After Fetoscopic Surgery

Most mothers would probably tell their child to sit down and stop standing on the chair in the middle of their family photography session. But when you’re told your son will never walk and he mischievously climbs onto a chair with no help and stands there, posing for the camera … well, you let him do it.

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When You Need To Start Baby Proofing

When You Need To Start Baby Proofing

Your question should not be whether or not your child will find hazards in the home, but how soon and where will they find them. 2,700 children die from preventable injuries each year, and the majority of preventable injuries occur in the home. 120,000 children are permanently disabled from these preventable injuries. Learn the habits you should adopt to keep your children safe.

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Fetal Health Foundation Awards $50,000 Research Grant to Further Study Life-Threatening Fetal Lung Complication

Fetal Health Foundation Awards $50,000 Research Grant to Further Study Life-Threatening Fetal Lung Complication

The recipient of the 2017 Brianna Marie Memorial Research Grant, awarded annually by the Fetal Health Foundation (FHF), is a team led by Dr. Ali Gholipour of Boston Children’s Hospital and Harvard Medical School. The group’s focus will be on improved imaging for the prenatal prognosis of incomplete development of the lungs, a life-threatening complication that is associated with several fetal syndromes.

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Meet The Sweet People – 2017 Great Candy Run Ambassador Team

Meet The Sweet People – 2017 Great Candy Run Ambassador Team

We’re proud to announce that we have the SWEETEST people helping us spread the word about The Great Candy Run.  The 5k family fun events takes place this year in Minneapolis on October 14th, in Denver on November 12th, and everywhere else world wide November 30- January 1, 2018.

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