Curing Spina Bifida

Growing up in the 1960’s, Dr. Diana Farmer’s mother taught Sunday school for disabled children where she first met children who had spina bifida.
“It was a really crummy disease,” Farmer said. Dr. Farmer is now leading innovative research, which holds promise of saving lives and lifetimes.

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Everett’s Update: Flourishing After Fetoscopic Surgery

Most mothers would probably tell their child to sit down and stop standing on the chair in the middle of their family photography session. But when you’re told your son will never walk and he mischievously climbs onto a chair with no help and stands there, posing for the camera … well, you let him do it.

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When You Need To Start Baby Proofing

Your question should not be whether or not your child will find hazards in the home, but how soon and where will they find them. 2,700 children die from preventable injuries each year, and the majority of preventable injuries occur in the home. 120,000 children are permanently disabled from these preventable injuries. Learn the habits you should adopt to keep your children safe.

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Fetal Health Foundation Awards $50,000 Research Grant to Further Study Life-Threatening Fetal Lung Complication

The recipient of the 2017 Brianna Marie Memorial Research Grant, awarded annually by the Fetal Health Foundation (FHF), is a team led by Dr. Ali Gholipour of Boston Children’s Hospital and Harvard Medical School. The group’s focus will be on improved imaging for the prenatal prognosis of incomplete development of the lungs, a life-threatening complication that is associated with several fetal syndromes.

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Meet The Sweet People – 2017 Great Candy Run Ambassador Team

We’re proud to announce that we have the SWEETEST people helping us spread the word about The Great Candy Run.  The 5k family fun events takes place this year in Minneapolis on October 14th, in Denver on November 12th, and everywhere else world wide November 30- January 1, 2018.

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What are Doppler Ultrasound Tests?

Many patients ask this question so we asked Dr. Joel Schwartz  to give us a better understanding of what a doppler ultrasound is, and what he can observe during this kind of special examination. Beyond the stunning 3-dmensional and 4-dimensional images that grab...

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Talking About Loss: What Families Wish You Knew

Do you have a friend or family member who lost their baby or babies? Do you struggle to know what to say and how to act around them? Many families go through this loss, and we asked them to share what they wish their family and friends knew.  1 - Parents who have lost...

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How Can I Help? Creative Ways to Support the Foundation

“How can I help?” It’s a question we, at the Fetal Health Foundation (FHF), hear frequently. For some, the motivation to help comes because they have experienced a fetal syndrome; others reach out to show support for a friend or family member in the midst of a...

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Honoring Me on Mother’s Day In Celebration of My Angels

We are saddened by the loss of Ella and Grace to twin-to-twin transfusion syndrome.  Their mother, Jennifer, wrote this piece on Mother's Day, and she's allowing us to share it here. I am a mother. I have thought all morning about what today means to me and if I even...

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10 Ways To Help a Friend During A Difficult Pregnancy

When a friend’s baby is diagnosed with a fetal syndrome or she is having a difficult pregnancy for other reasons, her family’s life turns upside down. It is often hard to know what to say - or how to help.  Several of FHF's board members have experienced fetal...

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My Letter to The Silent Grievers

Dalia EL-Prince served as the Executive Director of the Fetal Health Foundation. Recently I joined the Fetal Health Foundation to offer hope to unborn babies and help families who are faced with the loss of their child during pregnancy or after delivery. Though I...

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Zika Virus: Parents’ Top 10 Questions

Answers to these questions and more from the Fetal Health Foundation and Children’s Hospital Colorado. What is the Zika virus? How do you get the Zika virus? If a pregnant woman has traveled to an affected area and is concerned about the Zika virus, what should she do? Should she get tested, and if so, where is the best place to start?

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Zika Virus 101 Infographic

The Zika Virus and Microcephaly are in the news recently. Many of us wonder why we haven't heard of it before, and what we can do to protect ourselves and our family. One of our readers, Emily Maynard, put together an easy-to-understand infographic about the virus....

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Take a Peek at Our New Connexions Magazine!

We're thrilled to announce our new magazine! Connexions is published annually by the Fetal Health Foundation in order to bring together the many realms surrounding a fetal syndrome diagnosis. The magazine connects doctors and fetal centers, updating them on the latest...

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