Ectopia Cordis
…to terminate the pregnancy, as the ectopia cordis survival rate is around 10%. There are currently no fetal interventions (surgery) options while the baby is in utero. *diagnostic information provided…
Fetal Therapy Think Tank Joins Nonprofit Fetal Health Foundation
…syndrome were limited; however, they managed to connect with a specialist in Florida and traveled across the country for in-utero surgery. Today, their daughters are healthy 16-year-olds who are making…
Alloimmunization in Pregnancy: When the Blood Cells Attack
…this pregnancy to go as smoothly as the others, with the exception of a complicated delivery with her second baby that required an emergency surgery and blood transfusions. But a…
Baby Jabari gets a second chance at life
…including a neonatal team of experts and urology and nephrology specialists. Jabari’s shunt was taken out the day after his birth. He then underwent a vesicostomy, a surgery to create…
Embracing Imperfection: A Parent’s Journey Raising Children with Disabilities
…brain surgery and another being injured during physical therapy. Through these experiences, Moira realized that parenting often meant managing chaos and endless medical interventions. Despite professional advice and support, the…