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The impact of fetal surgery for spina bifida and hydrocephalus: a patient’s perspective

The impact of fetal surgery for spina bifida and hydrocephalus: a patient’s perspective

by Erika K Wolf | Oct 26, 2024 | Blogs, Condition, Congenital Diaphragmatic Hernia, front-page, Hydrocephalus/ Ventriculomegaly, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story, Uncategorized

…I still can remember that day as if it happened yesterday. The diagnosis: spina bifida and hydrocephalus The date was April 4th, 2019 when we went to meet with the…

Nixon: Making remarkable strides in his development thanks to the world’s first study of its kind for spina bifida

Nixon: Making remarkable strides in his development thanks to the world’s first study of its kind for spina bifida

by Erika K Wolf | Oct 29, 2024 | Blogs, Condition, front-page, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story, Uncategorized

When Lindsey Metcalf’s unborn baby was diagnosed with spina bifida, she and her husband Jared began searching for a state-of-the-art treatment that would provide hope. They discovered information about the…

A Needle-Delivered Polymer for Spina Bifida| 2015 Stowell Grant Winner

A Needle-Delivered Polymer for Spina Bifida| 2015 Stowell Grant Winner

by Fetal Health Foundation | Sep 22, 2015 | Blogs, front-page, Grant Winner, Myelomeningocele/Spina Bifida, News

…babies diagnosed in utero with Spina Bifida. Spina Bifida occurs when an area of the spinal column does not seal up before birth. It is exposed like an open wound….

My Son’s First Surgery for Spina Bifida

My Son’s First Surgery for Spina Bifida

by Fetal Health Foundation | May 13, 2019 | front-page, Myelomeningocele/Spina Bifida, News, Story

…My doctors, Dr. Michael Belfort and Dr. William Whitehead, are leading the way when it comes to fetoscopic surgery for spina bifida. I feel so blessed to be a part…

Christian: Now an EMT decades after groundbreaking spina bifida surgery

Christian: Now an EMT decades after groundbreaking spina bifida surgery

by Erika K Wolf | Oct 28, 2024 | Blogs, Condition, front-page, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story

Stewardship Partner Children’s Hospital of Philadelphia, has been a pioneer in the realm of fetal surgery to repair spina bifida. Christian was the 14th patient to undergo the procedure and…

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