Rose’s Story: Prenatal Spina Bifida Diagnosis
…possibly spina bifida in the baby. A second opinion at Children’s Mercy in Kansas City confirmed Rose had spina bifida and fluid buildup in her brain (hydrocephalus). Rose’s spina bifida…
Myelomeningocele/Spina Bifida – Facts
Myelomeningocele / Spina Bifida diagnosis? We have resources to help. Parents who have received a fetal diagnosis need support and resources. We founded this non-profit to help families after our…
The impact of fetal surgery for spina bifida and hydrocephalus: a patient’s perspective
…I still can remember that day as if it happened yesterday. The diagnosis: spina bifida and hydrocephalus The date was April 4th, 2019 when we went to meet with the…
Nixon: Making remarkable strides in his development thanks to the world’s first study of its kind for spina bifida
When Lindsey Metcalf’s unborn baby was diagnosed with spina bifida, she and her husband Jared began searching for a state-of-the-art treatment that would provide hope. They discovered information about the…
A Needle-Delivered Polymer for Spina Bifida| 2015 Stowell Grant Winner
…babies diagnosed in utero with Spina Bifida. Spina Bifida occurs when an area of the spinal column does not seal up before birth. It is exposed like an open wound….