Fetal Syndrome Awareness Month highlights the conditions that can affect a baby before birth and the importance of education, specialized fetal care, and support for families navigating a prenatal diagnosis.
What Is a Fetal Syndrome?
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fetal surgery
Rose’s Story: Prenatal Spina Bifida Diagnosis
When Taylor and James learned their baby, Rose, had spina bifida, their world shifted overnight. From high-risk pregnancy care to in-utero surgery at Children’s Mercy, their story of hope, resilience, and the power of compassionate medical support unfolded.
Inés’ Journey: Life After TRAP Sequence and the Loss of Her Twin
Diagnosed with TRAP sequence, Inés’ survival came after her twin’s loss, meticulous fetal monitoring, and the expert care at CHOP. Explore the pivotal moments and life-saving decisions that shaped her remarkable beginning.
From Diagnosis to Toddlers: A Family’s Journey Beyond TTTS
Life at home with Kaelyn’s twins is lively, loud, and full of surprises, especially after their early diagnosis with twin-twin transfusion syndrome (TTTS). Ben keeps everyone laughing with playful antics while Renny clings to mom as she juggles snacks and toddler...
UC Davis Surgeon Dr. Diana Farmer Honored for Groundbreaking Spina Bifida Research
Dr. Diana Farmer of UC Davis is pioneering new spina bifida treatments by combining fetal surgery with stem cell therapy in the groundbreaking CuRe Trial. Her work is transforming patient care and offering hope.
Q & A with a Trailblazer: Dr. Scott Adzick at CHOP
The field of fetal diagnosis and treatment is continually evolving. Hear from Dr. Scott Adzick, one of the foremost trailblazers in the specialty, about groundbreaking advancements he helped pioneer. Learn why he believes it’s an obligation of the field to conduct research to offer hope and health.
Lexi’s story: surpassing all expectations after in-utero surgery for spina bifida
5-minute read
The Badenhop family wasn’t expecting news of spina bifida and were scared and uncertain about their baby’s future. But Nationwide Children’s Hospital’s expert team offered hope — and a successful outcome for baby Lexi.
How Nationwide Children’s is Optimizing Prenatal and Neonatal Care for Infants with Treatable Rare Diseases
4-minute read
Now that there is ever-growing potential to intervene medically before a child is born, it expands the utility of prenatal testing. Doctors can find ways to intervene earlier to improve outcomes.
Fetal Surgery: Seven Questions Dr. Timothy Crombleholme Answered for Us
4-minute read
Renowned expert Dr. Crombleholme answers common questions about fetal interventions and treating babies before they’re born.
Fetal Care Chat: Women in Fetal Medicine
Fetal Health Foundation founder and Fetal Care Chat host, Lonnie Somers welcomes three amazing pioneering women in fetal medicine. Dr. Jenan Miller, Dr. Courtney Stephenson, and Dr. Diana Farmer.
World’s first stem cell treatment for spina bifida delivered during fetal surgery
Three babies have been born after receiving the world’s first spina bifida treatment combining surgery with stem cells. This was made possible by a landmark clinical trial at UC Davis Health.
The new treatment, delivered while a fetus is still in the mother’s womb, could improve outcomes for children with this birth defect.
Rare Expertise for the Rarest Conditions: Unique Surgery Technique Saves Twin Babies
Upon meeting with Colorado Fetal Care Center maternal fetal medicine specialist and fetal surgeon Nick Behrendt, MD, the Oligmuellers learned their case of TTTS was severe. The best solution for TTTS is typically fetoscopic laser ablation. It’s a minimally invasive surgery in which the surgeon inserts a tiny scope into the uterus, through the amniotic sac.