Fetal Syndrome Awareness Month highlights the conditions that can affect a baby before birth and the importance of education, specialized fetal care, and support for families navigating a prenatal diagnosis.
What Is a Fetal Syndrome?
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Twin Reversed Arterial Perfusion Sequence
Inés’ Journey: Life After TRAP Sequence and the Loss of Her Twin
Diagnosed with TRAP sequence, Inés’ survival came after her twin’s loss, meticulous fetal monitoring, and the expert care at CHOP. Explore the pivotal moments and life-saving decisions that shaped her remarkable beginning.
Fetal Care Chat: Women in Fetal Medicine
Fetal Health Foundation founder and Fetal Care Chat host, Lonnie Somers welcomes three amazing pioneering women in fetal medicine. Dr. Jenan Miller, Dr. Courtney Stephenson, and Dr. Diana Farmer.
New Technology for TRAP Syndrome Treatment
One unique opportunity I have as a co-founder of the Fetal Health Foundation is the opportunity to be in touch with doctors who are making great strides in fetal medicine. Parents come to us to help find the newest treatment options, and hope for their unborn babies....
Twin Reversed Arterial Perfusion Sequence – Facts
Acardiac twins, otherwise known as twin reversed-arterial perfusion (TRAP) sequence, is a rare and serious complication of monochorionic (one placenta) twins. Although the cause for the syndrome is not completely understood, it has been hypothesized that large vessels...
Our TTTS/ TRAP story…and 7 yrs later.
The news of twins was surreal. My husband and I were overjoyed but that joy was short lived.
Our doctor detected an abnormality on a ultrasound when I was only 10 weeks along. Not sure what it was, she had me come back the next week for a better look. I was quickly referred to a fetal specialist who gave us a diagnosis of TTTS and referred us to Dr. Ruben Quintero.
Our official diagnosis: TTTS with and an Acardiac Twin
Read moreAt our 18-week ultrasound it was discovered that we had an acardiac twin.
Magical Julia
I just want to share my story about my daughter, Julia, who is the miracle who resulted from my TRAP pregnancy. In the fall of 2009, I suffered two miscarriages. The following January, I became pregnant with twins naturally. At about nine weeks, we were told one of...