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Facing an Omphalocele Diagnosis: One Family’s Journey to CHOP’s Specialized Care

Facing an Omphalocele Diagnosis: One Family’s Journey to CHOP’s Specialized Care

by Erika K Wolf | Jan 27, 2026 | Blogs, Condition, front-page, News, Omphalocele, Story

When Addie and Ryan received a prenatal diagnosis of omphalocele, they were referred to CHOP for specialized fetal and neonatal care. From a highly coordinated birth to weeks in the NICU, their journey reflects the complexity of this rare birth defect.

Giant Omphalocele: Patient born with organs outside of her abdomen receives transformative care

Giant Omphalocele: Patient born with organs outside of her abdomen receives transformative care

by Fetal Health Foundation | Jul 8, 2022 | Abdominal Wall Defect, Blogs, front-page, News, Omphalocele, Story

When Brianne Jacobsen was 20 weeks pregnant, her ultrasound revealed that her developing baby’s internal organs were sticking out of its abdomen. The birth defect, known as an omphalocele, required the higher level of expertise of the UC Davis Fetal Care and Treatment Center team.

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What It Was Like For Our Family

Stories of Fetal Diagnosis and Treatment

Fetomaternal Alloimmunization: Alexandra’s Story

Fetoscopic MMC (Spina Bifida) Repair: One Family’s Journey

Spina Bifida Stories

TTTS Stories

Maternal Fetal Medicine and Fetal Syndromes: The Basics for Expectant Parents

Rose’s Prenatal Spina Bifida Story

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Expert Voices

Insight from Professionals

Gastroschisis and the search for better, earlier interventions with Dr. Geoanna Bautista

Q & A with a Trailblazer: Dr. Scott Adzick at CHOP

Dr. Chmait Performs Minimally-Invasive Fetoscopic Surgery for Spina Bifida

Our Medical Board of Directors

 

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What We Do: Our Annual Impact Report

Renny and Benny’s Story

Our Founders Story: The Somers Family

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980-224-0398
9786 South Holland St.

Littleton, CO 80127

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