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Thomas’s Heartfelt Journey: Overcoming HLHS with Lifesaving Care

Thomas’s Heartfelt Journey: Overcoming HLHS with Lifesaving Care

by Erika K Wolf | Mar 20, 2025 | Blogs, Condition, front-page, Hypoplastic Left Heart Syndrome, News, Story, Uncategorized

Sarah and Yaniv’s son, Thomas, was born with HLHS – hypoplastic left heart syndrome. Thanks to early intervention and expert care from CHOP, Thomas underwent life-saving surgeries and is now thriving as a toddler.

Ruthie’s Story: Baby with Down Syndrome Receives Life-Saving Care and Overcomes Challenges

Ruthie’s Story: Baby with Down Syndrome Receives Life-Saving Care and Overcomes Challenges

by Erika K Wolf | Mar 19, 2025 | Blogs, Condition, front-page, News, Story, Uncategorized

Ruthie, a baby with Down syndrome, received critical care at UC Davis Children’s Hospital after being diagnosed with a heart condition. With expert support and successful heart surgery, she overcame early challenges and is thriving. Her parents share their journey and encourage others to trust specialized care.

Embracing Imperfection: A Parent’s Journey Raising Children with Disabilities

Embracing Imperfection: A Parent’s Journey Raising Children with Disabilities

by Erika K Wolf | Mar 17, 2025 | Blogs, Condition, front-page, News, Uncategorized

In this heartfelt reflection, Moira Allbritton shares her journey raising five children, four of whom have autism, and the lessons learned about embracing imperfection, finding acceptance, and discovering joy in parenting children with disabilities.

The Life-Changing Impact of Mental Health Care in the NICU

The Life-Changing Impact of Mental Health Care in the NICU

by Erika K Wolf | Mar 14, 2025 | Blogs, Condition, Esophageal Atresia with Tracheosphageal Fistula, front-page, News, Story

The mental health support provided in the NICU was essential for Collette & Alex as they navigated the emotional challenges of their daughter Austen’s critical care. The family-focused care at Stanford Children’s enabled them to manage stress, connect with other parents, and focus on both Austen’s healing.

Meet Rami: Checking off milestones after highly rare CCMS diagnosis

Meet Rami: Checking off milestones after highly rare CCMS diagnosis

by Erika K Wolf | Mar 6, 2025 | Blogs, Condition, front-page, News, Story, Uncategorized

Rami’s parents knew when he was still in utero that there was an issue with his jaw. Genetic testing after birth revealed an extremely rare diagnosis of CCMS, which affects the jaw, mouth, and ribs. Thanks to the compassionate, expert care at Cincinnati Children’s, Rami is almost 2 and keeping his parents on their toes!

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