The Egan family is grateful for the “enormous team” at Stanford Medicine Children’s Health who repaired baby MJ’s rare congenital heart defect and provided months of individualized care in the Cardiovascular Intensive Care Unit. Today, their baby is a thriving toddler with normal heart ventricle function.
Erika K Wolf
Alexander’s Story: Expert High-risk Pregnancy Care at Stanford Children’s Health Gets Mom to the Vital 23-week Mark
Emily’s third pregnancy wasn’t expected to be high risk. But once it became clear, she went to the experts at Stanford Medicine Children’s Health. Thanks to the multi-disciplinary approach coupled with personalized fetal counseling, baby Alexander is a thriving toddler with a big smile who is living up to his warrior name.
Gastroschisis and the search for better, earlier interventions at UC Davis Health
The rate of gastroschisis, an abdominal wall defect that is often discovered in utero, has been on the rise in the US. Thanks to Dr. Geoanna Baustista and the Baby Intestines Group at UC Davis Health, research is being done to find potential fetal interventions and improve babies’ outcomes.
A Family’s Journey with Rare Disease: Molybdenum Cofactor Deficiency Type A
The Dahab family moved to Ohio to be close to their “second family” at Nationwide Children’s Hospital. Thanks to Nationwide’s excellence in maternal fetal medicine and fetal imaging, a world-class NICU, access to genome sequencing, and rare disease experts, their boys are living longer and better lives.
Saving Luka: From Albania to Ohio to Treat Posterior Urethral Valves
When doctors told the Lame family their son wouldn’t survive his serious diagnosis, they didn’t give up hope. They started to search for answers. Luckily, they found them at Cincinnati Children’s Hospital. With expert, all-encompassing care, baby Luka is thriving.
Deciding to Treat Fetal Renal Failure: Information & Support for Families from Connecticut Children’s
Treating Fetal Renal Failure is a highly personal process with many decisions to be made over the lifetime of the child. Dr. Timothy Crombleholme at Connecticut Children’s details why it’s important to have support, second opinions, and a highly specialized team.
Three Things to Know About Treating Fetal Renal Failure
Fetal care pioneer Dr. Timothy Crombleholme at Connecticut Children’s Fetal Care Center explains what families need to understand about their deeply personal options for treating Fetal Renal Failure.
Golden Hour: Expert Delivery of Babies with Birth Defects at Children’s Hospital of Philadephia
Children’s Hospital of Philadelphia is specially equipped with technology and expertise to deliver babies with birth defects. In fact they lead the nation in these deliveries. See what a “delivery room of the future” looks like.
Campbell’s Story: Cincinnati Children’s Offers Expert Treatment for Cloacal Exstrophy
Campbell Lester recently celebrated his third birthday. But during his mom's 20-week ultrasound appointment, doctors believed nothing good would come from the pregnancy. The ultrasound showed a grim picture: part of the baby's abdomen was open and organs would be...
Arley’s Fetal Heart Tumor Journey: How In-Utero Surgery for Pericardial Teratoma Saved Her Life
Time was on baby Arley’s side when she was diagnosed with a rare fetal heart tumor. A narrow window of opportunity exists to remove a mass from a baby’s heart before it gets too large. But lucky for Arley, she was in a good place for the experts at CHOP to perform the in-utero procedure and allow her heart to function normally.
Josiah’s Story: Innovative Technology Treats Fetal Renal Failure
Narina and Chris were referred to expert care at Connecticut Children’s Fetal Care Center that saved baby Josiah’s life. Other doctors were ready to give up hope. But thanks to an innovative technique to receive amnioinfusions, baby Josiah is doing well and is ready for the ultimate phase of treatment.
Renny & Benny’s Story: Fetoscopic laser surgery to correct twin-twin transfusion syndrome
Kaelyn thought she might lose both her babies when Twin-to-Twin Transfusion Syndrome entered the picture. But thanks to the “amazing, amazing people” at Connecticut Children’s Fetal Care Center, she is enjoying life with her two healthy identical twin boys and wants parents to know that there is help and hope.












