In this ever-changing environment impacted by COVID-19, women who have higher-risk pregnancies face a different set of challenges in requiring more visits and potential fetal therapies in order to chance a successful delivery. The Fetal Health Foundation recently compiled the most accurate information out right now about what being diagnosed with a fetal syndrome looks like….
Blogs
Delivery + Caring for a Newborn During a Pandemic
Tips on what to expect during prenatal care and delivery. CDC disinfection protocols, breastfeeding, and resources for new parents are discussed. Updated on April 2, 2020, we also talk about questions you should ask and about going back to work after delivery.
Using Telehealth For OB Patients During COVID-19
Prior to the COVID-19 pandemic, the use of telehealth was minimal in obstetric practice in the US. Despite its growth in other healthcare areas, few healthcare facilities or providers were set up to provide OB telehealth services. However, in the short span of 4-6 weeks, this has changed dramatically.
COVID-19 & Pregnancy: UPDATED Resources for Expectant and New Parents
Pregnancy and life with a newborn during the COVID-19 pandemic is frightening. We’ve asked members of our medical advisory board to continue to contribute the most relevant and up-to-date resources that they find as the situation evolves. We’ll continue to update this post as new information is available.
New Fetal Surgery Treatment for Congenital Diaphragmatic Hernia
Fetal Health Foundation Medical Advisory Board member Dr. Ahmet Baschat and 2015 Recipient of the Brianna Marie Memorial Research grant Dr. Jena Miller are co-authors of a new Johns Hopkins Center for Fetal Therapy study that gives hope to families experiencing a diagnosis of fetal congenital diaphragmatic hernia.
Lucy’s sacrococcygeal teratoma (SCT) story
Lucy’s tumor was Type 3, both internal and external, and much larger than her doctors considered operable. It was also mostly solid, which meant it required a blood supply, causing the heart to work harder to supply blood to both the baby and the tumor.
Best Apps for First-Time Parents
While we tend to use our phones as entertainment devices more often than not, smartphones are also full of information and tools for new parents. Whether you want to track your baby’s development in utero, log some of the less glamorous aspects of parenthood after birth, or just snap photos of your precious new addition, you can do it all with the help of your phone.
2019 Fetal Health Foundation Impact Report
Your support made a real difference to young families facing a fetal syndrome diagnosis. Read about the impact that the Fetal Health Foundation made in 2019. Download the report PDF and share!
Daddy’s Diet Matters Too: How What Men Eat and Drink Affects Fetal Health
Until more recently, men’s diets and their effects on fetal health have never been taken into consideration. Dads, it may be time to hold off on that loaded cheeseburger and side of chili cheese fries. Here’s a look at why.
UC San Francisco Team Named Winner of Brianna Marie Memorial Research Grant for a Second Time
The recipient of this year’s Brianna Marie Memorial Research Grant goes for a second time to Dr. Teresa Sparks and team at the University of California, San Francisco to further support the completion of your research project titled “Non-Immune Hydrops Fetalis: Toward a Precision-Based Approach.”
Foods to Avoid When Pregnant
Whether it’s your first or fifth pregnancy, this is a special time.
It is crucial to carefully consider what you are eating and make sure you are on a healthy balanced diet throughout your pregnancy.
While you may have to cut out some foods for nine months, some are okay in small amounts.
PTSD and the NICU: When the Feelings Linger
9 years after our 100-day stay at the NICU, I was suddenly paralyzed by PTSD. Every horrible feeling of fear, anxiety, despair, and anger came flooding back all at once, as a sucker punch to the gut. Emotional scars I thought long healed were bleeding again, as I hurt for my friend and for my own experiences.












