Diagnosed with TRAP sequence, Inés’ survival came after her twin’s loss, meticulous fetal monitoring, and the expert care at CHOP. Explore the pivotal moments and life-saving decisions that shaped her remarkable beginning.
Blogs
A Fragile Start, a Fierce Future: Nora and Hattie’s sIUGR Story
Hattie and Nora faced sIUGR in the womb, a rare condition that threatened their lives. Years later, they continue to thrive, a testament to expert care at CHOP, resilience, and their extraordinary early journey.
From Diagnosis to Toddlers: A Family’s Journey Beyond TTTS
Life at home with Kaelyn’s twins is lively, loud, and full of surprises, especially after their early diagnosis with twin-twin transfusion syndrome (TTTS). Ben keeps everyone laughing with playful antics while Renny clings to mom as she juggles snacks and toddler...
A New Beginning: How Helio’s Story Shows the Power of Expert CDH Care
Helio’s story highlights the strength of one tiny fighter and the impact of expert CDH care. From diagnosis to recovery, his journey is filled with hope, resilience, and extraordinary medical support. See how far he’s come.
Prematurity Awareness Month: Supporting Families, Advancing Healthy Pregnancies
November is Prematurity Awareness Month, a time to raise awareness about preterm birth, honor the resilience of premature infants, and support families with educational resources for healthy pregnancies.
Turning a Frightening Pregnancy Diagnosis into a Lifeline for Families: Our Founders’ Story
A Joyful Beginning When Lonnie and Michelle Somers learned they were expecting twins, they were overjoyed — and full of hopes for their future as parents. But that excitement was soon overshadowed by a diagnosis of twin-to-twin transfusion syndrome (TTTS), a rare and...
UC Davis Surgeon Dr. Diana Farmer Honored for Groundbreaking Spina Bifida Research
Dr. Diana Farmer of UC Davis is pioneering new spina bifida treatments by combining fetal surgery with stem cell therapy in the groundbreaking CuRe Trial. Her work is transforming patient care and offering hope.
Help Shape the Future of Fetal Care Centers: We Need Your Feedback
Have you or your partner received care at a fetal care center? The Fetal Therapy Think Tank is developing national recommendations for how these spaces are designed — and your feedback can help. Take a short, 8-question survey by Oct. 28 to share your insights and help improve fetal care center design for future families.
Honor Your Baby This Pregnancy & Infant Loss Awareness Month
October marks a special time to honor the babies we carry in our hearts. Contributing writer Faith Dulany from CarryMe Health shares heartfelt insights from her personal journey, offering hope and healing through meaningful rituals.
🍭 Why The Great Candy Run Is So Much More Than a Race
The Great Candy Run is a sweet, family-friendly 5K that brings people together for fun, lasting memories—and most importantly, to support families facing fetal syndrome diagnoses.
Breakthrough in Hydrocephalus Care: Gene Therapy on the Horizon
A groundbreaking gene therapy developed at UC Davis could change how hydrocephalus is treated in children—offering hope for safer, long-term care.
💙 Honoring NICU Families & Their First, Fiercest Journey
Each year, 1 in 10 babies begins life in the NICU. This September, we recognize the strength of NICU families and the care teams who help them thrive.












