When Addie and Ryan received a prenatal diagnosis of omphalocele, they were referred to CHOP for specialized fetal and neonatal care. From a highly coordinated birth to weeks in the NICU, their journey reflects the complexity of this rare birth defect.
Stanford Children’s Health offers expert, coordinated care for complex fetal and pregnancy conditions. Discover how multidisciplinary teams support families from diagnosis through delivery and beyond.
January is Birth Defects Awareness and Prevention Month—a time to raise awareness, support families navigating unexpected fetal health challenges, and highlight the importance of early care, prevention, and compassionate resources. Learn how knowledge and community can make a difference for families.
When Taylor and James learned their baby, Rose, had spina bifida, their world shifted overnight. From high-risk pregnancy care to in-utero surgery at Children’s Mercy, their story of hope, resilience, and the power of compassionate medical support unfolded.
Diagnosed with TRAP sequence, Inés’ survival came after her twin’s loss, meticulous fetal monitoring, and the expert care at CHOP. Explore the pivotal moments and life-saving decisions that shaped her remarkable beginning.
Hattie and Nora faced sIUGR in the womb, a rare condition that threatened their lives. Years later, they continue to thrive, a testament to expert care at CHOP, resilience, and their extraordinary early journey.
Life at home with Kaelyn’s twins is lively, loud, and full of surprises, especially after their early diagnosis with twin-twin transfusion syndrome (TTTS). Ben keeps everyone laughing with playful antics while Renny clings to mom as she juggles snacks and toddler...
Helio’s story highlights the strength of one tiny fighter and the impact of expert CDH care. From diagnosis to recovery, his journey is filled with hope, resilience, and extraordinary medical support. See how far he’s come.
November is Prematurity Awareness Month, a time to raise awareness about preterm birth, honor the resilience of premature infants, and support families with educational resources for healthy pregnancies.
Dr. Diana Farmer of UC Davis is pioneering new spina bifida treatments by combining fetal surgery with stem cell therapy in the groundbreaking CuRe Trial. Her work is transforming patient care and offering hope.
October marks a special time to honor the babies we carry in our hearts. Contributing writer Faith Dulany from CarryMe Health shares heartfelt insights from her personal journey, offering hope and healing through meaningful rituals.
The Great Candy Run is a sweet, family-friendly 5K that brings people together for fun, lasting memories—and most importantly, to support families facing fetal syndrome diagnoses.