Fetal Syndrome Awareness Month highlights the conditions that can affect a baby before birth and the importance of education, specialized fetal care, and support for families navigating a prenatal diagnosis.
What Is a Fetal Syndrome?
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Congenital Diaphragmatic Hernia
Transformational Pediatrics Podcast: How Innovation & Hope Intersect at Children’s Mercy
This episode of Transformational Pediatrics explores congenital diaphragmatic hernia (CDH) and how advances in prenatal imaging and multidisciplinary care are changing outcomes.
OHSU Re-Engages With FHF to Support Expansion of Advanced Fetal Care
The OHSU fetal care program has re-engaged with the Fetal Health Foundation to expand access to advanced fetal care for families facing complex fetal diagnoses, strengthening support for patients across the region.
A New Beginning: How Helio’s Story Shows the Power of Expert CDH Care
Helio’s story highlights the strength of one tiny fighter and the impact of expert CDH care. From diagnosis to recovery, his journey is filled with hope, resilience, and extraordinary medical support. See how far he’s come.
A Journey of Hope: Overcoming Congenital Diaphragmatic Hernia (CDH)
A family’s journey through the challenges of CDH led them to life-saving care at Children’s Hospital of Philadelphia, where their son received expert treatment and a second chance at life.
The impact of fetal surgery for spina bifida and hydrocephalus: a patient’s perspective
5-minute read
A young mom is faced with life or death decisions soon after learning her son’s diagnosis of spina bifida and hydrocephalus. She tells us her heartwarming story.
Considering Fetal Surgery or a Fetal Care Center? What to Keep in Mind
Fetal Health Foundation Medical Advisory Board member Dr. Timothy Crombleholme, MD, who leads the Fetal Care Center at Connecticut Children’s, shares six important details to consider when your baby needs fetal intervention not just to survive, but to thrive.
Congenital Diaphragmatic Hernia (CDH): Fetal Care Chat
Video: Congenital diaphragmatic hernia, or CDH, and treatment options were the topics of conversation for experts from Cincinnati Children’s Hospital
Home at Last: Parker Overcomes a Life-Threatening CDH Diagnosis
CDH affects 1,600 babies in the U.S. each year. In CDH, a hole in the diaphragm allows abdominal organs to move upwards into the chest during development, crowding the lungs and inhibiting their proper growth. Underdeveloped lungs and blood vessels that supply the lungs can cause high blood pressure in the lungs, asthma, gastrointestinal reflux, feeding disorders and developmental delays in childhood survivors of CDH.
Mila’s CDH Story | From Diagnosis to Delivery – and Beyond
“In severe cases of CDH, the survival rate is ranging from less than 20% to 50%, but with FETO, we’re seeing a huge improvement in odds of survival,” said Dr. Lim. “Right now, it looks like survival rates as high as 80-90% are possible, but we’re still learning.”
New Fetal Surgery Treatment for Congenital Diaphragmatic Hernia
Fetal Health Foundation Medical Advisory Board member Dr. Ahmet Baschat and 2015 Recipient of the Brianna Marie Memorial Research grant Dr. Jena Miller are co-authors of a new Johns Hopkins Center for Fetal Therapy study that gives hope to families experiencing a diagnosis of fetal congenital diaphragmatic hernia.
The Happiest Little Baby: Chase’s CDH Survivor Story
Chase Juergens came out blue. His mother, Alicia, had a caesarean section, and the nurses said that wasn’t unusual. Sometimes c-section babies take a little longer to catch their breath. They took him to the nursery for oxygen. Her husband, Michael, went with.