The 2025 Impact Report tells the story of what’s possible when families, providers, and supporters move forward together—advancing fetal care through connection, collaboration, and shared purpose.
Story
Facing an Omphalocele Diagnosis: One Family’s Journey to CHOP’s Specialized Care
When Addie and Ryan received a prenatal diagnosis of omphalocele, they were referred to CHOP for specialized fetal and neonatal care. From a highly coordinated birth to weeks in the NICU, their journey reflects the complexity of this rare birth defect.
Caring for Complex Fetal and Pregnancy Conditions: Expert Insights from Stanford Children’s Health
Stanford Children’s Health offers expert, coordinated care for complex fetal and pregnancy conditions. Discover how multidisciplinary teams support families from diagnosis through delivery and beyond.
Shining a Light on Birth Defects Awareness
January is Birth Defects Awareness and Prevention Month—a time to raise awareness, support families navigating unexpected fetal health challenges, and highlight the importance of early care, prevention, and compassionate resources. Learn how knowledge and community can make a difference for families.
Q&A with Dr. Jena Miller: Charting New Frontiers in Fetal Medicine at CHOP
In January 2026, Dr. Jena Miller joined CHOP as Co-Director of the Richard D. Wood Jr. Center for Fetal Diagnosis and Treatment. With over a decade at Johns Hopkins, she brings expertise in minimally invasive fetal procedures, spina bifida, and TTTS. Read her Q&A on advancing fetal medicine and supporting families.
Rose’s Story: Prenatal Spina Bifida Diagnosis
When Taylor and James learned their baby, Rose, had spina bifida, their world shifted overnight. From high-risk pregnancy care to in-utero surgery at Children’s Mercy, their story of hope, resilience, and the power of compassionate medical support unfolded.
Inés’ Journey: Life After TRAP Sequence and the Loss of Her Twin
Diagnosed with TRAP sequence, Inés’ survival came after her twin’s loss, meticulous fetal monitoring, and the expert care at CHOP. Explore the pivotal moments and life-saving decisions that shaped her remarkable beginning.
A Fragile Start, a Fierce Future: Nora and Hattie’s sIUGR Story
Hattie and Nora faced sIUGR in the womb, a rare condition that threatened their lives. Years later, they continue to thrive, a testament to expert care at CHOP, resilience, and their extraordinary early journey.
A New Beginning: How Helio’s Story Shows the Power of Expert CDH Care
Helio’s story highlights the strength of one tiny fighter and the impact of expert CDH care. From diagnosis to recovery, his journey is filled with hope, resilience, and extraordinary medical support. See how far he’s come.
Prematurity Awareness Month: Supporting Families, Advancing Healthy Pregnancies
November is Prematurity Awareness Month, a time to raise awareness about preterm birth, honor the resilience of premature infants, and support families with educational resources for healthy pregnancies.
Turning a Frightening Pregnancy Diagnosis into a Lifeline for Families: Our Founders’ Story
A Joyful Beginning When Lonnie and Michelle Somers learned they were expecting twins, they were overjoyed — and full of hopes for their future as parents. But that excitement was soon overshadowed by a diagnosis of twin-to-twin transfusion syndrome (TTTS), a rare and...
UC Davis Surgeon Dr. Diana Farmer Honored for Groundbreaking Spina Bifida Research
Dr. Diana Farmer of UC Davis is pioneering new spina bifida treatments by combining fetal surgery with stem cell therapy in the groundbreaking CuRe Trial. Her work is transforming patient care and offering hope.












