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Briana Gray’s FNAIT Story of Triumph and Advocacy

Briana Gray’s FNAIT Story of Triumph and Advocacy

by Erika K Wolf | Mar 24, 2025 | Blogs, Condition, fetomaternal alloimmunization, front-page, News, Story, Uncategorized

Briana Gray’s journey to motherhood is marked with love, loss, and healing. After losing her son Elijah to FNAIT, she found strength through supportive care and determination. Now raising her sons Callum and Noah, Briana honors Elijah’s memory while embracing the joys of motherhood.

Thomas’s Heartfelt Journey: Overcoming HLHS with Lifesaving Care

Thomas’s Heartfelt Journey: Overcoming HLHS with Lifesaving Care

by Erika K Wolf | Mar 20, 2025 | Blogs, Condition, front-page, Hypoplastic Left Heart Syndrome, News, Story, Uncategorized

Sarah and Yaniv’s son, Thomas, was born with HLHS – hypoplastic left heart syndrome. Thanks to early intervention and expert care from CHOP, Thomas underwent life-saving surgeries and is now thriving as a toddler.

Ruthie’s Story: Baby with Down Syndrome Receives Life-Saving Care and Overcomes Challenges

Ruthie’s Story: Baby with Down Syndrome Receives Life-Saving Care and Overcomes Challenges

by Erika K Wolf | Mar 19, 2025 | Blogs, Condition, front-page, News, Story, Uncategorized

Ruthie, a baby with Down syndrome, received critical care at UC Davis Children’s Hospital after being diagnosed with a heart condition. With expert support and successful heart surgery, she overcame early challenges and is thriving. Her parents share their journey and encourage others to trust specialized care.

The Life-Changing Impact of Mental Health Care in the NICU

The Life-Changing Impact of Mental Health Care in the NICU

by Erika K Wolf | Mar 14, 2025 | Blogs, Condition, Esophageal Atresia with Tracheosphageal Fistula, front-page, News, Story

The mental health support provided in the NICU was essential for Collette & Alex as they navigated the emotional challenges of their daughter Austen’s critical care. The family-focused care at Stanford Children’s enabled them to manage stress, connect with other parents, and focus on both Austen’s healing.

Meet Rami: Checking off milestones after highly rare CCMS diagnosis

Meet Rami: Checking off milestones after highly rare CCMS diagnosis

by Erika K Wolf | Mar 6, 2025 | Blogs, Condition, front-page, News, Story, Uncategorized

Rami’s parents knew when he was still in utero that there was an issue with his jaw. Genetic testing after birth revealed an extremely rare diagnosis of CCMS, which affects the jaw, mouth, and ribs. Thanks to the compassionate, expert care at Cincinnati Children’s, Rami is almost 2 and keeping his parents on their toes!

What does the Fetal Health Foundation do?

What does the Fetal Health Foundation do?

by Erika K Wolf | Feb 14, 2025 | Blogs, front-page, News, Story, Uncategorized

At the Fetal Health Foundation, our mission is to connect patients with trusted treatment options and essential support resources. We collaborate with hospitals, fetal centers, and medical companies to amplify our impact. We strive to create a brighter, healthier future for mothers and babies!

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Fetal Syndrome Stories

  • Abdominal Wall Defect
  • Agenesis of the Corpus Callosum
  • Alloimmune Thrombocytopenia
  • Aortic Senosis
  • Bowel Obstruction
  • Cardiac Disease
  • Cleft Lip and Palate
  • Cloaca Exstrophy
  • Congenital Chylothorax
  • Congenital Cystic Adenomatoid Malformation
  • Congenital Diaphragmatic Hernia
  • Congenital Heart Disease/Defects
  • Conjoined Twins
  • Esophageal Atresia with Tracheosphageal Fistula
  • Fetal Cardiac Abnormalities
  • Fetal Chylothorax or Hydrothorax
  • Fetal Hydrops
  • Fetal Hypothyroidism/ Hyperthyroidism
  • Gastroschisis
  • Hemolytic Disease
  • Hydrocephalus/ Ventriculomegaly
  • Hypoplastic Left Heart Syndrome
  • Intrauterine Growth Restriction
  • Kidney, Bladder, and Genital Abnormalities
  • Lower Urinary Tract Obstruction
  • Meningocele
  • Myelomeningocele/Spina Bifida
  • Neurological Defects
  • Non-Immune Hydrops
  • Omphalocele
  • Pericardial Teratoma
  • Pleural Effusion (Hydrothorax)
  • Pleural Effusions
  • Pulmonary Agensis
  • Pulmonary Atresia with Intact Ventricle Septum
  • Pulmonary Sequestration
  • Rh Disease
  • Sacrococcygeal Teratoma
  • Selective Intrauterine Growth Restriction
  • Twin Reversed Arterial Perfusion Sequence
  • Twin-to-Twin Transfusion Syndrome
  • Ventriculomegaly
  • RESOURCES FOR SUPPORT

    Hope After Loss
    Now I Lay Me Down To Sleep
    Pregnancy After Loss Support (PALS)
    Society for Maternal and Fetal Medicine
    Still Mothers
    TAPS Support Foundation

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