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🍭 Why The Great Candy Run Is So Much More Than a Race

🍭 Why The Great Candy Run Is So Much More Than a Race

by Erika K Wolf | Sep 17, 2025 | Blogs, Condition, front-page, News, Story

The Great Candy Run is a sweet, family-friendly 5K that brings people together for fun, lasting memories—and most importantly, to support families facing fetal syndrome diagnoses.

Breakthrough in Hydrocephalus Care: Gene Therapy on the Horizon

Breakthrough in Hydrocephalus Care: Gene Therapy on the Horizon

by Erika K Wolf | Sep 8, 2025 | Blogs, Condition, front-page, Hydrocephalus/ Ventriculomegaly, News, Story

A groundbreaking gene therapy developed at UC Davis could change how hydrocephalus is treated in children—offering hope for safer, long-term care.

💙 Honoring NICU Families & Their First, Fiercest Journey

💙 Honoring NICU Families & Their First, Fiercest Journey

by Erika K Wolf | Sep 4, 2025 | Blogs, Condition, front-page, News, NICU, Story

Each year, 1 in 10 babies begins life in the NICU. This September, we recognize the strength of NICU families and the care teams who help them thrive.

Facing TTTS: Bridgette and Grace’s Story of Strength and Survival

Facing TTTS: Bridgette and Grace’s Story of Strength and Survival

by Erika K Wolf | Jul 21, 2025 | Blogs, Condition, front-page, News, Story, Twin-to-Twin Transfusion Syndrome

At 12 weeks, Jackie and Trevor received a frightening diagnosis: their unborn twins had twin-twin transfusion syndrome. With CHOP’s fetal care team, a complex surgery offered new hope—and today, their daughters are thriving.

Children’s Mercy Joins the FHF Partner Network

Children’s Mercy Joins the FHF Partner Network

by Erika K Wolf | Jul 8, 2025 | Blogs, Condition, front-page, News, Story

We’re proud to welcome Children’s Mercy Kansas City to the Fetal Health Foundation Partner Network. Their expert fetal care team is helping improve outcomes for babies diagnosed before birth.

Cord Blood Awareness: Stem Cells at Birth—A Powerful Choice for the Future!

Cord Blood Awareness: Stem Cells at Birth—A Powerful Choice for the Future!

by Erika K Wolf | Jul 3, 2025 | Blogs, Condition, Cord Blood Awareness, front-page, News, Story

Cord Blood Awareness Month is a time to spotlight the powerful, life-saving potential of stem cells found in cord blood—and why expectant parents should understand their options.

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Fetal Syndrome Stories

  • Abdominal Wall Defect
  • Agenesis of the Corpus Callosum
  • Alloimmune Thrombocytopenia
  • Aortic Senosis
  • Bowel Obstruction
  • Cardiac Disease
  • Cleft Lip and Palate
  • Cloaca Exstrophy
  • Congenital Chylothorax
  • Congenital Cystic Adenomatoid Malformation
  • Congenital Diaphragmatic Hernia
  • Congenital Heart Disease/Defects
  • Conjoined Twins
  • Esophageal Atresia with Tracheosphageal Fistula
  • Fetal Cardiac Abnormalities
  • Fetal Chylothorax or Hydrothorax
  • Fetal Hydrops
  • Fetal Hypothyroidism/ Hyperthyroidism
  • Gastroschisis
  • Hemolytic Disease
  • Hydrocephalus/ Ventriculomegaly
  • Hypoplastic Left Heart Syndrome
  • Intrauterine Growth Restriction
  • Kidney, Bladder, and Genital Abnormalities
  • Lower Urinary Tract Obstruction
  • Meningocele
  • Myelomeningocele/Spina Bifida
  • Neurological Defects
  • Non-Immune Hydrops
  • Omphalocele
  • Pericardial Teratoma
  • Pleural Effusion (Hydrothorax)
  • Pleural Effusions
  • Pulmonary Agensis
  • Pulmonary Atresia with Intact Ventricle Septum
  • Pulmonary Sequestration
  • Rh Disease
  • Sacrococcygeal Teratoma
  • Selective Intrauterine Growth Restriction
  • Twin Reversed Arterial Perfusion Sequence
  • Twin-to-Twin Transfusion Syndrome
  • Ventriculomegaly
  • What It Was Like For Our Family

    Stories of Fetal Diagnosis and Treatment

    Fetomaternal Alloimmunization: Alexandra’s Story

    Fetoscopic MMC (Spina Bifida) Repair: One Family’s Journey

    Spina Bifida Stories

    TTTS Stories

    Maternal Fetal Medicine and Fetal Syndromes: The Basics for Expectant Parents

    Rose’s Prenatal Spina Bifida Story

    Make a Donation

    Expert Voices

    Insight from Professionals

    Gastroschisis and the search for better, earlier interventions with Dr. Geoanna Bautista

    Q & A with a Trailblazer: Dr. Scott Adzick at CHOP

    Dr. Chmait Performs Minimally-Invasive Fetoscopic Surgery for Spina Bifida

    Our Medical Board of Directors

     

    Who We Are

    A Parent-Founded Nonprofit

    What We Do: Our Annual Impact Report

    Renny and Benny’s Story

    Our Founders Story: The Somers Family

    Learn about our Flagship Fundraiser, The Great Candy Run

    Contact Our Staff

     

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    9786 South Holland St.

    Littleton, CO 80127

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