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Home at Last: Parker Overcomes a Life-Threatening CDH Diagnosis

Home at Last: Parker Overcomes a Life-Threatening CDH Diagnosis

by Michelle Somers | Apr 29, 2021 | Blogs, Congenital Diaphragmatic Hernia, front-page, News

We love a follow up CDH story with a happy ending! Our Friends Steward Partner, Children’s Hospital of Philadelphia, graciously agreed to let us share the story of Parker, a…

Advocacy from Anguish: Bethany Weathersby’s Story

Advocacy from Anguish: Bethany Weathersby’s Story

by Michelle Somers | Dec 14, 2021 | Blogs, fetomaternal alloimmunization, front-page, HDFN, News, Story

How a mother’s struggle with a rare condition, fetomaternal alloimmunization, drove her to advocate for proper care in her future pregnancies and for other mothers in need. Bethany Weathersby had…

The McGrew Family Story: When Your Baby Has FNAIT

The McGrew Family Story: When Your Baby Has FNAIT

by Erika K Wolf | Nov 26, 2024 | Alloimmune Thrombocytopenia, Blogs, Condition, fetomaternal alloimmunization, front-page, News, Story, Uncategorized

👣 When Alicia McGrew gave birth to her first child more than a decade ago, the doctor said her son was “perfect.” ❤️ But soon, tiny red dots developed on…

Thaddeus’s Story: Beyond Open Fetal Surgery, A Spina Bifida Success

Thaddeus’s Story: Beyond Open Fetal Surgery, A Spina Bifida Success

by Erika K Wolf | Dec 3, 2024 | Blogs, Condition, front-page, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story, Uncategorized

Ester and Samuel welcomed their first child, Rebecca, in 2022. She was born healthy after Ester had her cervix temporarily stitched closed (cervical cerclage) to prevent premature birth. Just a…

Josiah’s Story: Innovative Technology Treats Fetal Renal Failure

Josiah’s Story: Innovative Technology Treats Fetal Renal Failure

by Erika K Wolf | Dec 16, 2024 | Blogs, Fetal Chylothorax or Hydrothorax, front-page, Grant Winner, News, Story, Ultrasound images, Uncategorized

Narina and Chris remember when fetal renal failure first showed up: as an ominous black dot on the ultrasound. Narina remembers sitting in the lobby of her Seattle obstetrician (OB)…

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What It Was Like For Our Family

Stories of Fetal Diagnosis and Treatment

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Fetomaternal Alloimmunization: Alexandra’s Story

Fetoscopic MMC (Spina Bifida) Repair: One Family’s Journey

Spina Bifida Stories

TTTS Stories

Maternal Fetal Medicine and Fetal Syndromes: The Basics for Expectant Parents

Rose’s Prenatal Spina Bifida Story

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Expert Voices

Insight from Professionals

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Gastroschisis and the search for better, earlier interventions with Dr. Geoanna Bautista

Q & A with a Trailblazer: Dr. Scott Adzick at CHOP

Dr. Chmait Performs Minimally-Invasive Fetoscopic Surgery for Spina Bifida

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Who We Are

A Parent-Founded Nonprofit

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What We Do: Our Annual Impact Report

Our Founders Story: The Somers Family

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