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Rose’s Story: Prenatal Spina Bifida Diagnosis

Rose’s Story: Prenatal Spina Bifida Diagnosis

by Erika K Wolf | Dec 11, 2025 | Blogs, Condition, Fetal Hydrops, front-page, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story

When Taylor and James learned their baby, Rose, had spina bifida, their world shifted overnight. From high-risk pregnancy care to in-utero surgery at Children’s Mercy, their story of hope, resilience, and the power of compassionate medical support unfolded.

Inés’ Journey: Life After TRAP Sequence and the Loss of Her Twin

Inés’ Journey: Life After TRAP Sequence and the Loss of Her Twin

by Erika K Wolf | Dec 8, 2025 | Blogs, Condition, front-page, News, Story, Twin Reversed Arterial Perfusion Sequence

Diagnosed with TRAP sequence, Inés’ survival came after her twin’s loss, meticulous fetal monitoring, and the expert care at CHOP. Explore the pivotal moments and life-saving decisions that shaped her remarkable beginning.

From Diagnosis to Toddlers: A Family’s Journey Beyond TTTS

From Diagnosis to Toddlers: A Family’s Journey Beyond TTTS

by Erika K Wolf | Dec 1, 2025 | Blogs, Condition, front-page, News, Twin-to-Twin Transfusion Syndrome

Life at home with Kaelyn’s twins is lively, loud, and full of surprises, especially after their early diagnosis with twin-twin transfusion syndrome (TTTS). Ben keeps everyone laughing with playful antics while Renny clings to mom as she juggles snacks and toddler...
UC Davis Surgeon Dr. Diana Farmer Honored for Groundbreaking Spina Bifida Research

UC Davis Surgeon Dr. Diana Farmer Honored for Groundbreaking Spina Bifida Research

by Erika K Wolf | Oct 9, 2025 | Blogs, Condition, front-page, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story

Dr. Diana Farmer of UC Davis is pioneering new spina bifida treatments by combining fetal surgery with stem cell therapy in the groundbreaking CuRe Trial. Her work is transforming patient care and offering hope.

Q & A with a Trailblazer: Dr. Scott Adzick at CHOP

Q & A with a Trailblazer: Dr. Scott Adzick at CHOP

by Erika K Wolf | Jan 9, 2025 | Blogs, Condition, Fetal medicine, Fetal surgery, front-page, News, Story, Uncategorized

The field of fetal diagnosis and treatment is continually evolving. Hear from Dr. Scott Adzick, one of the foremost trailblazers in the specialty, about groundbreaking advancements he helped pioneer. Learn why he believes it’s an obligation of the field to conduct research to offer hope and health.

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Treatment Centers

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What It Was Like For Our Family

Stories of Fetal Diagnosis and Treatment

Fetomaternal Alloimmunization: Alexandra’s Story

Fetoscopic MMC (Spina Bifida) Repair: One Family’s Journey

Spina Bifida Stories

TTTS Stories

Maternal Fetal Medicine and Fetal Syndromes: The Basics for Expectant Parents

Rose’s Prenatal Spina Bifida Story

Make a Donation

Expert Voices

Insight from Professionals

Gastroschisis and the search for better, earlier interventions with Dr. Geoanna Bautista

Q & A with a Trailblazer: Dr. Scott Adzick at CHOP

Dr. Chmait Performs Minimally-Invasive Fetoscopic Surgery for Spina Bifida

Our Medical Board of Directors

 

Who We Are

A Parent-Founded Nonprofit

What We Do: Our Annual Impact Report

Renny and Benny’s Story

Our Founders Story: The Somers Family

Learn about our Flagship Fundraiser, The Great Candy Run

Contact Our Staff

 

980-224-0398
9786 South Holland St.

Littleton, CO 80127

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