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The impact of fetal surgery for spina bifida and hydrocephalus: a patient’s perspective

The impact of fetal surgery for spina bifida and hydrocephalus: a patient’s perspective

by Erika K Wolf | Oct 26, 2024 | Blogs, Condition, Congenital Diaphragmatic Hernia, front-page, Hydrocephalus/ Ventriculomegaly, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story, Uncategorized

5-minute read

A young mom is faced with life or death decisions soon after learning her son’s diagnosis of spina bifida and hydrocephalus. She tells us her heartwarming story.

UC Davis CuRe trial awarded $15 million to support clinical trial testing stem cell treatment for spina bifida

UC Davis CuRe trial awarded $15 million to support clinical trial testing stem cell treatment for spina bifida

by Erika K Wolf | Oct 21, 2024 | Blogs, Condition, front-page, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story

4-minute read

Researchers at UC Davis Health are continuing to Phase 2 of a clinical trial for in utero surgery that uses stem cells to repair spina bifida defect, offering potential better outcomes.

Cincinnati Children’s Reaches New Milestone for Improving Outcomes in Babies with Spina Bifida

Cincinnati Children’s Reaches New Milestone for Improving Outcomes in Babies with Spina Bifida

by Fetal Health Foundation | Jul 6, 2021 | Blogs, front-page, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story

Cincinnati Children’s, a national leader in prenatal myelomeningocele surgery, recently conducted their 100th prenatal surgical repair. Kelly Song’s daughter was diagnosed with spina bifida at 20 weeks. Read more:

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Treatment Centers

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What It Was Like For Our Family

Stories of Fetal Diagnosis and Treatment

Fetomaternal Alloimmunization: Alexandra’s Story

Fetoscopic MMC (Spina Bifida) Repair: One Family’s Journey

Spina Bifida Stories

TTTS Stories

Maternal Fetal Medicine and Fetal Syndromes: The Basics for Expectant Parents

Rose’s Prenatal Spina Bifida Story

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Expert Voices

Insight from Professionals

Gastroschisis and the search for better, earlier interventions with Dr. Geoanna Bautista

Q & A with a Trailblazer: Dr. Scott Adzick at CHOP

Dr. Chmait Performs Minimally-Invasive Fetoscopic Surgery for Spina Bifida

Our Medical Board of Directors

 

Who We Are

A Parent-Founded Nonprofit

What We Do: Our Annual Impact Report

Renny and Benny’s Story

Our Founders Story: The Somers Family

Learn about our Flagship Fundraiser, The Great Candy Run

Contact Our Staff

 

980-224-0398
9786 South Holland St.

Littleton, CO 80127

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