What is Compassionate Delivery?
In a compassionate delivery plan, parents may choose to baptize, sing, read, or simply sit quietly. There is no single right way. The guiding principle is simply: the baby’s life, no matter how brief, is honored fully.
8 Phrases to Avoid Saying When a New Baby Arrives with Challenges + Compassionate Words to Say Instead
When trying to support the family, remember that even well-intended words can unintentionally minimize or oversimplify their circumstances. Words can place emotional weight on parents who are already carrying a great deal. Families are adjusting in real time to new terminology, new routines, and sometimes an entirely new vision of parenthood. The family is not only caring for a child, but they are also adjusting to the new realities of their changed world.
What is folic acid and why is it important?
Pregnancy can feel uncertain, but taking a daily prenatal vitamin with folic acid, ideally before conception, is a simple step that has been proven to help protect the developing brain and spine. While it cannot prevent all birth defects, it provides meaningful support during one of the most critical stages of development.
Parents: What Is Genetic Testing and Is It Right for Me?
For many hopeful parents, the idea of genetic testing is a new and unfamiliar experience. Genetic tests can sometimes identify changes that may increase the chance of a baby being born with certain health conditions.
20 Years of Advancing Fetal Health
The Fetal Health Foundation marks its 20th anniversary, celebrating two decades of progress in fetal care, family support, and global awareness for fetal health conditions.
White Paper – Recommendations for Facility Design Guidelines – Fetal Care Center
Fetal Health Foundation's Fetal Therapy Think Tank has authored a new white paper establishing environmental and spatial guidelines for the design of fetal care centers. “Recommendations for Facility Design Guidelines – Fetal Care Center” is available through FGI, the...
Mozarc Medical Partners with FHF in Shared Commitment to Pediatric Renal Care
Mozarc Medical, a leader in pediatric dialysis innovation, has partnered with Fetal Health Foundation. FHF supports Mozarc’s advanced renal technologies and is proud to help expand awareness of their impact in fetal and pediatric care.
What Mental Health Really Means for NICU Families | Inside the NICU Part 3 | More than Nine Podcast and Transcript
At the NICU, these providers are medically supporting the babies, but they are also seeing the emotional strain on families. They don’t have the capacity or skillset to really support them in the way that they always need- that’s where this program comes in.
Farrah’s Story: When a Rare Mediastinal Teratoma Met Perfect Timing
Farrah’s mediastinal teratoma fetal care story is about timing—how the right care, in the right place, at the right moment changed everything for her and her family at Children’s Mercy.
6 Ways the Fetal Health Foundation Supports Families and the Fetal Health Community
Families facing a fetal health diagnosis often find themselves navigating unfamiliar medical terms, urgent decisions, and intense emotional stress, all at once. The Fetal Health Foundation strives to make that journey more informed, connected, and supported. Guided by...
2025 Impact Report: Advancing Fetal Health Through Partnership and Community
The 2025 Impact Report tells the story of what’s possible when families, providers, and supporters move forward together—advancing fetal care through connection, collaboration, and shared purpose.
Facing an Omphalocele Diagnosis: One Family’s Journey to CHOP’s Specialized Care
When Addie and Ryan received a prenatal diagnosis of omphalocele, they were referred to CHOP for specialized fetal and neonatal care. From a highly coordinated birth to weeks in the NICU, their journey reflects the complexity of this rare birth defect.
Caring for Complex Fetal and Pregnancy Conditions: Expert Insights from Stanford Children’s Health
Stanford Children’s Health offers expert, coordinated care for complex fetal and pregnancy conditions. Discover how multidisciplinary teams support families from diagnosis through delivery and beyond.
Shining a Light on Birth Defects Awareness
January is Birth Defects Awareness and Prevention Month—a time to raise awareness, support families navigating unexpected fetal health challenges, and highlight the importance of early care, prevention, and compassionate resources. Learn how knowledge and community can make a difference for families.
Q&A with Dr. Jena Miller: Charting New Frontiers in Fetal Medicine at CHOP
In January 2026, Dr. Jena Miller joined CHOP as Co-Director of the Richard D. Wood Jr. Center for Fetal Diagnosis and Treatment. With over a decade at Johns Hopkins, she brings expertise in minimally invasive fetal procedures, spina bifida, and TTTS. Read her Q&A on advancing fetal medicine and supporting families.
Rose’s Story: Prenatal Spina Bifida Diagnosis
When Taylor and James learned their baby, Rose, had spina bifida, their world shifted overnight. From high-risk pregnancy care to in-utero surgery at Children’s Mercy, their story of hope, resilience, and the power of compassionate medical support unfolded.
Inés’ Journey: Life After TRAP Sequence and the Loss of Her Twin
Diagnosed with TRAP sequence, Inés’ survival came after her twin’s loss, meticulous fetal monitoring, and the expert care at CHOP. Explore the pivotal moments and life-saving decisions that shaped her remarkable beginning.
A Fragile Start, a Fierce Future: Nora and Hattie’s sIUGR Story
Hattie and Nora faced sIUGR in the womb, a rare condition that threatened their lives. Years later, they continue to thrive, a testament to expert care at CHOP, resilience, and their extraordinary early journey.
From Diagnosis to Toddlers: A Family’s Journey Beyond TTTS
Life at home with Kaelyn’s twins is lively, loud, and full of surprises, especially after their early diagnosis with twin-twin transfusion syndrome (TTTS). Ben keeps everyone laughing with playful antics while Renny clings to mom as she juggles snacks and toddler...
A New Beginning: How Helio’s Story Shows the Power of Expert CDH Care
Helio’s story highlights the strength of one tiny fighter and the impact of expert CDH care. From diagnosis to recovery, his journey is filled with hope, resilience, and extraordinary medical support. See how far he’s come.
Prematurity Awareness Month: Supporting Families, Advancing Healthy Pregnancies
November is Prematurity Awareness Month, a time to raise awareness about preterm birth, honor the resilience of premature infants, and support families with educational resources for healthy pregnancies.
Turning a Frightening Pregnancy Diagnosis into a Lifeline for Families: Our Founders’ Story
A Joyful Beginning When Lonnie and Michelle Somers learned they were expecting twins, they were overjoyed — and full of hopes for their future as parents. But that excitement was soon overshadowed by a diagnosis of twin-to-twin transfusion syndrome (TTTS), a rare and...
UC Davis Surgeon Dr. Diana Farmer Honored for Groundbreaking Spina Bifida Research
Dr. Diana Farmer of UC Davis is pioneering new spina bifida treatments by combining fetal surgery with stem cell therapy in the groundbreaking CuRe Trial. Her work is transforming patient care and offering hope.
Help Shape the Future of Fetal Care Centers: We Need Your Feedback
Have you or your partner received care at a fetal care center? The Fetal Therapy Think Tank is developing national recommendations for how these spaces are designed — and your feedback can help. Take a short, 8-question survey by Oct. 28 to share your insights and help improve fetal care center design for future families.
Honor Your Baby This Pregnancy & Infant Loss Awareness Month
October marks a special time to honor the babies we carry in our hearts. Contributing writer Faith Dulany from CarryMe Health shares heartfelt insights from her personal journey, offering hope and healing through meaningful rituals.