During Alysha’s 23rd week of pregnancy, their unborn daughter was diagnosed with a rare tumor growing on her heart. Fewer than one in a million babies develop this type of tumor – called a fetal pericardial teratoma – which often results in death.
Michelle Somers
Encouraging an Early Love of Real Food
By 15 months, babies eat 6½ teaspoons of added sugars per day, mainly from fruit drinks, soda, cookies, sweetened yogurt and ready-eat-cereals, which are introduced into the diet as early as 9 months. What it means: To put that into perspective, an 8-ounce cup of cola has about 6 ½ teaspoons of sugar. So, babies are eating as much sugar in a day as what you’ll find in an entire cup of soda!
Mother’s Mental Health: Caring for Yourself After a Difficult Pregnancy Diagnosis
By: Kylee Bennett Nearly 120,000 infants are born with congenital defects each year, and they don't always go on to live happy lives. If you’ve received a difficult fetal syndrome diagnosis, you’re certainly not alone. During this challenging time, it can be easy to...
Curing Spina Bifida
Growing up in the 1960’s, Dr. Diana Farmer’s mother taught Sunday school for disabled children where she first met children who had spina bifida.
“It was a really crummy disease,” Farmer said. Dr. Farmer is now leading innovative research, which holds promise of saving lives and lifetimes.
VIDEO: Fetal Surgery to Treat Paralysis Associated with Spina Bifida
In the video she discusses the improvements that resulted from the initial fetal surgeries, including a reduction in the need for shunts. She now believes that with the latest breakthroughs involving fetal surgery and stem cells that the paralysis associated with spina bifida will be cured in her lifetime.
Everett’s Update: Flourishing After Fetoscopic Surgery
Most mothers would probably tell their child to sit down and stop standing on the chair in the middle of their family photography session. But when you’re told your son will never walk and he mischievously climbs onto a chair with no help and stands there, posing for the camera … well, you let him do it.
When You Need To Start Baby Proofing
Your question should not be whether or not your child will find hazards in the home, but how soon and where will they find them. 2,700 children die from preventable injuries each year, and the majority of preventable injuries occur in the home. 120,000 children are permanently disabled from these preventable injuries. Learn the habits you should adopt to keep your children safe.
What a Difference a Year Can Make
This time last year, I was taking a pregnancy test. Today, I’m the mother of a healthy four month-old little boy who loves to smile and kick his legs like crazy.
My Son’s First Surgery for Spina Bifida
Johnna Kerres tells her story of the surgery she and her son underwent before he was born. The fetoscopic surgery contributed to medical research.
Preeclampsia and How It Snuck Into My Pregnancy
After a dangerous experience, mom Paula Yost Schupp encourages all pregnant women to be familiar with the signs of preeclampsia, even if they, like her, seem to have no initial risk factors. She tells her story of how she was diagnosed, and what happened as a result.
The Worst News Becomes A Beautiful, Life-Changing Moment
Logan’s story is so much bigger than his diagnosis. To fully understand you have to know I had a stillborn baby named Andrew 12 years before I had Logan. Andrew had the same diagnosis as Logan. I can never forget the day I knew something was wrong with Logan. We went...
Research Grant Awardee: Understanding the Underlying Causes of Hydrops
The Fetal Health Foundation Awarded the 2018 Research grant to Dr. Teresa Sparks and team at the University of California, San Francisco. They are working to understand the underlying causes of Hydrops.












