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Breakthrough in Hydrocephalus Care: Gene Therapy on the Horizon

Breakthrough in Hydrocephalus Care: Gene Therapy on the Horizon

by Erika K Wolf | Sep 8, 2025 | Blogs, Condition, front-page, Hydrocephalus/ Ventriculomegaly, News, Story

A groundbreaking gene therapy developed at UC Davis could change how hydrocephalus is treated in children—offering hope for safer, long-term care.

The impact of fetal surgery for spina bifida and hydrocephalus: a patient’s perspective

The impact of fetal surgery for spina bifida and hydrocephalus: a patient’s perspective

by Erika K Wolf | Oct 26, 2024 | Blogs, Condition, Congenital Diaphragmatic Hernia, front-page, Hydrocephalus/ Ventriculomegaly, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story, Uncategorized

5-minute read

A young mom is faced with life or death decisions soon after learning her son’s diagnosis of spina bifida and hydrocephalus. She tells us her heartwarming story.

The Worst News Becomes A Beautiful, Life-Changing Moment

The Worst News Becomes A Beautiful, Life-Changing Moment

by Fetal Health Foundation | Apr 29, 2019 | front-page, Hydrocephalus/ Ventriculomegaly, Story, Ventriculomegaly

Logan’s story is so much bigger than his diagnosis. To fully understand you have to know I had a stillborn baby named Andrew 12 years before I had Logan. Andrew had the same diagnosis as Logan. I can never forget the day I knew something was wrong with Logan. We went...
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Fetal Syndrome Stories

  • Abdominal Wall Defect
  • Agenesis of the Corpus Callosum
  • Alloimmune Thrombocytopenia
  • Aortic Senosis
  • Bowel Obstruction
  • Cardiac Disease
  • Cleft Lip and Palate
  • Cloaca Exstrophy
  • Congenital Chylothorax
  • Congenital Cystic Adenomatoid Malformation
  • Congenital Diaphragmatic Hernia
  • Congenital Heart Disease/Defects
  • Conjoined Twins
  • Esophageal Atresia with Tracheosphageal Fistula
  • Fetal Cardiac Abnormalities
  • Fetal Chylothorax or Hydrothorax
  • Fetal Hydrops
  • Fetal Hypothyroidism/ Hyperthyroidism
  • Gastroschisis
  • Hemolytic Disease
  • Hydrocephalus/ Ventriculomegaly
  • Hypoplastic Left Heart Syndrome
  • Intrauterine Growth Restriction
  • Kidney, Bladder, and Genital Abnormalities
  • Lower Urinary Tract Obstruction
  • Meningocele
  • Myelomeningocele/Spina Bifida
  • Neurological Defects
  • Non-Immune Hydrops
  • Omphalocele
  • Pericardial Teratoma
  • Pleural Effusion (Hydrothorax)
  • Pleural Effusions
  • Pulmonary Agensis
  • Pulmonary Atresia with Intact Ventricle Septum
  • Pulmonary Sequestration
  • Rh Disease
  • Sacrococcygeal Teratoma
  • Selective Intrauterine Growth Restriction
  • Twin Reversed Arterial Perfusion Sequence
  • Twin-to-Twin Transfusion Syndrome
  • Ventriculomegaly
  • What It Was Like For Our Family

    Stories of Fetal Diagnosis and Treatment

    Fetomaternal Alloimmunization: Alexandra’s Story

    Fetoscopic MMC (Spina Bifida) Repair: One Family’s Journey

    Spina Bifida Stories

    TTTS Stories

    Maternal Fetal Medicine and Fetal Syndromes: The Basics for Expectant Parents

    Rose’s Prenatal Spina Bifida Story

    Make a Donation

    Expert Voices

    Insight from Professionals

    Gastroschisis and the search for better, earlier interventions with Dr. Geoanna Bautista

    Q & A with a Trailblazer: Dr. Scott Adzick at CHOP

    Dr. Chmait Performs Minimally-Invasive Fetoscopic Surgery for Spina Bifida

    Our Medical Board of Directors

     

    Who We Are

    A Parent-Founded Nonprofit

    What We Do: Our Annual Impact Report

    Renny and Benny’s Story

    Our Founders Story: The Somers Family

    Learn about our Flagship Fundraiser, The Great Candy Run

    Contact Our Staff

     

    980-224-0398
    9786 South Holland St.

    Littleton, CO 80127

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