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White Paper – Recommendations for Facility Design Guidelines – Fetal Care Center

White Paper – Recommendations for Facility Design Guidelines – Fetal Care Center

by Erika K Wolf | Mar 3, 2026 | Blogs, Fetal medicine, front-page, High-risk pregnancy, News, Resource News, Story

Fetal Health Foundation’s Fetal Therapy Think Tank has authored a new white paper establishing environmental and spatial guidelines for the design of fetal care centers. “Recommendations for Facility Design Guidelines – Fetal Care Center” is available through...
Mozarc Medical  Partners with FHF in Shared Commitment to Pediatric Renal Care

Mozarc Medical Partners with FHF in Shared Commitment to Pediatric Renal Care

by Erika K Wolf | Mar 2, 2026 | Blogs, Condition, Fetal Renal Failure, front-page, Kidney, Bladder, and Genital Abnormalities, News, Story

Mozarc Medical, a leader in pediatric dialysis innovation, has partnered with Fetal Health Foundation. FHF supports Mozarc’s advanced renal technologies and is proud to help expand awareness of their impact in fetal and pediatric care.

Farrah’s Story: When a Rare Mediastinal Teratoma Met Perfect Timing

Farrah’s Story: When a Rare Mediastinal Teratoma Met Perfect Timing

by Erika K Wolf | Feb 18, 2026 | Blogs, Condition, front-page, Mediastinal Teratoma, News, Story

Farrah’s mediastinal teratoma fetal care story is about timing—how the right care, in the right place, at the right moment changed everything for her and her family at Children’s Mercy.

2025 Impact Report: Advancing Fetal Health Through Partnership and Community

2025 Impact Report: Advancing Fetal Health Through Partnership and Community

by Erika K Wolf | Feb 4, 2026 | Blogs, Condition, front-page, News, Story

The 2025 Impact Report tells the story of what’s possible when families, providers, and supporters move forward together—advancing fetal care through connection, collaboration, and shared purpose.

Facing an Omphalocele Diagnosis: One Family’s Journey to CHOP’s Specialized Care

Facing an Omphalocele Diagnosis: One Family’s Journey to CHOP’s Specialized Care

by Erika K Wolf | Jan 27, 2026 | Blogs, Condition, front-page, News, Omphalocele, Story

When Addie and Ryan received a prenatal diagnosis of omphalocele, they were referred to CHOP for specialized fetal and neonatal care. From a highly coordinated birth to weeks in the NICU, their journey reflects the complexity of this rare birth defect.

Caring for Complex Fetal and Pregnancy Conditions: Expert Insights from Stanford Children’s Health

Caring for Complex Fetal and Pregnancy Conditions: Expert Insights from Stanford Children’s Health

by Erika K Wolf | Jan 19, 2026 | Blogs, Condition, Fetal medicine, front-page, High-risk pregnancy, News, NICU, Story

Stanford Children’s Health offers expert, coordinated care for complex fetal and pregnancy conditions. Discover how multidisciplinary teams support families from diagnosis through delivery and beyond.

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Fetal Syndrome Stories

  • Abdominal Wall Defect
  • Agenesis of the Corpus Callosum
  • Alloimmune Thrombocytopenia
  • Aortic Senosis
  • Bowel Obstruction
  • Cardiac Disease
  • Cleft Lip and Palate
  • Cloaca Exstrophy
  • Congenital Chylothorax
  • Congenital Cystic Adenomatoid Malformation
  • Congenital Diaphragmatic Hernia
  • Congenital Heart Disease/Defects
  • Conjoined Twins
  • Esophageal Atresia with Tracheosphageal Fistula
  • Fetal Cardiac Abnormalities
  • Fetal Chylothorax or Hydrothorax
  • Fetal Hydrops
  • Fetal Hypothyroidism/ Hyperthyroidism
  • Gastroschisis
  • Hemolytic Disease
  • Hydrocephalus/ Ventriculomegaly
  • Hypoplastic Left Heart Syndrome
  • Intrauterine Growth Restriction
  • Kidney, Bladder, and Genital Abnormalities
  • Lower Urinary Tract Obstruction
  • Mediastinal Teratoma
  • Meningocele
  • Myelomeningocele/Spina Bifida
  • Neurological Defects
  • Non-Immune Hydrops
  • Omphalocele
  • Pericardial Teratoma
  • Pleural Effusion (Hydrothorax)
  • Pleural Effusions
  • Pulmonary Agensis
  • Pulmonary Atresia with Intact Ventricle Septum
  • Pulmonary Sequestration
  • Rh Disease
  • Sacrococcygeal Teratoma
  • Selective Intrauterine Growth Restriction
  • Twin Reversed Arterial Perfusion Sequence
  • Twin-to-Twin Transfusion Syndrome
  • Ventriculomegaly
  • What It Was Like For Our Family

    Stories of Fetal Diagnosis and Treatment

    Fetomaternal Alloimmunization: Alexandra’s Story

    Fetoscopic MMC (Spina Bifida) Repair: One Family’s Journey

    Spina Bifida Stories

    TTTS Stories

    Maternal Fetal Medicine and Fetal Syndromes: The Basics for Expectant Parents

    Rose’s Prenatal Spina Bifida Story

    Make a Donation

    Expert Voices

    Insight from Professionals

    Gastroschisis and the search for better, earlier interventions with Dr. Geoanna Bautista

    Q & A with a Trailblazer: Dr. Scott Adzick at CHOP

    Dr. Chmait Performs Minimally-Invasive Fetoscopic Surgery for Spina Bifida

    Our Medical Board of Directors

     

    Who We Are

    A Parent-Founded Nonprofit

    What We Do: Our Annual Impact Report

    Renny and Benny’s Story

    Our Founders Story: The Somers Family

    Learn about our Flagship Fundraiser, The Great Candy Run

    Contact Our Staff

     

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