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UC Davis Surgeon Dr. Diana Farmer Honored for Groundbreaking Spina Bifida Research

UC Davis Surgeon Dr. Diana Farmer Honored for Groundbreaking Spina Bifida Research

by Erika K Wolf | Oct 9, 2025 | Blogs, Condition, front-page, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story

Dr. Diana Farmer of UC Davis is pioneering new spina bifida treatments by combining fetal surgery with stem cell therapy in the groundbreaking CuRe Trial. Her work is transforming patient care and offering hope.

Help Shape the Future of Fetal Care Centers: We Need Your Feedback

Help Shape the Future of Fetal Care Centers: We Need Your Feedback

by Erika K Wolf | Oct 7, 2025 | Blogs, front-page, News, Story

Have you or your partner received care at a fetal care center? The Fetal Therapy Think Tank is developing national recommendations for how these spaces are designed — and your feedback can help. Take a short, 8-question survey by Oct. 28 to share your insights and help improve fetal care center design for future families.

Honor Your Baby This Pregnancy & Infant Loss Awareness Month

Honor Your Baby This Pregnancy & Infant Loss Awareness Month

by Erika K Wolf | Sep 30, 2025 | Blogs, Condition, front-page, News, Story

October marks a special time to honor the babies we carry in our hearts. Contributing writer Faith Dulany from CarryMe Health shares heartfelt insights from her personal journey, offering hope and healing through meaningful rituals.

🍭 Why The Great Candy Run Is So Much More Than a Race

🍭 Why The Great Candy Run Is So Much More Than a Race

by Erika K Wolf | Sep 17, 2025 | Blogs, Condition, front-page, News, Story

The Great Candy Run is a sweet, family-friendly 5K that brings people together for fun, lasting memories—and most importantly, to support families facing fetal syndrome diagnoses.

Breakthrough in Hydrocephalus Care: Gene Therapy on the Horizon

Breakthrough in Hydrocephalus Care: Gene Therapy on the Horizon

by Erika K Wolf | Sep 8, 2025 | Blogs, Condition, front-page, Hydrocephalus/ Ventriculomegaly, News, Story

A groundbreaking gene therapy developed at UC Davis could change how hydrocephalus is treated in children—offering hope for safer, long-term care.

💙 Honoring NICU Families & Their First, Fiercest Journey

💙 Honoring NICU Families & Their First, Fiercest Journey

by Erika K Wolf | Sep 4, 2025 | Blogs, Condition, front-page, News, NICU, Story

Each year, 1 in 10 babies begins life in the NICU. This September, we recognize the strength of NICU families and the care teams who help them thrive.

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Fetal Syndrome Stories

  • Abdominal Wall Defect
  • Agenesis of the Corpus Callosum
  • Alloimmune Thrombocytopenia
  • Aortic Senosis
  • Bowel Obstruction
  • Cardiac Disease
  • Cleft Lip and Palate
  • Cloaca Exstrophy
  • Congenital Chylothorax
  • Congenital Cystic Adenomatoid Malformation
  • Congenital Diaphragmatic Hernia
  • Congenital Heart Disease/Defects
  • Conjoined Twins
  • Esophageal Atresia with Tracheosphageal Fistula
  • Fetal Cardiac Abnormalities
  • Fetal Chylothorax or Hydrothorax
  • Fetal Hydrops
  • Fetal Hypothyroidism/ Hyperthyroidism
  • Gastroschisis
  • Hemolytic Disease
  • Hydrocephalus/ Ventriculomegaly
  • Hypoplastic Left Heart Syndrome
  • Intrauterine Growth Restriction
  • Kidney, Bladder, and Genital Abnormalities
  • Lower Urinary Tract Obstruction
  • Meningocele
  • Myelomeningocele/Spina Bifida
  • Neurological Defects
  • Non-Immune Hydrops
  • Omphalocele
  • Pericardial Teratoma
  • Pleural Effusion (Hydrothorax)
  • Pleural Effusions
  • Pulmonary Agensis
  • Pulmonary Atresia with Intact Ventricle Septum
  • Pulmonary Sequestration
  • Rh Disease
  • Sacrococcygeal Teratoma
  • Selective Intrauterine Growth Restriction
  • Twin Reversed Arterial Perfusion Sequence
  • Twin-to-Twin Transfusion Syndrome
  • Ventriculomegaly
  • What It Was Like For Our Family

    Stories of Fetal Diagnosis and Treatment

    Fetomaternal Alloimmunization: Alexandra’s Story

    Fetoscopic MMC (Spina Bifida) Repair: One Family’s Journey

    Spina Bifida Stories

    TTTS Stories

    Maternal Fetal Medicine and Fetal Syndromes: The Basics for Expectant Parents

    Rose’s Prenatal Spina Bifida Story

    Make a Donation

    Expert Voices

    Insight from Professionals

    Gastroschisis and the search for better, earlier interventions with Dr. Geoanna Bautista

    Q & A with a Trailblazer: Dr. Scott Adzick at CHOP

    Dr. Chmait Performs Minimally-Invasive Fetoscopic Surgery for Spina Bifida

    Our Medical Board of Directors

     

    Who We Are

    A Parent-Founded Nonprofit

    What We Do: Our Annual Impact Report

    Renny and Benny’s Story

    Our Founders Story: The Somers Family

    Learn about our Flagship Fundraiser, The Great Candy Run

    Contact Our Staff

     

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    Littleton, CO 80127

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