Joshlynn’s Journey with Severe Bronchopulmonary Dysplasia: From 26 Weeks to a New Beginning
Born at just 26 weeks, Joshlynn faced severe bronchopulmonary dysplasia and a critical battle for her health. With ECMO, surgery and specialized care, her journey took an extraordinary turn.
Parents Needed for Study on Genetic Diagnosis During Pregnancy
Parents who received a genetic diagnosis during pregnancy in the past 2 years are invited to share their experiences in a virtual research interview. The University of South Carolina study explores how a diagnosis may affect parents and families, including experiences of hope, comfort, joy, and other positive emotions.
Fetal Health + Star Legacy: Connecting Families to Trusted Pregnancy Support
The Fetal Health Foundation is honored to collaborate with Star Legacy Foundation. Together, we support families impacted by pregnancy loss and complex pregnancy outcomes by advancing education, research, and access to trusted resources. We share a commitment to...
Tate’s Story: Finding Hope After a Fetal Heart Block Diagnosis
When Tate was diagnosed with fetal heart block at 21 weeks, his family turned to the Children’s Mercy team that had cared for his older sister. See how coordinated fetal care and pacemaker surgery helped give Tate a strong start.
Turn Awareness Into Action: Help a Family Find Hope
Throughout Fetal Syndrome Awareness Month (FSAM), we've shared stories, information, and resources to help families and communities better understand fetal syndromes and the challenges that can come with a fetal diagnosis. But awareness shouldn't end when the month...
Pregnancy Support Resources: Trusted Organizations to Help You on Your Journey
Find trusted pregnancy support resources from 80+ organizations across 16 categories, connecting families with support for a wide range of needs and experiences.
TTTS: Then, Now, and What’s Next with Dr. Ramen Chmait
Twenty-three years after Dr. Ramen Chmait helped treat Lonnie Somers’ twin daughters for TTTS, they reflect on how fetal medicine has evolved, the advances in TTTS care, and what’s next for fetal therapy.
What is a Fetal Care Center?
A fetal care center brings together specialists who work collaboratively to evaluate, diagnose, monitor, and treat complex conditions affecting babies during pregnancy and after birth. Learn how to find a center near you or someone you love.
What Is a Fetal Syndrome?
Fetal Syndrome Awareness Month highlights the conditions that can affect a baby before birth and the importance of education, specialized fetal care, and support for families navigating a prenatal diagnosis.
UTMB Advances Research for High-Risk Pregnancies Through Two Groundbreaking Clinical Trials
For families facing a pregnancy complicated by rare alloimmune conditions, access to specialized care and innovative research can make all the difference. The University of Texas Medical Branch (UTMB) is helping lead that effort as an active study site for two...
CHOP’s Expert Care for Cleft Lip and Palate: Prenatal Diagnosis and Treatment
A prenatal diagnosis of cleft lip and palate allows families to prepare for delivery and treatment. Learn how CHOP helps children with these conditions thrive.
Advances in Neonatal Dialysis Technology for the Smallest Patients: Mozarc Medical’s Carpediem™
Mozarc Medical’s Carpediem™ neonatal dialysis system is advancing kidney care for the smallest patients. Designed for infants weighing 2.5–10 kg, it provides precise continuous renal replacement therapy (CRRT) for acute kidney injury and fluid overload.
Mozarc Medical: Innovating Kidney Care from Infancy Onward
The Carpediem™ neonatal dialysis system from Mozarc Medical is designed for infants weighing 2.5–10 kg requiring continuous renal replacement therapy (CRRT). It overcomes limitations of adapted adult dialysis machines by delivering precise fluid management and specialized support for neonatal acute kidney injury and fluid overload, improving outcomes through purpose-built infant kidney care technology.
Transformational Pediatrics Podcast: How Innovation & Hope Intersect at Children’s Mercy
This episode of Transformational Pediatrics explores congenital diaphragmatic hernia (CDH) and how advances in prenatal imaging and multidisciplinary care are changing outcomes.
OHSU Re-Engages With FHF to Support Expansion of Advanced Fetal Care
The OHSU fetal care program has re-engaged with the Fetal Health Foundation to expand access to advanced fetal care for families facing complex fetal diagnoses, strengthening support for patients across the region.
Comprehensive Prenatal Genetic Testing and In‑Utero Care at Children’s Mercy Fetal Health Center
When unexpected prenatal findings raise questions, Children’s Mercy’s Fetal Health Center offers expert genetic counseling, diagnostic testing, and emerging in‑utero treatments to help families find clarity and plan for the best possible outcomes.
CRIB Program at Stanford: Maya’s Care as a Micro-Preemie
Maya, a micro-preemie born at 25 weeks, receives highly coordinated, multidisciplinary care through the CRIB Program at Stanford Medicine Children’s Health during a complex, year-long NICU stay.
Evelyn’s Story: A Congenital Heart Defect Diagnosis Before Birth
Hannah and Trey were eagerly awaiting the arrival of their first baby when a routine 20-week anatomy scan changed everything. After doctors noticed abnormal heart views, the couple was referred to the Elizabeth J. Ferrell Fetal Health Center at Children’s Mercy Kansas...
Xavier and Bryson’s Story: Hope After a TTTS Diagnosis
A twin-twin transfusion syndrome (TTTS) diagnosis marked an unexpected turn in Essence and Eric’s pregnancy journey. At the Connecticut Children’s Fetal Care Center, expert care, precise timing, and resilience shaped the path forward as their story continued to unfold.
Delgado Quadruplets Born at UC Davis Children’s Hospital
The Delgado quadruplets were naturally conceived after Kayleen and Zeke Delgado were told they would likely have difficulty conceiving. After two daughters and a miscarriage, the couple’s path to growing their family was uncertain—but not closed. In April 2024,...
What is Compassionate Delivery?
In a compassionate delivery plan, parents may choose to baptize, sing, read, or simply sit quietly. There is no single right way. The guiding principle is simply: the baby’s life, no matter how brief, is honored fully.
8 Phrases to Avoid Saying When a New Baby Arrives with Challenges + Compassionate Words to Say Instead
When trying to support the family, remember that even well-intended words can unintentionally minimize or oversimplify their circumstances. Words can place emotional weight on parents who are already carrying a great deal. Families are adjusting in real time to new terminology, new routines, and sometimes an entirely new vision of parenthood. The family is not only caring for a child, but they are also adjusting to the new realities of their changed world.
What is folic acid and why is it important?
Pregnancy can feel uncertain, but taking a daily prenatal vitamin with folic acid, ideally before conception, is a simple step that has been proven to help protect the developing brain and spine. While it cannot prevent all birth defects, it provides meaningful support during one of the most critical stages of development.
Parents: What Is Genetic Testing and Is It Right for Me?
For many hopeful parents, the idea of genetic testing is a new and unfamiliar experience. Genetic tests can sometimes identify changes that may increase the chance of a baby being born with certain health conditions.
20 Years of Advancing Fetal Health
The Fetal Health Foundation marks its 20th anniversary, celebrating two decades of progress in fetal care, family support, and global awareness for fetal health conditions.