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Giant Omphalocele: Patient born with organs outside of her abdomen receives transformative care

Giant Omphalocele: Patient born with organs outside of her abdomen receives transformative care

by Fetal Health Foundation | Jul 8, 2022 | Abdominal Wall Defect, Blogs, front-page, News, Omphalocele, Story

…omphaloceles that many of us had ever seen,” said Robyn Huey Lao, pediatric surgery outpatient nurse practitioner at UC Davis Health. “But Everly’s skin tissue was also abnormal.” Huey Lao…

Pioneering Fetal Medicine Center Gathers Thousands for 26th Annual Family Reunion

Pioneering Fetal Medicine Center Gathers Thousands for 26th Annual Family Reunion

by Fetal Health Fdn | Sep 30, 2022 | front-page, Myelomeningocele/Spina Bifida, News, Story, Twin-to-Twin Transfusion Syndrome

…that had potentially devastating outcomes. Babies diagnosed with these birth defects before birth either underwent fetal surgery to treat the condition before birth or received highly complex care immediately after…

Nixon: Making remarkable strides in his development thanks to the world’s first study of its kind for spina bifida

Nixon: Making remarkable strides in his development thanks to the world’s first study of its kind for spina bifida

by Erika K Wolf | Oct 29, 2024 | Blogs, Condition, front-page, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story, Uncategorized

…clinical trial is the world’s first stem cell treatment for spina bifida delivered during fetal surgery. While surgery performed after birth can help reduce some of the effects, surgery before…

Once Conjoined, Now Thriving: The Altobelli Twins Three Years Later

Once Conjoined, Now Thriving: The Altobelli Twins Three Years Later

by Erika K Wolf | Nov 11, 2024 | Blogs, Condition, Conjoined Twins, front-page, News, Story, Uncategorized

…connected at the chest and abdomen, the twins underwent separation surgery at CHOP in October 2021. Their complex surgery lasted nine hours and involved dozens of medical professionals to complete….

Holding Space for the Whole Story: Maternal Mental Health in the Fetal Health Community

Holding Space for the Whole Story: Maternal Mental Health in the Fetal Health Community

by Faith Dulany | May 1, 2025 | Blogs, Condition, front-page, News, Resource News, Story

…the perinatal mental health of those impacted by fetal surgery is heightened: >1 in 2 patients that underwent fetal surgery with pre-existing depression or anxiety saw exacerbated symptoms after delivery…

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