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Rose’s Story: Prenatal Spina Bifida Diagnosis

Rose’s Story: Prenatal Spina Bifida Diagnosis

by Erika K Wolf | Dec 11, 2025 | Blogs, Condition, Fetal Hydrops, front-page, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story

…story quickly became one of resilience, hope, and extraordinary care, as her parents navigated high-risk pregnancy, in-utero surgery, and a journey that would forever shape their family’s life. A Team…

Tate’s Story: Finding Hope After a Fetal Heart Block Diagnosis

Tate’s Story: Finding Hope After a Fetal Heart Block Diagnosis

by Erika K Wolf | Aug 25, 2026 | Blogs, Condition, Congenital Heart Block, Congenital Heart Disease/Defects, front-page, News, Story

…their providers brought reassurance during an uncertain pregnancy. “Without these people, we wouldn’t have a family,” said Taylor. “We’re very thankful.”   Read Tate’s full story at Children’s Mercy.  …

Our First Grant | Fetal Brain Development and Twin-to-Twin Transfusion Syndrome

Our First Grant | Fetal Brain Development and Twin-to-Twin Transfusion Syndrome

by Michelle Somers | Aug 10, 2015 | Grant Winner, Twin-to-Twin Transfusion Syndrome

…Angeles to further study the impact of Twin-to-Twin Transfusion Syndrome (TTTS) on fetal brain development. “We are honored to receive this [grant], especially in today’s environment of cutbacks in NIH…

From Colorado to the World: HOPE For Fetal Conditions

From Colorado to the World: HOPE For Fetal Conditions

by Michelle Somers | Feb 26, 2016 | Blogs, Resource News, Twin-to-Twin Transfusion Syndrome

…our situation 13 years ago. I remember all too well searching for hope, information, and support for my twin daughters’ fetal syndrome diagnosis (TTTS). Information was hard to come by…

Twin Teens Share the Message of Hope  After Beating the Odds for Survival

Twin Teens Share the Message of Hope After Beating the Odds for Survival

by Michelle Somers | Nov 3, 2017 | Blogs, front-page, News, Twin-to-Twin Transfusion Syndrome

…excitement of learning they were expecting twins, they were told that their babies were affected by Twin-to-Twin Transfusion Syndrome (TTTS). TTTS is a rare disease of the placenta that causes…

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What It Was Like For Our Family

Stories of Fetal Diagnosis and Treatment

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Fetomaternal Alloimmunization: Alexandra’s Story

Fetoscopic MMC (Spina Bifida) Repair: One Family’s Journey

Spina Bifida Stories

TTTS Stories

Maternal Fetal Medicine and Fetal Syndromes: The Basics for Expectant Parents

Rose’s Prenatal Spina Bifida Story

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Expert Voices

Insight from Professionals

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Gastroschisis and the search for better, earlier interventions with Dr. Geoanna Bautista

Q & A with a Trailblazer: Dr. Scott Adzick at CHOP

Dr. Chmait Performs Minimally-Invasive Fetoscopic Surgery for Spina Bifida

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Who We Are

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What We Do: Our Annual Impact Report

Our Founders Story: The Somers Family

Learn about our Flagship Fundraiser, The Great Candy Run

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