Condition

Charlotte: Surviving a Fetal Omphalocele and Finding Silver Linings

Charlotte: Surviving a Fetal Omphalocele and Finding Silver Linings

When Charlotte first received an omphalocele diagnosis, her parents didn’t know it’s severity. After one of the longest months of their lives, they got some good news. Maternal fetal medicine specialists at the Colorado Fetal Care Center diagnosed Charlotte with an isolated omphalocele, meaning a small part of her intestine was growing outside her abdomen but it wasn’t affecting other organs.

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Liam: Fetal Surgery for Myelomeningocele (MMC) Spina Bifida Repair

Liam: Fetal Surgery for Myelomeningocele (MMC) Spina Bifida Repair

“The doctor came in and handed me a box of tissues,” Katie recalls. “She was saying something about an abnormal pregnancy, shunts, abnormalities of the left leg, club foot. I was in complete shock at that point, and I couldn’t really make out what she was saying because it felt like time was suspended.”

In a span of two hours, their lives had been turned upside down.

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Maverick’s Hypoplastic Left Heart Syndrome (HLHS) Journey

Maverick’s Hypoplastic Left Heart Syndrome (HLHS) Journey

Babies born with Maverick’s heart condition and a restrictive or absent communication between the top two chambers of the heart, are born with abnormal lungs, in addition to the heart defect. In fact, most of these babies do not survive after birth. Maverick underwent creation of an opening in the top two chambers of the heart in fetal life with a stent, to allow him to be stable after birth..

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