When Brittany and Nicholas’ unborn baby, Cecelia, was diagnosed with fetal heart block at 24 weeks gestation, their lives changed immediately — in the most literal sense of the word. They lived in Montana and when their doctor first suspected the heart issue, he told...
Condition
Charlotte: Surviving a Fetal Omphalocele and Finding Silver Linings
When Charlotte first received an omphalocele diagnosis, her parents didn’t know it’s severity. After one of the longest months of their lives, they got some good news. Maternal fetal medicine specialists at the Colorado Fetal Care Center diagnosed Charlotte with an isolated omphalocele, meaning a small part of her intestine was growing outside her abdomen but it wasn’t affecting other organs.
Fetal Surgery for Spina Bifida: Jaxyn’s Story
Fetal surgery for spina bifida is improving outcomes. The fetal surgeons at Cincinnati Children's Fetal Care Center, who have extensive experience and innovative intervention therapies to help treat spina bifida in utero, recently shared this story of hope with the...
Fetomaternal Alloimmunization: Alexandra’s Story
I was diagnosed with fetomaternal alloimmunization, a condition in which a mother’s body creates antibodies against a fetus’ blood antigens. This diagnosis crushed us. My husband and I wanted a lot of children, and now we were left wondering whether we could even have a second.
Hydrops Fact Sheet | UCSF Hydrops Center of Excellence
Hydrops fetalis is a serious condition that affects about 1 in 1,700 pregnancies. For many families, answers about why this condition occurs have been in short supply because the cause is often not identified through standard testing.
Liam: Fetal Surgery for Myelomeningocele (MMC) Spina Bifida Repair
“The doctor came in and handed me a box of tissues,” Katie recalls. “She was saying something about an abnormal pregnancy, shunts, abnormalities of the left leg, club foot. I was in complete shock at that point, and I couldn’t really make out what she was saying because it felt like time was suspended.”
In a span of two hours, their lives had been turned upside down.
Fetal Hydrops: Successful In-Utero Surgery by Oregon Health & Science University’s Fetal Care Team
Fetal hydrops is a rare, but far too often fatal condition. The Fetal Health Foundation is thrilled to share, with their permission, a success story and video from Oregon Health & Science University’s Fetal Care team. Stories like this one, of a healthy baby born...
Mila’s CDH Story | From Diagnosis to Delivery – and Beyond
“In severe cases of CDH, the survival rate is ranging from less than 20% to 50%, but with FETO, we’re seeing a huge improvement in odds of survival,” said Dr. Lim. “Right now, it looks like survival rates as high as 80-90% are possible, but we’re still learning.”
Maverick’s Hypoplastic Left Heart Syndrome (HLHS) Journey
Babies born with Maverick’s heart condition and a restrictive or absent communication between the top two chambers of the heart, are born with abnormal lungs, in addition to the heart defect. In fact, most of these babies do not survive after birth. Maverick underwent creation of an opening in the top two chambers of the heart in fetal life with a stent, to allow him to be stable after birth..
Intraabdominal Cysts – Facts
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Esophageal Atresia – Facts
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Vesicoureteral Reflux – Facts
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