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Rose’s Story: Prenatal Spina Bifida Diagnosis

Rose’s Story: Prenatal Spina Bifida Diagnosis

by Erika K Wolf | Dec 11, 2025 | Blogs, Condition, Fetal Hydrops, front-page, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story

When Taylor and James learned their baby, Rose, had spina bifida, their world shifted overnight. From high-risk pregnancy care to in-utero surgery at Children’s Mercy, their story of hope, resilience, and the power of compassionate medical support unfolded.

Inés’ Journey: Life After TRAP Sequence and the Loss of Her Twin

Inés’ Journey: Life After TRAP Sequence and the Loss of Her Twin

by Erika K Wolf | Dec 8, 2025 | Blogs, Condition, front-page, News, Story, Twin Reversed Arterial Perfusion Sequence

Diagnosed with TRAP sequence, Inés’ survival came after her twin’s loss, meticulous fetal monitoring, and the expert care at CHOP. Explore the pivotal moments and life-saving decisions that shaped her remarkable beginning.

A Fragile Start, a Fierce Future: Nora and Hattie’s sIUGR Story

A Fragile Start, a Fierce Future: Nora and Hattie’s sIUGR Story

by Erika K Wolf | Dec 8, 2025 | Blogs, Condition, front-page, News, Selective Intrauterine Growth Restriction, Story

Hattie and Nora faced sIUGR in the womb, a rare condition that threatened their lives. Years later, they continue to thrive, a testament to expert care at CHOP, resilience, and their extraordinary early journey.

From Diagnosis to Toddlers: A Family’s Journey Beyond TTTS

From Diagnosis to Toddlers: A Family’s Journey Beyond TTTS

by Erika K Wolf | Dec 1, 2025 | Blogs, Condition, front-page, News, Twin-to-Twin Transfusion Syndrome

Life at home with Kaelyn’s twins is lively, loud, and full of surprises, especially after their early diagnosis with twin-twin transfusion syndrome (TTTS). Ben keeps everyone laughing with playful antics while Renny clings to mom as she juggles snacks and toddler...
A New Beginning: How Helio’s Story Shows the Power of Expert CDH Care

A New Beginning: How Helio’s Story Shows the Power of Expert CDH Care

by Erika K Wolf | Nov 25, 2025 | Blogs, Condition, Congenital Diaphragmatic Hernia, front-page, News, Story

Helio’s story highlights the strength of one tiny fighter and the impact of expert CDH care. From diagnosis to recovery, his journey is filled with hope, resilience, and extraordinary medical support. See how far he’s come.

Prematurity Awareness Month: Supporting Families, Advancing Healthy Pregnancies

Prematurity Awareness Month: Supporting Families, Advancing Healthy Pregnancies

by Erika K Wolf | Nov 7, 2025 | Blogs, Condition, front-page, News, NICU, Story

November is Prematurity Awareness Month, a time to raise awareness about preterm birth, honor the resilience of premature infants, and support families with educational resources for healthy pregnancies.

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Treatment Centers

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What It Was Like For Our Family

Stories of Fetal Diagnosis and Treatment

Fetomaternal Alloimmunization: Alexandra’s Story

Fetoscopic MMC (Spina Bifida) Repair: One Family’s Journey

Spina Bifida Stories

TTTS Stories

Maternal Fetal Medicine and Fetal Syndromes: The Basics for Expectant Parents

Rose’s Prenatal Spina Bifida Story

Make a Donation

Expert Voices

Insight from Professionals

Gastroschisis and the search for better, earlier interventions with Dr. Geoanna Bautista

Q & A with a Trailblazer: Dr. Scott Adzick at CHOP

Dr. Chmait Performs Minimally-Invasive Fetoscopic Surgery for Spina Bifida

Our Medical Board of Directors

 

Who We Are

A Parent-Founded Nonprofit

What We Do: Our Annual Impact Report

Renny and Benny’s Story

Our Founders Story: The Somers Family

Learn about our Flagship Fundraiser, The Great Candy Run

Contact Our Staff

 

980-224-0398
9786 South Holland St.

Littleton, CO 80127

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