This episode of Transformational Pediatrics explores congenital diaphragmatic hernia (CDH) and how advances in prenatal imaging and multidisciplinary care are changing outcomes.
The OHSU fetal care program has re-engaged with the Fetal Health Foundation to expand access to advanced fetal care for families facing complex fetal diagnoses, strengthening support for patients across the region.
When unexpected prenatal findings raise questions, Children’s Mercy’s Fetal Health Center offers expert genetic counseling, diagnostic testing, and emerging in‑utero treatments to help families find clarity and plan for the best possible outcomes.
Maya, a micro-preemie born at 25 weeks, receives highly coordinated, multidisciplinary care through the CRIB Program at Stanford Medicine Children’s Health during a complex, year-long NICU stay.
Hannah and Trey were eagerly awaiting the arrival of their first baby when a routine 20-week anatomy scan changed everything. After doctors noticed abnormal heart views, the couple was referred to the Elizabeth J. Ferrell Fetal Health Center at Children’s Mercy Kansas...
A twin-twin transfusion syndrome (TTTS) diagnosis marked an unexpected turn in Essence and Eric’s pregnancy journey. At the Connecticut Children’s Fetal Care Center, expert care, precise timing, and resilience shaped the path forward as their story continued to unfold.
The Delgado quadruplets were naturally conceived after Kayleen and Zeke Delgado were told they would likely have difficulty conceiving. After two daughters and a miscarriage, the couple’s path to growing their family was uncertain—but not closed. In April 2024,...
In a compassionate delivery plan, parents may choose to baptize, sing, read, or simply sit quietly. There is no single right way. The guiding principle is simply: the baby’s life, no matter how brief, is honored fully.
When trying to support the family, remember that even well-intended words can unintentionally minimize or oversimplify their circumstances. Words can place emotional weight on parents who are already carrying a great deal. Families are adjusting in real time to new terminology, new routines, and sometimes an entirely new vision of parenthood. The family is not only caring for a child, but they are also adjusting to the new realities of their changed world.
Pregnancy can feel uncertain, but taking a daily prenatal vitamin with folic acid, ideally before conception, is a simple step that has been proven to help protect the developing brain and spine. While it cannot prevent all birth defects, it provides meaningful support during one of the most critical stages of development.
For many hopeful parents, the idea of genetic testing is a new and unfamiliar experience. Genetic tests can sometimes identify changes that may increase the chance of a baby being born with certain health conditions.
The Fetal Health Foundation marks its 20th anniversary, celebrating two decades of progress in fetal care, family support, and global awareness for fetal health conditions.