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OHSU Re-Engages With FHF to Support Expansion of Advanced Fetal Care

OHSU Re-Engages With FHF to Support Expansion of Advanced Fetal Care

by Erika K Wolf | May 27, 2026 | Blogs, Condition, Congenital Diaphragmatic Hernia, front-page, Lower Urinary Tract Obstruction, News, Spina Bifida, Story, Twin-to-Twin Transfusion Syndrome

The OHSU fetal care program has re-engaged with the Fetal Health Foundation to expand access to advanced fetal care for families facing complex fetal diagnoses, strengthening support for patients across the region.

Comprehensive Prenatal Genetic Testing and In‑Utero Care at Children’s Mercy Fetal Health Center

Comprehensive Prenatal Genetic Testing and In‑Utero Care at Children’s Mercy Fetal Health Center

by Erika K Wolf | May 26, 2026 | Blogs, Condition, cystic fibrosis, front-page, Genetic Testing, High-risk pregnancy, News, Story

When unexpected prenatal findings raise questions, Children’s Mercy’s Fetal Health Center offers expert genetic counseling, diagnostic testing, and emerging in‑utero treatments to help families find clarity and plan for the best possible outcomes.

CRIB Program at Stanford: Maya’s Care as a Micro-Preemie

CRIB Program at Stanford: Maya’s Care as a Micro-Preemie

by Erika K Wolf | May 20, 2026 | Blogs, Condition, front-page, News, NICU, Story

Maya, a micro-preemie born at 25 weeks, receives highly coordinated, multidisciplinary care through the CRIB Program at Stanford Medicine Children’s Health during a complex, year-long NICU stay.

Evelyn’s Story: A Congenital Heart Defect Diagnosis Before Birth

Evelyn’s Story: A Congenital Heart Defect Diagnosis Before Birth

by Erika K Wolf | May 19, 2026 | Aortic Senosis, Blogs, Condition, Congenital Heart Disease/Defects, Fetal Cardiac Abnormalities, front-page, News, Story

Hannah and Trey were eagerly awaiting the arrival of their first baby when a routine 20-week anatomy scan changed everything. After doctors noticed abnormal heart views, the couple was referred to the Elizabeth J. Ferrell Fetal Health Center at Children’s Mercy Kansas...
Xavier and Bryson’s Story: Hope After a TTTS Diagnosis

Xavier and Bryson’s Story: Hope After a TTTS Diagnosis

by Erika K Wolf | Apr 21, 2026 | Blogs, Condition, front-page, News, Story, Twin-to-Twin Transfusion Syndrome

A twin-twin transfusion syndrome (TTTS) diagnosis marked an unexpected turn in Essence and Eric’s pregnancy journey. At the Connecticut Children’s Fetal Care Center, expert care, precise timing, and resilience shaped the path forward as their story continued to unfold.

Delgado Quadruplets Born at UC Davis Children’s Hospital

Delgado Quadruplets Born at UC Davis Children’s Hospital

by Erika K Wolf | Apr 3, 2026 | Blogs, Condition, front-page, High-risk pregnancy, News, NICU, Story

The Delgado quadruplets were naturally conceived after Kayleen and Zeke Delgado were told they would likely have difficulty conceiving. After two daughters and a miscarriage, the couple’s path to growing their family was uncertain—but not closed. In April 2024,...
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Fetal Syndrome Stories

  • Abdominal Wall Defect
  • Agenesis of the Corpus Callosum
  • Alloimmune Thrombocytopenia
  • Aortic Senosis
  • Bowel Obstruction
  • Cardiac Disease
  • Cleft Lip and Palate
  • Cloaca Exstrophy
  • Congenital Chylothorax
  • Congenital Cystic Adenomatoid Malformation
  • Congenital Diaphragmatic Hernia
  • Congenital Heart Disease/Defects
  • Conjoined Twins
  • Esophageal Atresia with Tracheosphageal Fistula
  • Fetal Cardiac Abnormalities
  • Fetal Chylothorax or Hydrothorax
  • Fetal Hydrops
  • Fetal Hypothyroidism/ Hyperthyroidism
  • Gastroschisis
  • Hemolytic Disease
  • Hydrocephalus/ Ventriculomegaly
  • Hypoplastic Left Heart Syndrome
  • Intrauterine Growth Restriction
  • Kidney, Bladder, and Genital Abnormalities
  • Lower Urinary Tract Obstruction
  • Mediastinal Teratoma
  • Meningocele
  • Myelomeningocele/Spina Bifida
  • Neurological Defects
  • Non-Immune Hydrops
  • Omphalocele
  • Pericardial Teratoma
  • Pleural Effusion (Hydrothorax)
  • Pleural Effusions
  • Pulmonary Agensis
  • Pulmonary Atresia with Intact Ventricle Septum
  • Pulmonary Sequestration
  • Rh Disease
  • Sacrococcygeal Teratoma
  • Selective Intrauterine Growth Restriction
  • Twin Reversed Arterial Perfusion Sequence
  • Twin-to-Twin Transfusion Syndrome
  • Ventriculomegaly
  • What It Was Like For Our Family

    Stories of Fetal Diagnosis and Treatment

    Fetomaternal Alloimmunization: Alexandra’s Story

    Fetoscopic MMC (Spina Bifida) Repair: One Family’s Journey

    Spina Bifida Stories

    TTTS Stories

    Maternal Fetal Medicine and Fetal Syndromes: The Basics for Expectant Parents

    Rose’s Prenatal Spina Bifida Story

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    Expert Voices

    Insight from Professionals

    Gastroschisis and the search for better, earlier interventions with Dr. Geoanna Bautista

    Q & A with a Trailblazer: Dr. Scott Adzick at CHOP

    Dr. Chmait Performs Minimally-Invasive Fetoscopic Surgery for Spina Bifida

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    What We Do: Our Annual Impact Report

    Renny and Benny’s Story

    Our Founders Story: The Somers Family

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