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Rose’s Story: Prenatal Spina Bifida Diagnosis

Rose’s Story: Prenatal Spina Bifida Diagnosis

by Erika K Wolf | Dec 11, 2025 | Blogs, Condition, Fetal Hydrops, front-page, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story

When Taylor and James learned their baby, Rose, had spina bifida, their world shifted overnight. From high-risk pregnancy care to in-utero surgery at Children’s Mercy, their story of hope, resilience, and the power of compassionate medical support unfolded.

Inés’ Journey: Life After TRAP Sequence and the Loss of Her Twin

Inés’ Journey: Life After TRAP Sequence and the Loss of Her Twin

by Erika K Wolf | Dec 8, 2025 | Blogs, Condition, front-page, News, Story, Twin Reversed Arterial Perfusion Sequence

Diagnosed with TRAP sequence, Inés’ survival came after her twin’s loss, meticulous fetal monitoring, and the expert care at CHOP. Explore the pivotal moments and life-saving decisions that shaped her remarkable beginning.

A Fragile Start, a Fierce Future: Nora and Hattie’s sIUGR Story

A Fragile Start, a Fierce Future: Nora and Hattie’s sIUGR Story

by Erika K Wolf | Dec 8, 2025 | Blogs, Condition, front-page, News, Selective Intrauterine Growth Restriction, Story

Hattie and Nora faced sIUGR in the womb, a rare condition that threatened their lives. Years later, they continue to thrive, a testament to expert care at CHOP, resilience, and their extraordinary early journey.

A New Beginning: How Helio’s Story Shows the Power of Expert CDH Care

A New Beginning: How Helio’s Story Shows the Power of Expert CDH Care

by Erika K Wolf | Nov 25, 2025 | Blogs, Condition, Congenital Diaphragmatic Hernia, front-page, News, Story

Helio’s story highlights the strength of one tiny fighter and the impact of expert CDH care. From diagnosis to recovery, his journey is filled with hope, resilience, and extraordinary medical support. See how far he’s come.

Prematurity Awareness Month: Supporting Families, Advancing Healthy Pregnancies

Prematurity Awareness Month: Supporting Families, Advancing Healthy Pregnancies

by Erika K Wolf | Nov 7, 2025 | Blogs, Condition, front-page, News, NICU, Story

November is Prematurity Awareness Month, a time to raise awareness about preterm birth, honor the resilience of premature infants, and support families with educational resources for healthy pregnancies.

Turning a Frightening Pregnancy Diagnosis into a Lifeline for Families: Our Founders’ Story

Turning a Frightening Pregnancy Diagnosis into a Lifeline for Families: Our Founders’ Story

by Fetal Health Foundation | Nov 5, 2025 | Blogs, front-page, Story, Twin-to-Twin Transfusion Syndrome

A Joyful Beginning When Lonnie and Michelle Somers learned they were expecting twins, they were overjoyed — and full of hopes for their future as parents. But that excitement was soon overshadowed by a diagnosis of twin-to-twin transfusion syndrome (TTTS), a rare and...
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Fetal Syndrome Stories

  • Abdominal Wall Defect
  • Agenesis of the Corpus Callosum
  • Alloimmune Thrombocytopenia
  • Aortic Senosis
  • Bowel Obstruction
  • Cardiac Disease
  • Cleft Lip and Palate
  • Cloaca Exstrophy
  • Congenital Chylothorax
  • Congenital Cystic Adenomatoid Malformation
  • Congenital Diaphragmatic Hernia
  • Congenital Heart Disease/Defects
  • Conjoined Twins
  • Esophageal Atresia with Tracheosphageal Fistula
  • Fetal Cardiac Abnormalities
  • Fetal Chylothorax or Hydrothorax
  • Fetal Hydrops
  • Fetal Hypothyroidism/ Hyperthyroidism
  • Gastroschisis
  • Hemolytic Disease
  • Hydrocephalus/ Ventriculomegaly
  • Hypoplastic Left Heart Syndrome
  • Intrauterine Growth Restriction
  • Kidney, Bladder, and Genital Abnormalities
  • Lower Urinary Tract Obstruction
  • Meningocele
  • Myelomeningocele/Spina Bifida
  • Neurological Defects
  • Non-Immune Hydrops
  • Omphalocele
  • Pericardial Teratoma
  • Pleural Effusion (Hydrothorax)
  • Pleural Effusions
  • Pulmonary Agensis
  • Pulmonary Atresia with Intact Ventricle Septum
  • Pulmonary Sequestration
  • Rh Disease
  • Sacrococcygeal Teratoma
  • Selective Intrauterine Growth Restriction
  • Twin Reversed Arterial Perfusion Sequence
  • Twin-to-Twin Transfusion Syndrome
  • Ventriculomegaly
  • What It Was Like For Our Family

    Stories of Fetal Diagnosis and Treatment

    Fetomaternal Alloimmunization: Alexandra’s Story

    Fetoscopic MMC (Spina Bifida) Repair: One Family’s Journey

    Spina Bifida Stories

    TTTS Stories

    Maternal Fetal Medicine and Fetal Syndromes: The Basics for Expectant Parents

    Rose’s Prenatal Spina Bifida Story

    Make a Donation

    Expert Voices

    Insight from Professionals

    Gastroschisis and the search for better, earlier interventions with Dr. Geoanna Bautista

    Q & A with a Trailblazer: Dr. Scott Adzick at CHOP

    Dr. Chmait Performs Minimally-Invasive Fetoscopic Surgery for Spina Bifida

    Our Medical Board of Directors

     

    Who We Are

    A Parent-Founded Nonprofit

    What We Do: Our Annual Impact Report

    Renny and Benny’s Story

    Our Founders Story: The Somers Family

    Learn about our Flagship Fundraiser, The Great Candy Run

    Contact Our Staff

     

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    Littleton, CO 80127

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