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Ruthie’s Story: Baby with Down Syndrome Receives Life-Saving Care and Overcomes Challenges

Ruthie’s Story: Baby with Down Syndrome Receives Life-Saving Care and Overcomes Challenges

by Erika K Wolf | Mar 19, 2025 | Blogs, Condition, front-page, News, Story, Uncategorized

Ruthie, a baby with Down syndrome, received critical care at UC Davis Children’s Hospital after being diagnosed with a heart condition. With expert support and successful heart surgery, she overcame early challenges and is thriving. Her parents share their journey and encourage others to trust specialized care.

The Life-Changing Impact of Mental Health Care in the NICU

The Life-Changing Impact of Mental Health Care in the NICU

by Erika K Wolf | Mar 14, 2025 | Blogs, Condition, Esophageal Atresia with Tracheosphageal Fistula, front-page, News, Story

The mental health support provided in the NICU was essential for Collette & Alex as they navigated the emotional challenges of their daughter Austen’s critical care. The family-focused care at Stanford Children’s enabled them to manage stress, connect with other parents, and focus on both Austen’s healing.

Meet Rami: Checking off milestones after highly rare CCMS diagnosis

Meet Rami: Checking off milestones after highly rare CCMS diagnosis

by Erika K Wolf | Mar 6, 2025 | Blogs, Condition, front-page, News, Story, Uncategorized

Rami’s parents knew when he was still in utero that there was an issue with his jaw. Genetic testing after birth revealed an extremely rare diagnosis of CCMS, which affects the jaw, mouth, and ribs. Thanks to the compassionate, expert care at Cincinnati Children’s, Rami is almost 2 and keeping his parents on their toes!

What does the Fetal Health Foundation do?

What does the Fetal Health Foundation do?

by Erika K Wolf | Feb 14, 2025 | Blogs, front-page, News, Story, Uncategorized

At the Fetal Health Foundation, our mission is to connect patients with trusted treatment options and essential support resources. We collaborate with hospitals, fetal centers, and medical companies to amplify our impact. We strive to create a brighter, healthier future for mothers and babies!

Q & A with a Trailblazer: Dr. Scott Adzick at CHOP

Q & A with a Trailblazer: Dr. Scott Adzick at CHOP

by Erika K Wolf | Jan 9, 2025 | Blogs, Condition, Fetal medicine, Fetal surgery, front-page, News, Story, Uncategorized

The field of fetal diagnosis and treatment is continually evolving. Hear from Dr. Scott Adzick, one of the foremost trailblazers in the specialty, about groundbreaking advancements he helped pioneer. Learn why he believes it’s an obligation of the field to conduct research to offer hope and health.

Baby MJ Battles an Extremely Rare, Strange Heart Defect and Wins

Baby MJ Battles an Extremely Rare, Strange Heart Defect and Wins

by Erika K Wolf | Dec 21, 2024 | Blogs, Condition, Congenital Heart Disease/Defects, front-page, News, Story

The Egan family is grateful for the “enormous team” at Stanford Medicine Children’s Health who repaired baby MJ’s rare congenital heart defect and provided months of individualized care in the Cardiovascular Intensive Care Unit. Today, their baby is a thriving toddler with normal heart ventricle function.

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Fetal Syndrome Stories

  • Abdominal Wall Defect
  • Agenesis of the Corpus Callosum
  • Alloimmune Thrombocytopenia
  • Aortic Senosis
  • Bowel Obstruction
  • Cardiac Disease
  • Cleft Lip and Palate
  • Cloaca Exstrophy
  • Congenital Chylothorax
  • Congenital Cystic Adenomatoid Malformation
  • Congenital Diaphragmatic Hernia
  • Congenital Heart Disease/Defects
  • Conjoined Twins
  • Esophageal Atresia with Tracheosphageal Fistula
  • Fetal Cardiac Abnormalities
  • Fetal Chylothorax or Hydrothorax
  • Fetal Hydrops
  • Fetal Hypothyroidism/ Hyperthyroidism
  • Gastroschisis
  • Hemolytic Disease
  • Hydrocephalus/ Ventriculomegaly
  • Hypoplastic Left Heart Syndrome
  • Intrauterine Growth Restriction
  • Kidney, Bladder, and Genital Abnormalities
  • Lower Urinary Tract Obstruction
  • Mediastinal Teratoma
  • Meningocele
  • Myelomeningocele/Spina Bifida
  • Neurological Defects
  • Non-Immune Hydrops
  • Omphalocele
  • Pericardial Teratoma
  • Pleural Effusion (Hydrothorax)
  • Pleural Effusions
  • Pulmonary Agensis
  • Pulmonary Atresia with Intact Ventricle Septum
  • Pulmonary Sequestration
  • Rh Disease
  • Sacrococcygeal Teratoma
  • Selective Intrauterine Growth Restriction
  • Twin Reversed Arterial Perfusion Sequence
  • Twin-to-Twin Transfusion Syndrome
  • Ventriculomegaly
  • What It Was Like For Our Family

    Stories of Fetal Diagnosis and Treatment

    Fetomaternal Alloimmunization: Alexandra’s Story

    Fetoscopic MMC (Spina Bifida) Repair: One Family’s Journey

    Spina Bifida Stories

    TTTS Stories

    Maternal Fetal Medicine and Fetal Syndromes: The Basics for Expectant Parents

    Rose’s Prenatal Spina Bifida Story

    Make a Donation

    Expert Voices

    Insight from Professionals

    Gastroschisis and the search for better, earlier interventions with Dr. Geoanna Bautista

    Q & A with a Trailblazer: Dr. Scott Adzick at CHOP

    Dr. Chmait Performs Minimally-Invasive Fetoscopic Surgery for Spina Bifida

    Our Medical Board of Directors

     

    Who We Are

    A Parent-Founded Nonprofit

    What We Do: Our Annual Impact Report

    Renny and Benny’s Story

    Our Founders Story: The Somers Family

    Learn about our Flagship Fundraiser, The Great Candy Run

    Contact Our Staff

     

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