5-minute read
The Badenhop family wasn’t expecting news of spina bifida and were scared and uncertain about their baby’s future. But Nationwide Children’s Hospital’s expert team offered hope — and a successful outcome for baby Lexi.
5-minute read
A young mom is faced with life or death decisions soon after learning her son’s diagnosis of spina bifida and hydrocephalus. She tells us her heartwarming story.
4-minute read
Researchers at UC Davis Health are continuing to Phase 2 of a clinical trial for in utero surgery that uses stem cells to repair spina bifida defect, offering potential better outcomes.
4-minute read
Now that there is ever-growing potential to intervene medically before a child is born, it expands the utility of prenatal testing. Doctors can find ways to intervene earlier to improve outcomes.
When Katarina’s unborn baby was diagnosed with myelomeningocele (MMC), “It was kind of a shock, but my doctor said the best bet was fetal surgery. He referred me to Colorado right away, and he said we needed to do it as soon as possible,” she says. “That just kind of threw me for a whirlwind, and I have other kids to take care of too. It was a lot to process.”
Fetal Health Foundation Medical Advisory Board member Dr. Timothy Crombleholme, MD, who leads the Fetal Care Center at Connecticut Children’s, shares six important details to consider when your baby needs fetal intervention not just to survive, but to thrive.